steroid suppository (other ?s, and updates)

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bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/5/2008 10:51 PM (GMT -6)   
How long should one take a steroid suppository? I've been taking Anucort (25 mg steroid) since September and have been alternating it every other night with Canasa since October. Bleeding stopped in October. Should I start to wean off the rectal meds? I feel like whatever little steroid that goes into my body each time I use Anucort is building up.
 
I'm getting tons of acne and having some hair loss. My guess is that they're from Anucort, since I didn't have a problem with either before starting Anucort. Or could the acne and hair loss be from Remicade or just a combo of meds?


Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 

Post Edited (ComedyDork) : 12/8/2008 7:34:25 PM (GMT-7)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/6/2008 1:33 AM (GMT -6)   
You could start doing the steroid suppository every second night and the Canasa for the night you miss until you're completely on the Canasa.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/6/2008 10:55 AM (GMT -6)   
The reason I was alternating between the Canasa and Anucort in the first place was because Canasa every night had previously caused diarrhea. How should I wean off of them both?
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/6/2008 1:42 PM (GMT -6)   
I would suggest to drop the Canasa completely and see how you do with the hc every second night. Do that for about 2 or 3 weeks.

If no change, then go every third night.

The other option would be to use the hc supps nightly for a week or so...if no change, then go every second night for 2 or 3..etc.

When did you change to the Colazal?

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/6/2008 9:51 PM (GMT -6)   
I started Colazal (the generic version) in July.
 
Thanks, quincy!
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/7/2008 3:18 AM (GMT -6)   
So, is that when you were also on Canasa and had diarrhea?

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/7/2008 10:34 AM (GMT -6)   
No, I was on Canasa back in March when my flare wasn't so bad (I was just on Asacol back then). Canasa had stopped the bleeding, but it caused loose stools which weren't there before. When I started Anucort in September, it didn't get rid of the bleeding, so I started alternating b/w the two.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/7/2008 10:44 AM (GMT -6)   
Is that also before you started Remicade?

I'm wondering if it was really the Canasa that caused the diarrhea or just the UC inflammation going higher.

But, all you can do is try to see if you have any improvement. Finding the right combo can be such a pain.

Keep us posted as to how you're doing.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


neednewbody
Regular Member


Date Joined Sep 2008
Total Posts : 59
   Posted 12/7/2008 1:43 PM (GMT -6)   
maybe you should discuss this with your doctor?

going off a steroid can lead to relapse of your disease. Maybe the doctor can give you an alternative to the steroid (you mentioned remicade -- so you may not need an alternative) but at least touch base with the MD, he may have a plan
Liver transplant 2004 -- liver is only healthy part of me
Prograf 1mg bid for transplant
 
Remicade every 6 weeks - not working
pentasa 1500mg tid
palafer once daily
lomotil every day as needed
immodium every day as needed
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/7/2008 6:06 PM (GMT -6)   
I see my GI this week; I was just wondering what others thought.
 
I started Remicade in June. Canasa caused looser stools within a couple days of starting it, so we assumed it was Canasa.
 
Remicade and the rectal meds have helped a lot, but I'm still having unpredictable BMs and some cramping. So it's still frustrating. Sometimes I wish I had gone ahead with surgery just to get this disease over with. shakehead
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/7/2008 8:45 PM (GMT -6)   
neednewbody said...
maybe you should discuss this with your doctor?

going off a steroid can lead to relapse of your disease. Maybe the doctor can give you an alternative to the steroid (you mentioned remicade -- so you may not need an alternative) but at least touch base with the MD, he may have a plan

steroid suppositories....not systemic.
 
It's always suggested by most (here) to taper....interestingly, many doctors neglect to state that fact or deem it important.
 
 
 
 
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/7/2008 8:51 PM (GMT -6)   
ComedyDork...surgery is always an option. Would you be considering it at this time or are you saying it out of frustration?

Remember that IBS can happen with UC, and when not actually flaring can have us feel it's still a flare. Symptoms can help with that sometimes.

You could ask the doc for dicyclomine, which is an antispasmodic...can help with the cramping and pain from spasming.

The other addition could be to try a fibre supplement such as Metamucil Smooth....

Do you consume artificial sweeteners? The can increase digestive activity.

Keep us posted as to the outcome of your appointment.

Hang tough,
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/8/2008 8:33 PM (GMT -6)   

I was actually scheduled for surgery back in September, but my c-scope came back with only a little proctitis, so I canceled. Some days I wish I had gone through; but other days, I'm glad I didn't (I'm not much of a risk-taker).

