Prednisolone, my dr wants me to start - has anyone had any good reports on it? Does it work?

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Debly
New Member


Date Joined Dec 2008
Total Posts : 8
   Posted 12/4/2008 11:25 AM (GMT -6)   
Hi All,
 
This is my 1st post here. I have been diagnosed with pan ulcerative colitis (the whole colon) and i am suffering badly. My BM's are varying between 5 -12 day. I havent had a solid stool in at least 2 yrs now. So my dr prescribed me 3 x Asacol which i have taken now for 5 weeks. Although my BM's have decreased to about 3 - 8 per day, its still diarrhea, and i still have all the gurgling, urgent movements, gas etc...
 
Anyway, my dr now wants to put me on Prednisolone 40Mg tapered over 8 weeks.
 
However, i wont pick up my prescription and i refuse to take them after reading all the horror stories about them. I know all medications carry side effects, but this seems very extreme, in so much as EVERYONE who takes it is guaranteed side effects.
 
I am yet to read one post from someone who has had an ok time on it, nor have i read one positive thing about it on the web. It also seems that it doesnt even help people with UC and as soon as they come off it their symptoms start again.
 
Has anyone got any advice please? I'm pretty desperate and dont know what to do...
 
Has anyone had a good response to Prednisolone?
 
Thanking you in advance
 
Delby

beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 12/4/2008 11:54 AM (GMT -6)   

Prednisolone (which is the same thing as prednisone) does wonders for getting a flare under control for most people.  For myself, I only take it as a last resort because of the side-effects, but not everyone has the same reactions to pred.  If you've never taken it before, give it a try, but educate yourself about what it is doing first.  Do some research online, and be sure to read all the literature that comes with the prescrip.

If your colitis is mainly in the lower part of your intestine, you might try a rectal med with hydrocortisone, or even a pred enema.  You get the benefit of the pred without the nasty side-effects.  They generally only help colitis lower down, so if you have colitis going up the left side, or extends more than 10 to 15 cms, rectal meds might not reach far enough to help.

I have taken pred before and successfully tapered off.  I was then off it for a year, and my symptoms didn't return until I stopped taking Asacol and a full on flare started.  Pred is a wonder drug for me...it gives me a stomache of steel, where I can eat whatever I want with no problems, and my symptoms go away within a few days.  The side-effects I don't like are the insomnia, faster hair growth, back-ne, increased appetite, and mood swings.  That is a pretty daunting list I admit, but those effects are more manageable than constant D, bleeding, and getting cramps from gas.

I think most people will say they have benefitted from pred, but they didn't tolerate the side-effects well.  You have to weigh the advantages of getting your UC under control against the possible bad stuff from pred.  I hope this helps you.  If it were me, I'd give rectal meds a try, maybe add in a probiotic, before taking the pred, but don't discount it all together.  If your flare is interfering with your life a great deal, pred might be the thing that helps you regain control.



Brandon
 
36 y.o. male
Diagnosed w/ UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone (2.5mg/day, back up to 7.5mg), flaxseed oil, L-glutamine, magnesium, and vit B-12.
 
Tried the spinach/sunflower diet.  Saw some relief in symptoms after 1 month, but symptoms returned with the taper off prednisone.
Next up - experimental and trial drugs.

Post Edited (beartooth) : 12/4/2008 10:02:28 AM (GMT-7)


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 12/4/2008 11:56 AM (GMT -6)   
I cant speak for people who have severe symptoms and need ANY kid of relief. In that case anything helps to improve your quality of life including surgery.

Since I believe that UC is related to a pathogenic agent in the large intestine I would exhaust all the options with high dose and strain varied pro-biotics and eliminating carbs and sugars.

Pred is a immuno-suppresant, that means that it takes care of the inflamation symptoms while ultimately making you even less able to control pathogens. I wouldnt touch immuno-suppresants if you paid me a million dollars. The 5-ASAs if they work will lower the inflamation by blocking prostagladin which is not so bad as suppressing the whole immune system.

Weigh in your options and consider what is the optimal solution for improving your life quality.
Waiting to see if I'm cured - no symptoms since probiotics started

Probiotics 16 strains (vsl#3 + Natural Factors ultimate multi probiotic + Trophic Acidophilus Plus) - 475 billion per day. Pre-biotics 1x a day. No sugar.
L-glutamine, elm powder, vit b & folic acid, 5 g vitamin C, vit D, vit E, Calcium+Magnesium


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 12/4/2008 11:56 AM (GMT -6)   
Prednisone worked wonders for my son.  He took it for about 4 months, tapering slowly off, while beginning 6mp.  His GI also gave him Actonel to counteract any bone loss.  Yes, he gained weight, ate all of the time, got a light case of back pimples, but in the end it was totally worth it.  He needed to put weight back on anyway. It took 6 months for the 6mp to really kick in, and now (knock wood) he is in complete remission, enjoying his senior year, and smiling all of the time. So am I . 


