I thought maybe telling you all my story might help someone or at least know you are not alone.
To begin I first became sick during college my Junior year. I was 23, playing college football and in the best shape of my life. I began to notice signs of that summer. I started to see blood in my stool and figured it was something that would go away, but it still scared the crap out of me. No telling anyone about the problem it went away a week later. I went a whole year without anything, but that memory kept in my mind. The following summer was when it set it. I was working at a bar at the time and was unable to go to work. I am about the shyest person when it comes to going to the bathroom but as some or all of you may know with ulceratice colitis you really dont have a choice and it is generally pretty loud.
So I went home to get diagnosed. I made the trip to the proctologist to get the dreaded scope. I remeber laying there waiting the anestesia to kick in and telling the nurse that being home on break to get this done wasn't really what I had planned. I just remember them laughing at what I was saying, but I don't remember what I was saying. Anyways I woke up to the pictures of the inside of my intestine. Sure enough, they told me I had ulcerative colitis. Man that was scary because I knew nothing about it except that some people have to have there intestine removed.
I later met with the doctor and he informed me of what I had and that they have no explanation of how it happens or why. Then he told me that they hav medication to help calm it down. (asacol) 12pills a day at worst episode. At this point I just wanted to stop going to the bathroom and get back to life again. I took home the medicine and after a few days most of the bleeding had stopped and I was only going 3-4 times a day instead of 14-20. (I pretty much hated life during that) I went back into the doctor and spoke for a while with him about what is going on. I remember him telling me they knew nothing about the disease. I asked him maybe it was my diet, and like a light he said that is has nothing to do with what I was eating. Then he gave me a year perscription and told me I would haveto take the pills for the rest of my life every day. (I was drinking lots of pop and eating boxed food and pizza. The college life ya know. I was still in shape though:))
My parents are in the medical field as well and I spoke with them about this. I told them my intestine bleeds but they dont know why. Only the food I eat goes through it. It has to be what I eat. (Plus I think doctors see me as a paycheck--- growing up around them and all)
I began trying giving up parts of my diet. Soda was the first to go. It was tuff giving up the dew after all those years, but as soon as I did I had no symptoms. I also lost 15 lbs of fat as a side note. So I stopped taking my medicine and about a month later it came back in full force. Classes were in session during this time and well lets just say I learned some master bowel control during that time. I began taking my pills at 12 a day, up all night that sort of thing. I swore to not cold turkey the pills after that. To make a very long story short I began eating healthier. And since then I have been flare up free for 2 years now without medication. I am now 26. I weened myself off the medication over a year. If my body didn't need it before I could show it that it didn't need it again.
Things that helped on a bad day 8-20 times a day.
Taking more meds does not help, its a consistency thin
No watery foods ... lettuce, watermelon, beer,
Taking an Imodium 2 times a day (I made this up so I could slow things down enough for my body to break down the pills and get some nutrients from my food)
Things to do on a medium day 2-7 times
still no watery foods
You have to be able to know it is not supposed to be like this and your body knows better.
On a side note I did try to drink pop one time. Only a shot glass worth and within the day I had a bad flare up. So far I feel it has everything to do with what I ate and stress. Please feel free to email me any time and know you are not alone
Relax and do things that are stress free