going to replace Imuran w/Cellcept

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 12/1/2008 12:00 PM (GMT -6)   
seeing kidney doc tonite and I am almost in remission, think I am steriod dependent.  Also when I get down to less than 10mg or 5mg I see some blood in my bm's but still only one bm a day.
 
So methinks the Imuran is not helping me otherwise there wouldn't be any blood??  I want my kidney's to get better so I think since the imuran is not helping then I will go on cellcept (can't be on both at the same time).
 
Will let you know how it goes w/the cellcept.  Just in time for the holidays = )
 
Hope you all are well.  Take care.
 
btw, I got back from my UK trip and all went well UC (my kidneys got worse coz of my pred taper).  I have been going on facebook more, it's a nice break from thinking about my health issues.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 12/1/2008 3:23 PM (GMT -6)   
Good to hear you had a great time in the UK.

Sad to hear the pred is causing you such problems. I hope the Cellacept will be the answer.

The other option is to eventually have surgery??

It's good to take a break from health talk....enjoy the days you're feeling well!

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 12/2/2008 10:32 AM (GMT -6)   
Thanks Q! Yeah, I will have a lot of big decisions in the coming year. I will try remi and humira first before the surgery.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 12/3/2008 10:22 AM (GMT -6)   
Best wishes for your switch to Cellcept! You are absolutely right to pursue as much "normal" activity as your body can comfortably handle. It has surely been a trying year for you with both kidney problems & UC to manage so I wish you the blessed relief from both that you certainly deserve. Great that you've enjoyed traveling in spite of the health complications!  / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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