UC Mom
Son diagnosed 10, 2006 at age 15
6MP 100 mg. per day
Vitamin Supplements
Culturelle


wantstogetbetter
New Member


Date Joined Nov 2008
Total Posts : 10
   Posted 12/4/2008 12:13 PM (GMT -6)   
I'm on prednisone now (started it this week). The drug works wonders for me. The serious side effects you've read about are usually for those who have been taking the drug long-long term, and the temporary side effects are well well worth the benefits. I don't feel run-down and exhausted anymore! I feel energetic and vital now. Of course I'm not all better yet by any means, but in 48 hours I already feel as if I have my life back.

I say pick up your prescription and start using the drug.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/4/2008 12:43 PM (GMT -6)   
I had positive results while on varying dosages for 2.5 years. However, in hindsight I wished I would have made different choices after the first year on it. It can be a wonder drug. It can induce remission. But it can come with a host of life long side effects. No one can predict how it will affect them long term. There are things you can do to help alleviate permanent side effects while on the drug but it's still no guarantee. Long term use is anything over 4 months. You are wise to be cautious. You would also be wise to look at future treatment options up to and including surgery. Best to be informed for a decision that hopefully you won't have to make.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 12/4/2008 1:50 PM (GMT -6)   
If you start at a moderate dose and are able to taper pretty quickly, it can actually be quite helpful. Most, if not all, of the side effects get worse with higher doses/longer exposure and are reversible once you're off the drug. In my experience, even the bone loss is reversible.

In the meantime, I'd advise you to educate yourself on improving gut ecology, reducing inflammation and restoring healthy digestion through natural supplements and dietary changes. These are the things that can positive address the issues, rather than just suppress symptoms.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 12/4/2008 2:17 PM (GMT -6)   
In my first UC attack, varying doses of pred over a couple years eventually got me into an almost ten year, completely symptom and med free remission, so it can have its uses. Without it I would have lost my colon ages ago... maybe that would have been a good thing in hindsight, because nowadays I flounder. But those were ten great years. (I was basically allergic to all the UC maintenance drugs hence the no meds at the time.) The fiorst time one uses pred is typically when it is the most effective, too, so I wouldn't rule it out. But if you are not bleeding, I suppose you can try some other things first. If there is lots of bleeding, I'd go for the gold and try and get remission.


Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 15 mg pred, 100 mg Imuran
TCM, Probiotics (PD, Cust.Probiot., Culturelle, etc), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 12/4/2008 2:43 PM (GMT -6)   
Hi...I don't think you're as bad as you may think....you should firstly ask your doctor to add rectal 5ASA such as Rowasa (if you're in the US) or Salofalk(if you're in Canada or elsewhere).

I was up to 20 times a day and the doc never even considered pred. I don't have pancolitis, but from your symptoms...you are improving.

Know what you wish for....that's based on my observance of members here who are on pred.

Oh, my theory...and this is only mine....that pred will set one up for more difficulties in controlling UC for future flares.

If you CAN take 5-ASA meds....please give them your ultimate effort....they've served me extremely well for coming up 20 years.

Yes, there are times I did ask my doc to try prednisone...his response was "be patient"...I was and I'm so relieved he wasn't in a hurry.

You could also consider a fibre supplement such as Metamucil Smooth...it can help to bulk up the stool and help delay some of the transit time when one has diarrhea by absorbing up the excess water in the colon..

You could also ask the doc for an antispasmodic...I use dicyclomine. If you start at the 10 mg and don't use it more than the 3 times a day, that will help with some of the discomfort.

Hang tough.....pllllllllllllleeeeeeeeeeeease reconsider the pred and try the rectal meds.

Welcome to the forum,
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/4/2008 4:25 PM (GMT -6)   
It works. Try it. You'll be able to tell if the side effects are not worth it. I find they are.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. 
Doing much better, but still experience anxiety that interferes with activities. 
 


7star7
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 12/4/2008 4:31 PM (GMT -6)   
From what I've read about prednisone, the side effects from taking it long term are terrible. I took the stuff for about 6 weeks (started at 40mg/day & taperd to 10mg/day) & my symptoms started to go away immediately. The only "side effect" I experienced was weight gain. I'm not really sure that was due to the prednisone becasue the UC had just caused me to lose 30 pounds, so I was actually quite happy to see my weight going back up.

