Hope this helps someone out there

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New Member

Date Joined Dec 2008
Total Posts : 1
   Posted 12/5/2008 3:38 PM (GMT -6)   
I thought maybe telling you all my story might help someone or at least know you are not alone. 
To begin I first became sick during college my Junior year.  I was 23, playing college football and in the best shape of my life.  I began to notice signs of that summer.  I started to see blood in my stool and figured it was something that would go away, but it still scared the crap out of me.  No telling anyone about the problem it went away a week later.  I went a whole year without anything, but that memory kept in my mind.  The following summer was when it set it.  I was working at a bar at the time and was unable to go to work.  I am about the shyest person when it comes to going to the bathroom but as some or all of you may know with ulceratice colitis you really dont have a choice and it is generally pretty loud. 
   So I went home to get diagnosed.  I made the trip to the proctologist to get the dreaded scope.  I remeber laying there waiting the anestesia to kick in and telling the nurse that being home on break to get this done wasn't really what I had planned.  I just remember them laughing at what I was saying, but I don't remember what I was saying.  Anyways I woke up to the pictures of the inside of my intestine.  Sure enough, they told me I had ulcerative colitis.  Man that was scary because I knew nothing about it except that some people have to have there intestine removed. 
   I later met with the doctor and he informed me of what I had and that they have no explanation of how it happens or why.  Then he told me that they hav medication to help calm it down. (asacol) 12pills a day at worst episode.  At this point I just wanted to stop going to the bathroom and get back to life again.  I took home the medicine and after a few days most of the bleeding had stopped and I was only going 3-4 times a day instead of 14-20.  (I pretty much hated life during that)  I went back into the doctor and spoke for a while with him about what is going on.  I remember him telling me they knew nothing about the disease.  I asked him maybe it was my diet, and like a light he said that is has nothing to do with what I was eating.  Then he gave me a year perscription and told me I would haveto take the pills for the rest of my life every day. (I was drinking lots of pop and eating boxed food and pizza.  The college life ya know.  I was still in shape though:))            
My parents are in the medical field as well and I spoke with them about this.  I told them my intestine bleeds but they dont know why.  Only the food I eat goes through it.  It has to be what I eat.  (Plus I think  doctors see me as a paycheck--- growing up around them and all) 
I began trying giving up parts of my diet.  Soda was the first to go.  It was tuff giving up the dew after all those years, but as soon as I did I had no symptoms.  I also lost 15 lbs of fat as a side note.  So I stopped taking my medicine and about a month later it came back in full force.  Classes were in session during this time and well lets just say I learned some master bowel control during that time.  I began taking my pills at 12 a day, up all night that sort of thing.  I swore to not cold turkey the pills after that.  To make a very long story short I began eating healthier.  And since then I have been flare up free for 2 years now without medication.  I am now 26.  I weened myself off the medication over a year.  If my body didn't need it before I could show it that it didn't need it again. 
Things that helped on a bad day 8-20 times a day. 
Taking more meds does not help, its a consistency thin
No watery foods ...  lettuce, watermelon, beer,
Taking an Imodium 2 times a day (I made this up so I could slow things down enough for my body to break down the pills and get some nutrients from my food)
Things to do on a medium day 2-7 times
still no watery foods
Eat healthy
You have to be able to know it is not supposed to be like this and your body knows better.
On a side note I did try to drink pop one time.  Only a shot glass worth and within the day I had a bad flare up.  So far I feel it has everything to do with what I ate and stress.  Please feel free to email me any time and know you are not alone
Relax and do things that are stress free

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 12/5/2008 4:12 PM (GMT -6)   
It sounds like you are in remission. I wish the diet theory was what caused it but I have my doubts. Keep up your good health.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 12/5/2008 4:16 PM (GMT -6)   
     We all know at this forum that we are not alone.  However, with this disease everyone is different.  What works for one, may not work for another. 
     I developed this condition, UC, relatively late in life.  Guess I am one of the "lucky" ones.  I did have IBS for many years previously though.  Even as a kid, I can remember having the runs whenever I was nervous.  Doctors say it is not diet related, although, I have to agree with you, some foods can trigger the onset of a flare.  For me, it is crabcakes.  Yep, twice already my symptoms flared the day after eating a crabcake.  Needless to say, I am now sworn off the food.  Drinking a diet soda now and then never aggravated my condition.
     I wish you well, but hate to inform you that we are never cured, only if our colon is removed can we attest to that.  We can enjoy remissions though.  My last flare was a doozy, lasting for seven months.  I have been symptom free for a few months now and bless every day that I feel good and have no diarrhea, bleeding or urgency.  I continue with my meds.  Hope I never have to take prednisone again, but that is wishful thinking.
      God bless.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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