Hi...I don't think you're as bad as you may think....you should firstly ask your doctor to add rectal 5ASA such as Rowasa (if you're in the US) or Salofalk(if you're in Canada or elsewhere).
I was up to 20 times a day and the doc never even considered pred. I don't have pancolitis, but from your symptoms...you are improving.
Know what you wish for....that's based on my observance of members here who are on pred.
Oh, my theory...and this is only mine....that pred will set one up for more difficulties in controlling UC for future flares.
If you CAN take 5-ASA meds....please give them your ultimate effort....they've served me extremely well for coming up 20 years.
Yes, there are times I did ask my doc to try prednisone...his response was "be patient"...I was and I'm so relieved he wasn't in a hurry.
You could also consider a fibre supplement such as Metamucil Smooth...it can help to bulk up the stool and help delay some of the transit time when one has diarrhea by absorbing up the excess water in the colon..
You could also ask the doc for an antispasmodic...I use dicyclomine. If you start at the 10 mg and don't use it more than the 3 times a day, that will help with some of the discomfort.
Hang tough.....pllllllllllllleeeeeeeeeeeease reconsider the pred and try the rectal meds.
Welcome to the forum,
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!