I can really relate. If I stretch my arms over my head, and press down on one palm with the other, I can 'pop' something in my shoulders. When I wake up on the weekend my whole skeleton is screwed and I often have a terrible headache which I feel is related. I've noticed (as with the popping) the pain seems to go away for me with movement. From everything I've read this sounds like Ankylosing Spondylitis, but I was tested for the HLA gene at a Rheum and they said I didn't have it, but that it didn't really matter, I could have 'something' similar.
These darned back issues started right around the time my UC did. I used to be in tremendous shape going to the gym 4 days a week for an hour or two.
I think a good chiro may help, particularly when things are really out of whack. I'm not sure how comfortable I feel going to them all the time - but maybe that would be good? I wish we could get a straight answer out of somebody. Believe me, I've been trying to get some clarity on my own upper back issues (between shoulder blades) and terrible AM neck stiffness and haven't gotten anywhere.
My own totally non scientific hypothesis is some kind of leaky gut action, immune complexes or nasties getting into the blood stream or lymph system and spreading to places like the connective tissue in my back. (why just the upper back? if you can tell me i am greatly interested). I also think these circulating nasties cause a whole host of 'autoimmune' problems - even mental health issues (imagine bad guys crossing the blood brain barrier) but that's a whole 'nother story.
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses.