UC and Arthritis connection?

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festeris101
Regular Member


Date Joined Dec 2008
Total Posts : 115
   Posted 12/1/2008 10:36 PM (GMT -6)   
Hello again,
              Another question, Do you guys suffer from ailments other than the UC?
 
I suffer from Arthritis, Sjogren's Syndrome and some other goodies and they tell me they all fall under the Autoimmune umbrella.
 
Very curious... wink

quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 12/2/2008 2:20 AM (GMT -6)   
I also have asthma, eczema, arthritis (possibly UC related but also osteo), joint/body pain (myofacial syndrome), sensitivities/allergies but not high enough to be on the clinical recognition, benign paroxismal positional vertigo, primary sclerosing cholangitis and/or primary biliary cirrhosis, possibly sjogren's (my sister has it and I have eye and mouth symptoms)but haven't been tested yet.

From poor stock I always say...

Welcome to the forum!
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 12/2/2008 2:24 AM (GMT -6)   

I am a big believer that my immune system was out of whack when my UC was flaring and causing me problems for years.  I also think inflammation is a big part of that as well.  I do not have arthritis, but GERD and pretty intense allergies were always a problem as well.  That is why I am glad I found the Haldi line of health drinks, they are anti inflammatory as well as immune system modulating. 

I am not familiar with Sjorgrens, was that what you were first diagnosed with?

----------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi beverage to remain in remission

 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/2/2008 8:13 AM (GMT -6)   
I too have other issues but most of them are still in the preliminary stages such as arthritis. I know I do have osteoarthritis but I may have another form of arthritis but I haven't persued it just yet. I also have psoarasis but luckily it hasn't given me much trouble lately and it is limited to my hairline. I also have year round allergies but to what I don't know since nothing has shown up on allergy tests. I also have dry eye.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
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jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 12/2/2008 9:37 AM (GMT -6)   
Arthritis, muscle and connective tissue pain, non-IGE mediated alergies, dry eyes and mouth, eczema. I also had Graves disease of the thyroid which was successfully treated.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 12/2/2008 10:36 AM (GMT -6)   
20 years old in college my mid back gets arthritis. After many years of basketball and sports and my back being perfectly normal arthri*** at such a young age was strange. Then when I was 25 I got UC. After normal bowel movements for 25 years that was also a shocker.
I would have to say I think there is some sort of connection with my body's 2 major problems, arthritis and UC. Also when one is acting up really bad so is the other.
Also when I was drugged up for the very first time with prednisone my UC symptoms went away and so did my arthritis in my back. I was so happy that my back was pain free b/c it had been hurting non stop for 5 years.

thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 12/2/2008 10:53 AM (GMT -6)   
I have uveitis in my left eye.  I had several flare ups about 8 years ago and at that time was tested for Lupus and several other connective tissue/autoimmune diseases.  I came up ANA positive with no specific diagnosable disease (except for uveitis) at that time...my uveitis settled down and I have not had any problems for five or six years but my doctors said that I would likely develop another problem in the future..they were really watching for arthritis...I was diagnosed with UC in 2006...

Dx 2006 right after the birth of my daughter
Lialda varies 2-4 pills a day
Canasa on and off as needed
Probiotics
Just tappered off pred


festeris101
Regular Member


Date Joined Dec 2008
Total Posts : 115
   Posted 12/2/2008 11:23 AM (GMT -6)   
Thanks for your responses smilewinkgrin I don't feel so alone!
 
Yes I'm now being checked for Lupus, PSC and some other things since my liver tests are getting high...
 
Did some of you guys start like this? Here's how it began for me...
 
I was recently divorced at 40 and began to change my life. I changed jobs, began working out, and lost about 100 lbs. in less than 6 months.
 
At first I thought I pulled my back at work. Pain radiated from my lower back to my hips as well as all my major joints. I had swelling in my ankles that was so bad my Mother feared congestive heart failure.
 
Colitis kicked in around the same time but I didn't see any relation at all since I never heard of it I assumed it was a bad clam.
Here's the fun part. I was forced to go to a local clinic for help because I had no insurance. The Doctor examined me and get this, he said I had an enlarged prostate and a back sprain...of course I had neither. So he assigns me physical therapy which as you could imagine was excrutiatingly painful!
 
So finally after almost 6 months of torture I went to the Mass. General in Boston and was diagnosed with UC and Spondylothoprathy issues as well. That was 4 years ago or so.
 
Since then I lost my job and am now on permanant disability and still haven't gone into remission yet and my GI guy is concerned about Cancer in the future. My body aches most of the time and UC kicks in a couple of times a month and lasts 3 to 4 days at a time. Always with blood and mucous etc.
 
As good as the Mass. General is I feel as if sometimes I am more up on things concerning my Illnesses than they are. Anyway I've kept my spirits up as best I can but must admit I'm beginning to feel hopeless. I just find it hard to accept this chronic thing...
 
Thanks again...
550 mg. - Imuran daily
     5 mg. - Pred daily
   20 mg. - Prilosec daily
   35 mg. - Fosamx weekly


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/2/2008 12:20 PM (GMT -6)   
Such long names for all these ailments! I don't even want to know what they are, you know the power of suggestion.
My arthritis symptoms related to the UC have been temporary, I get better with basic arthritis medication.
My back pains me this year because of a slightly bulging disc, and I irritated it by walking 18 holes of golf a month or so ago. So I have scheduled another epidural shot since it seems to be slow in healing this time and my sciatic nerve is getting too much of a workout. BTW, my family are all healthy, healthy stock so I push myself, maybe too much sometimes.