I've been taking VSL 3 for maintenance & have been free & clear since August (when I quit the prednisone entirely).

KatieBwithUC
Regular Member


Date Joined Sep 2008
Total Posts : 125
   Posted 12/4/2008 4:55 PM (GMT -6)   
I took prednisone for a month and that, coupled with Remicade, put me in remission. Not everyone experiences the side effects. I didn't experience any mood swings nor did I gain any weight. I am wishing that I had been prescribed prednisone sooner because if I had maybe I wouldn't have ended up in the hospital for nearly a month. (This also due to a less-than-great doctor... I have a new one now who is wonderful). Take that into consideration... for me, my moderate flare slid completely out of control fast and I ended up in the emergency room 3 times and was completely out of commission for months. I am just now getting back to normal. Moral of my story, try to control your flare early, even if it is with prednisone, because it may only get worse with time and then you may have wished you had treated it earlier.

Have you asked about Remicade? Maybe you should meet with your doctor and ask about other options.
Katie

Age 25
Diagnosed with UC in March 2008
Lialda 2x daily
50 mg Imuran
Oscal
Stopped Remicade Nov. 2008 due to severe allergic reactions


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/5/2008 6:13 PM (GMT -6)   
     If you are suffering, by all means try the prednisone.  I was on it way too long but I believe my doctor didn't start me at a high enough dosage (he hates to put me on it..calls it the best worse drug) to jump start remission.  After relapsing twice within a five month period and only starting at 30 mgm of pred., my GI doctor FINALLY had me take 40 mgm of prednisone for a week with a 10 mgm taper every week thereafter until I got down to 10 mgm and then I tapered to 5 mgm for my final week. 
     I've been on prednisone with every flare.  I do have osteoporosis and I am sure that is from the prednisone usage.  However, I take calcium and do a lot of walking.  I suffered a compressed fracture of the lumbar spine about four years ago after a fall and I am sure that didn't help my bones any.
     The only side effect I suffer while taking prednisone is the moon face, anxiety and insomnia.  But heck, I can deal with that rather than the urgency, bleeding and diarrhea that comes with UC.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 12/5/2008 7:02 PM (GMT -6)   
And if you want to learn more about pred before making a decision, Coping with Prednisone is a great book:

http://www.amazon.com/Coping-Prednisone-Revised-Updated-Cortisone-Related/dp/0312375603/ref=sr_1_1?ie=UTF8&s=books&qid=1228521718&sr=1-1


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 12/6/2008 2:45 AM (GMT -6)   
don't take it....look into and exhaust the 5ASA meds or the topical steroids before pred.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 12/6/2008 9:35 AM (GMT -6)   

I don't think it's as simple as just saying "don't take it".... I know personally, pred was the only drug to get me into a remission while badly flaring. And the first course I took, I was on 60mgs/day, & was able to taper successfully with little side effects. There's nothing wrong with taking steroids... they are the gold standard for inflammation control for MANY problems. It's when you find yourself having to do repeated courses, or unable to get off them, when the problems start. To be honest, having had zero personal experience with prednisone, quincy, I don't see as how you're qualified to tell someone whether or not to take it. I know you've had great success with just 5asa's, but most people don't. They only induce remission in mild to moderatley active UC, bottom line- in moderate to severe UC, generally steroids are used in conjunction with 5asa's. Once remission is achieved, the steroids are tapered & the 5asa's are continued to be used as maintenance. For an individual with severe or refractive UC, to tell them NOT to take steroids is completely remiss. You look at any/every study done on drug therapies used in severe/refractive UC, steroids are first & foremost what is prescribed. So I agree with the mindset that once the decision has been made that steroids are needed, take a heavy dose ASAP & your chances of inducing remission with the least amount of side effects/complications are the greatest. I loved that first course of pred... I hated it by course 3, but that's another story! And by that time, we had chosen to move onto heavier meds to get off the steroids. And I have been steroid free since February. Would I go pred again? Yeah, I'd give it another go-round- at least once. Personally I found the side effects to be worth the beneficial effects of the med, when it works as it should.


