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anglfrmhvn69
Regular Member


Date Joined Dec 2006
Total Posts : 337
   Posted 12/1/2008 9:04 AM (GMT -6)   
i stopped taking pred. a week ago i just stopped,i couldnt take the side effects any longer. it was starting to mess with my stomach.i'm still having problems alittle bit,but it is alot better. my joints are starting to get sore again but no where near as extreme as it was.does anyone have any suggestions on what to take for my joints? any suggestions would be appreciated thanks in advance.

pamela

 i was diagnosed with uc on april.16,2003. had my sec. colonoscopy on aug.22,2007 came back normal.

currently flaring on prednisone 60mg x1 week,40mg x1 week, 20mg x1 week.

i also take nexium 40mg once a day for acid reflux.

take one multivitamin a day

started taking one a day acidophilus probiotic

one a day omega 3 fatty fish oil capsule

                                                                      

 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 12/1/2008 3:46 PM (GMT -6)   
You could consider arthritis Tylenol...it is a higher dosage, but even to give relief a bit helps with your daily routines.

If you're not salicylate sensitive...can you try any rectal meds to help with rectal inflammation?

If you're not salicylate sensitive, you could try the topical creams for arthritis.

If you're not sulfa or salicylate sensitive, you could maybe try sulfasalazine. Apparently , the sulfa helps with joint inflammation.

You could consider to take Bromelain....it can help with joint/body aches. It's a digestive enzyme...could indirectly help with your tummy aches as well by helping to digest some foods better.

I strongly suggest you ask the doc for a vitamin D blood test......many people low in vitamin D have body aches.

You could consider a liquid Calcium/mag/D3 supplement.

The other option is glucosamine/controitin/MSM...but could be hard on your tummy.

Some are helped by tonic water...not too much, however...but it has quinine in it which can help with body aches. Some can have tummy discomfort from it...but worth a try.

Hope this helps...I can truly relate to the body/joint aches...I've had them since I was 11.

Take care.
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 12/1/2008 3:50 PM (GMT -6)   
avoiding sugar may help.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Mesaamaline (sp) Retention Enemas, herbal meds in the search to regain full health.


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 12/2/2008 2:39 AM (GMT -6)   
Pam,

I agree with trying the bromelain, and vit D supplements to help control inflammation. I would also try the anti inflammatory Haldi drinks, they not only helped me get off my steroids, they relieved my GERD as well.
-------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily to remain in remission

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/2/2008 8:21 AM (GMT -6)   
Pam for future reference. Please do not just stop taking any steroid. It has to be weaned to avoid complications with your adrenal glands. By abruptly stopping a steroid you are basically putting your adrenal gland in shock and that gland performs many essential functions in your body such as blood pressure, hormone control and heart contractions. Regarding the joint pain, I just recently switched over to Tylonel Arthritis and it has been my miracle pain reliever. It has helped tremendously with my joint pain, arthritis and headaches. Also a nice warm bath with epsom salts work really well too.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
To help Healingwell - click here: DONATE
 
 
 
 

 
 


anglfrmhvn69
Regular Member


Date Joined Dec 2006
Total Posts : 337
   Posted 12/2/2008 9:35 AM (GMT -6)   
wow didnt realize that stopping the steriod sudden like that could cause alot of major problems i definatally will not do that again thank sherry. yucky gut where do you buy those haldi drinks? like to give that a try. and thanks everyone for the advise appreciate it.

pamela

 i was diagnosed with uc on april.16,2003. had my sec. colonoscopy on aug.22,2007 came back normal.

currently flaring on prednisone 60mg x1 week,40mg x1 week, 20mg x1 week.

i also take nexium 40mg once a day for acid reflux.

take one multivitamin a day

started taking one a day acidophilus probiotic

one a day omega 3 fatty fish oil capsule

                                                                      

 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 12/2/2008 10:26 AM (GMT -6)   
I had the worst of the joint pain after I stopped taking pred- i did taper a long time & was down to like 2.5mgs/day when I was able to stop. Then a week later, the joint pain got worse & worse & honestly I could barely hobble around the house. And it stayed BAD for a couple months. I think it's another of pred's lovely side effects. Stopping suddenly the way you did (VERY BAD!!!!!) probably made your adrenal glands go haywire, & you'll most likely have the pain for a while. But yeah, Tylenol should help on a day-to-day basis. And it will go away eventually.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/2/2008 12:29 PM (GMT -6)   
My back pain & spasms are not related to the UC (I don't think), it's a slightly bulging disc that is also affecting my sciatic nerve - ouch. I know I should not be taking it because it can cause bleeding, but Aleve is the only thing that works for me. Also, hydrocodone but I think doc's given my my last refill of that! I don't think the Aleve sets me back, but I'm on my guard for ill effects. I irritated my back walking 18 holes of golf and this bout just won't clear up, so I scheduled an epidural shot of cortisone.

Pamela, I'm glad someone told you that you can't just stop prednisone, and knew why. I just knew that was bad, bad, bad for you.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Big Dog
Regular Member


Date Joined Aug 2008
Total Posts : 62
   Posted 12/2/2008 12:41 PM (GMT -6)   
Flared when got dosage of prednisone down to 2 mg a day so went back to 5 mg daily (Drs orders) and then tapered again. Worked all the way down to nothing! Get occasional joint pain now which used to be a sign of a flare starting up but now the joint pain passes in a couple of days.
Mother of 8 yo UC child
Lialda 3 pills daily
Imuran 50mg 3x daily
Fish Oil, Probiotics, Immune System Boosters, Multi-Vit with Calcium


mdbuckeye
Regular Member


Date Joined Dec 2008
Total Posts : 26
   Posted 12/2/2008 9:42 PM (GMT -6)   
I completely stopped taking prednisone 2 years ago. I was taking 20mg at the time and  I just quit. Next thing you know I had veins popping out of me head and behind my ears. I was constanly scratching my head and itching all the time. I went to the doctor eventually and he was upset. I want to say he said something about lymph nodes or something. Basically the point is dont just quit taking it, trust me it get worse.
colitlis since 2000. current meds 250mg (imuran) sulfasalazine 4000mg, 1 multivitamin


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 12/3/2008 2:04 AM (GMT -6)   
pam, you should not just discontinue prednisone, talk to your doc, you really need to wean off of it slowly. I had been on them long term with only minimal breaks in between before I found the Haldi drinks. I found them at whole foods markets, but now get them cheaper online at Haldi4health. where I can get free shipping.

Are you still off your steroids, or have you restarted them?

------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily to remain in remisson

anglfrmhvn69
Regular Member


Date Joined Dec 2006
Total Posts : 337
   Posted 12/3/2008 8:34 AM (GMT -6)   
i'm still of the steriods,i dont want to go back on those. unless i really have too,but as of now my symptoms are mild. it's no where near as bad as it was.

pamela

 i was diagnosed with uc on april.16,2003. had my sec. colonoscopy on aug.22,2007 came back normal.

currently flaring on prednisone 60mg x1 week,40mg x1 week, 20mg x1 week.

i also take nexium 40mg once a day for acid reflux.

take one multivitamin a day

started taking one a day acidophilus probiotic

one a day omega 3 fatty fish oil capsule

                                                                      

 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/5/2008 6:29 PM (GMT -6)   
     For future reference....not to scare you or anything Pam...but my late childhood friend who suffered with Crohn's Disease stopped taking prednisone cold turkey and wound up with Addison's Disease which really did a number on her.  She passed away in 2005 with sepsis.  I am surprised your doctor didn't tell you that you couldn't just stop taking prednisone.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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