I believe a positive attitude (denial?) and exercise helps keep away a lot of the effects that UC should be having on someone who has had it as long as I have.

Festeris, I know it is frustrating that the treatments don't seem to work very well, and it snowballs into other problems. You should pat yourself on the back for the weight loss, that is so hard to do and I expect it has made you feel lots better. I hope you can find surround yourself with some positive people and something rewarding to do with your time.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Big Dog
Regular Member


Date Joined Aug 2008
Total Posts : 62
   Posted 12/2/2008 12:25 PM (GMT -6)   
Have molluscums under eye (pockets of fluid), arthritis pain in ankles and one knee that requires use of a wheelchair when in a flare, bruise easily.
Mother of 8 yo UC child
Lialda 3 pills daily
Imuran 50mg 3x daily
Fish Oil, Probiotics, Immune System Boosters, Multi-Vit with Calcium


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 12/2/2008 1:12 PM (GMT -6)   
I have an immune disorder (IGA deficiency), severe allergies (cause anaphalactic shock), arthritis in almost every joint, hair loss, slight allergy to sun, rashes, and two blood clotting disorders (including lupus anticoagulant), but have not been diagnosed with lupus.

I am currently having issues with my eyes. For me, i know it is all autoimmune
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-current, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 12/2/2008 8:32 PM (GMT -6)   
Joint stiffness/pain is one of the most common extra-systemic manifestations of UC. When I was 1st diagnosed in 1980, I had such discomfort in my sacrum that it felt like my whole torso was encased in cement. At other times I've had problems in neck, shoulder, or hip-- which usually improves as the UC flare comes under control. Have you ever taken mesalamine meds? I'm wondering if your gastro put you on a high dose of Imuran because other meds haven't helped you. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

festeris101
Regular Member


Date Joined Dec 2008
Total Posts : 115
   Posted 12/2/2008 9:03 PM (GMT -6)   
Old Hat said...
Joint stiffness/pain is one of the most common extra-systemic manifestations of UC. When I was 1st diagnosed in 1980, I had such discomfort in my sacrum that it felt like my whole torso was encased in cement. At other times I've had problems in neck, shoulder, or hip-- which usually improves as the UC flare comes under control. Have you ever taken mesalamine meds? I'm wondering if your gastro put you on a high dose of Imuran because other meds haven't helped you. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
That is correct. They put me on Asacol and only 150 mg. of Imuran when I was first diagnosed but things got worse. Do you know how there is always that 1 person in a million that is allergic to any given medication. Well I was that one and I got very ill so they stopped it right away. Your description of the torso in cement is very accurate.
 
30 years eh? It's gonna be a long hard ride then... shakehead
550 mg. - Imuran daily
     5 mg. - Pred daily
   20 mg. - Prilosec daily
   35 mg. - Fosamx weekly


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 12/2/2008 9:32 PM (GMT -6)   
Festeris, there are a number of members posting here who've mentioned their allergy to Asacol or other 5-ASA meds. You might want to start another thread directed to them-- to share info on possible alternative meds. RE 30 yrs-- I've had my share of ups/downs but my doctors urged me to stay positive & that did help. They do know more about helping UC patients now than they did in 1980 so we should hope for continuing progress. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

bobolink
New Member


Date Joined Dec 2008
Total Posts : 1
   Posted 12/3/2008 12:06 AM (GMT -6)   
festeris,
 
Random note here. Have you considered the possibility of Celiac disease?
 
A good friend of mine who suffered for many years with a host of conditions including ulcerative colitis,  rheumatoid arthritis and Sjogrens ultimately found the origin of all her conditions in a diagnosis of Celiac disease.  CD is a genetic intolerance to gluten (a protein found in wheat, rye,  oats and barley).  The only treatment for CD is a strict adherence to a gluten-free diet.
 
People with untreated Celiac disease are prone to developing any auto-immune condition you could name,  as well as lot of other unpleasant Celiac-related problems. By the time my friend's CD was diagnosed she had already had a complete colectomy,  which ended her rheumatoid arthritis symptoms,  and lost her teeth to Sjogren's.  She still suffered from terrible fatigue,  a rash related to Celiac disease which was mis-diagnosed as atopic dermatitis,  joint and muscle pain,  headaches,  intermittent (severe) lower back pain and brain fog.  These symptoms resolved after several months of following a STRICT gluten-free diet.
 
Celiac disease is grossly underdiagnosed in the USA. People of British or northern European ancestry have an elevated risk,  though it's found in people of every heritage.   The British Isles (and particularly,  Ireland) have some of the highest rates in the world; it's relatively frequent in Germany and the Scandinavian countries, as well.
 
It's worth investigating the possible connection.

Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 12/3/2008 7:39 AM (GMT -6)   
I have joint pains throughout my body, as well as, lower back and lower stomach pains, arthritis and swelling in my hands, eczema in my ears and side of my nose, and tummy feels upset alot. Oh the joys of UC!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 

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