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/6/2008 9:42 AM (GMT -6)   
     I have a question for Eva.  I see you are on Remicade but you say if needed you would do another course of prednisone.  I thought that was why people go on Remicade, to get off the prednisone.  Or am I wrong?  My GI doctor was pushing Remicade on me for two years, but now has backed off because I adamantly refuse to take the stuff.  He said he would rather take Remicade than be on the steroids...so that is what confuses me.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 12/6/2008 10:43 AM (GMT -6)   

yeah, I did go on Remicade to get off steroids, & because the inflammation was very bad & uncontrolled with the steroids- when I started Remicade I was on my 3rd course of pred. If I were to flare severely again, there are very little med choices left- possibly Humira? Then it's surgery. The Remicade has helped tremendously, but it has not put me into a clinical remission. So I plan to remain on it until it no longer works, or until I do flare badly again. If that did happen, if I started to go into a bad flare, I'd give another round of pred a chance, see if it put me back into remission, & most likely give Humira a try if I could get insurance coverage. So if I'm looking at a choice of trying pred one more time, or going straight to surgery, then I'll try the pred. This is all assuming the Remicade stops doing whatever it's doing. I would not do numerous courses of pred, but one more try for old times sake! smilewinkgrin


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/7/2008 9:07 PM (GMT -6)   
Ok EVa...lol.  You answered my question.  The reason I refuse the Remicade is that I was exposed to the TB virus years ago and tested positive on the skin test, but had a negative chest xray.  The doctor explained to me that no one can catch TB from me and that it is unlikely I will ever develope TB but it does lie dormant in my body.  Remicade can activate the virus...so NO WAY will I take Remicade.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 12/7/2008 9:42 PM (GMT -6)   
Interestingly, the original poster (OP) hasn't returned with comments...so, who knows what was decided.

I will always suggest the "don't do pred before the 5ASA oral AND rectal meds are exhausted..and even then, try the steroid topicals"...regardless.

Pred is an option.....one of many...not the first,
q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 12/8/2008 12:29 AM (GMT -6)   
When I was in a pretty bad flare I tried 5ASA, rectal meds, rectal steroids and continued to flare for 6 months straight with NO improvement at all. At that time I was put on pred and I was also nervous about it but it worked and I felt so much better...side effects were mild compared to the symptoms of the flare.
Dx 2006 right after the birth of my daughter
Lialda varies 2-4 pills a day
Canasa on and off as needed
Probiotics
Just tappered off pred


Debly
New Member


Date Joined Dec 2008
Total Posts : 8
   Posted 12/8/2008 6:32 AM (GMT -6)   
Hi All,
 
Sorry for not replying straight away, but i was just reading and digesting all your replies. Thank you so much for taking the time to reply to my thread and offer me advice!
 
I have my meeting with my Dr this PM. I have made the decision not to begin Pred as i am very concerned about the sides, both short and long term. I am on life long medication for another disease that is much more serious than UC, so i dont want to rock the boat so to speak.
 
From what i understand, when you have Pan Ulcerative Colitis, then rectal meds wont do the job as they dont reach far enough. At the moment i am on the 5 ASA's in the form of Asacol (800mg 3 x day). Although they have reduced my BM's i still have diarrhea/loose stools each time. However, im not passing blood or loosing any weight.
 
I know the reason my dr wants me start on Pred, is to hit hard and early and then maintain with Asacol, but i think that if the risks outweigh the benefits then there's no logic to it. I would rather cope with diarrhea 5 times a day for the rest of my life than deal with additional health problems such as bone death etc.....from the pred.
 
I will ask my Dr what the risk is, if i continue to have diarrhea every day. Will it increase my risk of colon cancer etc?
 
 

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/8/2008 8:45 AM (GMT -6)   
     I don't believe having diarrhea will increase the chance of colon cancer.  Having UC does increase your chances of developing colon cancer after the ten year mark of suffering with UC.  That is why most GI doctors suggest having yearly colonoscopies after ten years with UC.  I passed my ten year mark in October but have been having yearly colonoscopies for three years now.  Not my choice but I am flaring more frequently.
     It is your perogative whether to start prednisone or not.  However, even with my history of osteoporosis, I choose to take prednisone to "jump start" my remission.  Not only did I suffer with diarrhea, I also was bleeding, lost 15 lbs and had urgency consistantly.  Prednisone gave me my life back.  Good luck to you.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 12/8/2008 2:11 PM (GMT -6)   
Rectal meds help the rectum...no matter how high or the extent of one's UC.

Try not to think of oral 5ASA meds as reaching the rectum or the rectal meds as reaching the entire colon....treating both ends is the way to deal with UC regardless.
 
The one option regarding pred is to do aquick 10 day taper.....
 
If you're willing to share, what liver disease is it that you have?  Is it UC related?  I have PSC...UC-related and am using URSO to hopefully help decrease acceleration.
 
Keep us updated about your dr. appt.

quincy


*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 12/8/2008 12:14:22 PM (GMT-7)


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/8/2008 3:13 PM (GMT -6)   
Inflammation is what causes the cancer risk to rise. That's why it is so important to keep flares to a minimum throughout the course of the disease.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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