My GI wants me to get off of Colazal completely for 2 weeks! He thinks that whatever problems I still have could be side effects of it. It kinda freaks me out to cut off a maintainance med! He also said I can wean off the rectal meds if I want, which I am more than happy to do so. We also think that the remaining problems could be IBS. I think I need to get my stress/anxiety under control--this disease has really taken a toll on me.

Hmm, artifical sweeteners? I used to drink Powerade every day but haven't done that since April; I've just had a bottle every once in a while. Occasionally I'll have a slice of pound cake or other baked goods. I've kept and am currently keeping a food diary, and haven't found any correlations.


Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/9/2008 2:00 AM (GMT -6)   
Hi...oh pound cake..yum. with coffee!! double yum.

Did you see the GI yesterday?

If you are going to go off the Colazal...I would think tapering would get you a better result...but your option is to add them back slowly if you're slammed into a flare.
I wouldn't get off the rectal meds until you've completely been off the Colazal.

Let us know how it goes.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/9/2008 12:15 PM (GMT -6)   
Yep, I saw the GI yesterday. He wants me stop Colazal cold turkey. But I'll keep up with the rectal meds for now.

I'm feeling so horrible. I've already run to the bathroom 6 times today (along with slight urgency and pain) and I am exhausted. Actually, I'm exhausted all the time. This disease is so annoying.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/9/2008 1:26 PM (GMT -6)   
Hi..have you had stool samples done recently? Maybe there's something else going on?

Yes, I can understand your annoyance regarding your symptoms. I'm frustrated for you as well.

I do hope you can find some resolve.

I still suggest you buy some Metamucil Smooth (not the sugar-free)...it'll hopefully help with some of the bms to give you a bit of a break....unless your doc doesn't want you to add anything else.

When are you going back to see him?

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/9/2008 7:28 PM (GMT -6)   
Yep, I had stool samples done a few weeks ago. Everything is normal.

I don't know when I'll see my GI again. He wants me to call after a couple weeks to see how I'm doing without the Colazal. He also thinks that if the problem is not Colazal, then it's probably stress/anxiety/depression causing IBS symptoms. (I actually broke down crying at the appt.)

Today was horrible; I've been to the bathroom about 8 times and have been feeling a little naseous and bloated. Could skipping one day of Colazal cause this? Or could it be the fact that I've been feeling horrible emotionally the last 2 days?

I can deal with cramping and mucous, but the whole going to the bathroom 5+ times per day (esp. during the first half of the day) is driving me nuts. It's okay right now since I'm not in school, but I cannot imagine going back and doing that with classes and everything. Especially if I don't have a private room and since I'll have to get up 2 hours before my earliest class to make bathroom runs.

Thanks for all the advice and support, quincy. I really appreciate it! :)
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 12/9/2008 9:22 PM (GMT -6)   
Hey ComedyDork,

Just wanted to say hi and let you know I'm in a similar place regarding the hydrocortisone suppositories. I've been taking them in the morning and Canasa at night since mid-September, and I also have been getting a lot of acne (extra fun at my age!). Had a lot of hair loss, too, but that finally seems to be tapering off. I'm hoping to gradually wean myself from the Anucort over the next couple of months. It's a little complicated because I'm also trying to taper off the clonazepam (and then trazodone), and I don't want to do too many things at once. Plus, I'm never entirely sure I'm in remission, though my main symptom at this point is that some days I still have 4+ BMs.

Anyway, I second quincy's advice about the smooth Metamucil (not sugar-free); it has seemed to help me quite a bit.

Hang in there, and I hope things go well for you with(out) the Colazal --
emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008. Still flaring? Not sure.
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Had some success with acupuncture
Osteopenia and other assorted ailments


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/10/2008 3:44 AM (GMT -6)   
Hi CD....I wouldn't say that 8 times a day would be IBS. Especially with it all happening in a short period of time.

If the doc thinks that the 5ASA is a problem, then completely stay off the Canasa as well...

I still think that trying the fibre supplement (metamucil or other if you prefer) can at least help with some of the bms by bulking them up....is it diarrhea or formed stool?

If you're having these many symptoms at this time...it seems that the Colazal is either a culprit or not helping you at all...some people cannot take any 5ASA meds or salicylates or they do absolutely nothing.

If you are salicylate sensitive, possibly checking into foods that contain salycilates and avoiding them might help....but you don't know yet if that's a problem.

