I feel yucky! (also have a question)

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iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 12/3/2008 10:22 AM (GMT -6)   
A few days ago I wrote a post about some stress I've been experiencing. Well due to all of that and poor food choices, my UC is HORRIBLE today. I am actually at work right now and have to smile and be nice to the kiddies when all I want to do is be in bed. :( I must've been in the bathroom 8-10 times already this am. My tushy is raw! :( I need to get back on the healthy bandwagon of eating.
 
My nutrionist wants me to take a muscle synthsis powder and some capsule stuff to help speed my weight loss. Its stuff that bodybuilders use. He claims that many of his UC patients use this stuff. I am currently taking his fish oil, which helps tremendously. However, the powder and capsules cost 400.00 per month including the fish oil. He said its for a few months. I make a good salary but that is still a lot of money! What do you guys think?
 
Heather
 
p.s. Since I am at work, I am afraid to have lunch not knowing the effects. :(
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 12/3/2008 10:58 AM (GMT -6)   
Do you work out a lot? I don't think any of this stuff works well without proper training/exercise. Though it might help your UC; most of this stuff constipates people. Sorry, I have no real helpful advice.
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Multivitamin, fish oil, fiber supplement, Nature's Way Primadophilus Optima, Digestive Advantage Crohn's & Colitis


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/3/2008 11:04 AM (GMT -6)   
The best method for weight loss is by diet and exercise. Decrease calories; increase exercise.

Speedy weight loss (more than 1-2lbs per week) is not safe nor will the weight loss remain off. It's best to use a common sense approach to weight loss, especially if you have a chronic illness.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 12/3/2008 11:23 AM (GMT -6)   
I second what Suebear said.  Slow weight loss is key for future weight maintenence.  Plus, if you're only going to use the powder until the weight is off, then what's going to happen when you stop taking it?  Answer:  You'll gain weight back.  This is the biggest problem with taking any kind of medicine/supplement to help weight loss.  Its not something you'll want to take forever, so its better to adopt healthy habits now that you can stick with when the weight is gone.  I know that's the hardest/slowest way to lose weight, but its the easiest way to ensure that the weight stays off.  Good luck!!

Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol.
Status:  Near total remission
 
 
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 12/3/2008 12:16 PM (GMT -6)   
Diet and exercise are the best ways to lose weight, and they usually are much cheaper than taking a pill/powder/med to increase weight loss. $400/month seems really steep to me. As stated, what happens when you stop taking the supplement? At least with exercise, it become habit, and it also helps you to feel better in general.

Are you trying to lose weight gained from taking prednisone? I noticed that when I stopped (or lowered my dose in this case) my appetite went down, and I was gradually losing some of the weight gained. I'm planning on joining a local gym because I know how imprtant exercise is to my physical/mental well being. Maybe talk with the nutritionist about setting up an exercise program.

I hope you make it through the work day all right. Let us know what you decided and how you are doing.
Brandon
 
36 y.o. male
Diagnosed w/ UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone (2.5mg/day, back up to 7.5mg), flaxseed oil, L-glutamine, magnesium, and vit B-12.
 
Tried the spinach/sunflower diet.  Saw some relief in symptoms after 1 month, but symptoms returned with the taper off prednisone.
Next up - experimental and trial drugs.


iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 12/3/2008 12:30 PM (GMT -6)   
Hi Guys,

Thanks for your responses. I totally agree with all of you regarding the powders and supplements. I much rather start excerising and drinking tons of water in addition to eating properly to lose weight sensibly. I lost a total of 27.5 pounds since September. I did this mostly by watching what I eat. I find that I eat the wrong foods when stress is high in my life. I cannot return the powders/supplements that I have already but I will have a talk with my nutritionist regarding the powders, etc. I've found that I feel my best when I drink tons of water and eat healthy. I feel okay right now. Only two more hours before I can go home! Yay! :-D

Heather
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 12/3/2008 12:31 PM (GMT -6)   
one more thing-I did lose my prednisone weight but I still have another 60 pounds to lose before I am where I want to be.

Heather
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 12/3/2008 1:33 PM (GMT -6)   
Since you're already got the powders, maybe they'll give you a good jumpstart in your weight loss that will encourage you to keep going. Just make sure that you're also changing your eating habits and exercising, so you'll be creating the good habits at the same time.
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol.
Status:  Near total remission
 
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/3/2008 1:38 PM (GMT -6)   
Portion control along with proper food choices and exercise all go hand in hand, it is the best and safest/healthiest way to lose weight for anyone expecially an IBDer.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/3/2008 4:12 PM (GMT -6)   
I'm disappointed to hear a nutritionist would talk you into buying something like that. They are just looking for ways to supplement their income. There is no magic powder or pills you can take to lose weight. Just discipline and patience. I know it isn't easy, I carry more pounds than I should, but I'm strong so generally content. I'm losing a few pounds before xmas with Atkins, it's the only diet that works for me because it's the only one my husband will do, too! Five down, 7 to go...
Sorry you are feeling stressed, I hope you can find some peace.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 12/3/2008 6:44 PM (GMT -6)   
Heather...are you using the Rowasa at this time?

I would also suggest you add a fibre supplement powder such as Metamucil...that will help with bulking stool, helping cholesterol and actually helping in weight loss (take it after you eat if you're not taking meds at that meal.

Tons of water will add to the diarrhea.

If you can do the rectal meds and the fibre supplement, probiotics and eating more balanced, it could be that with UC controlled, you'll feel better ultimately.

There are no magic potions for losing weight....the changes come gradually.

intake of artificial sweeteners can add to weight gain as well as not eating enough food.

Have you had your thyroid checked as well as your blood sugar?

Hang tough...it will take time, but I think that getting your UC controlled will go a long way in how you feel about changing diet, exercise..etc.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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