I would call the doctor and set up an appointment anyway for maybe the 22nd or before that (before Christmas) or to find out if he's going on holidays at that time...just to set up something so that you know if he's going to be available...and to be guaranteed to have an appointment. Bad time of the year to be stuck if you're not feeling well..or to be making this kind of change.

I sure hope you make a turn around to feel better soon.

Oh, I don't know if I suggested dicyclomine...it's an antispasmodic...could help somewhat.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/10/2008 12:23 PM (GMT -6)   

Hey Emory. So it is the Anucort causing acne and hair loss! I was telling that to my GI and he wouldn't believe me b/c it does not have as much steroid as pred! But I'm guessing the steroid has built up little by little in our bodies.

The last couple days have been pretty bad, but before I was running to the bathroom 2-8x per day. Sometimes the bathroom runs are just mucous and gas, but I can't differentiate b/w that and a real BM. Although today I've gone 6x already with some amount of stool every time. Sometimes the BMs are formed and other times are semi-formed; would Metamucil help with this?

Can 5ASAs stop working/cause adverse effects after working for a while? Asacol alone sent me into a great remission last year and I was planning to wean off of Remicade to just a 5ASA next year.

One more question: what kinds of things have artificial sweeteners? Would that include fruit juices (like V8) and baked goods?

I'm going to see how today goes and then call my GI tomorrow. My gut feeling (ha) is that skipping the Colazal doses has caused yesterday and today to be not so great, but I could be wrong.

Thanks again.


Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/10/2008 2:47 PM (GMT -6)   
Hi...hairloss can be caused by so many things. Just having UC, stress, autoimmune disease, hormone imbalances, vitamin deficiencies, adding meds..etc can exacerbate an already existing problem.

Are your periods up and down? Are you on birth control?

5ASA can stop working it seems from others' postings and symptoms. It could be that too high a dosage or not high enough might be a problem...don't know. Some formulations of 5ASA seem to do better for patients than others.


Artificial sweeteners come in a variety of products...one clincher would be the terms "lite","0 calories", "sugar reduced", "sugar-free", "calorie reduced"...etc.

For sure avoid aspartame, sucralose, and another one that looks like the word aspartame. There are also the sugar alcohols that have been discussed recently that end in "tol"...but I would accept sorbitol or xylitol in small amounts (like gum or cough syrup) over mannitol and others that I don't know off hand in food products. I'm a sugar consumer basically than artificial sweetener consumer. I never purchse low calorie or 0 calorie or any products without reading the labels..actually, I read the labels on everything. Everything.

V8 juice contains sugar and lots of salt if I remember correctly. There are other brands that have less ingredients that actually taste better. Learn to read the labels.

Any products for diabetics...stay away from.

Probably, it would be best to bake your own treats.

Remember, however, to consume good balance of food.

What fish oil are you taking and how much? Yeah, I'm sure I asked you that in the past.

Do call the doc soon for an appointment so that you're not stranded/left hanging during the holiday season.

The metamucil orange smooth (not the sugar-free) will help bulk up the stool. I take it after supper because I don't take any meds/vitamins at that time.

hope this helps...
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 12/10/2008 4:51 PM (GMT -6)   
Hi to you both --

Quincy, you're right that hair loss can be caused by so many things. I actually have a normal "shedding season" in late summer/early fall -- a dermatologist helped me identify that years ago. It seems like I've even read that 5ASAs cause hair loss for some people. So it's by no means definite that the hydrocortisone suppositories are to blame. (Though the acne does make me suspicious.)

CD, the Metamucil has definitely contributed to formed stools for me; I've only had a couple of semi-formed ones since I started it. If you give it a try, make sure not to take it within two hours of oral medications or it could interfere with their absorption.

Really good advice to get a just-in-case appointment with your GI! That on its own can give one a little peace of mind, especially with the holidays coming up. I might make an exploratory phone call myself...

Best,
emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008. Still flaring? Not sure.
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Had some success with acupuncture
Osteopenia and other assorted ailments


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/11/2008 6:10 PM (GMT -6)   
Well, I called my GI today so hopefully I'll get a call back tomorrow.
 
I had less nausea and fewer BM's today, which was a nice break! But then I don't know what caused the last two days to be horrible...
 
My periods are fairly normal, other than the fact that I've had a lot of nausea during the last two. No, I'm not taking birth control. I took it for a couple months beginning of this year and I'm pretty sure that's what caused my flare...NEVER ever taking that stuff again! I'm taking 1000mg fish oil, which I think is by Nature's Bounty.
 
I hope I'm able to pinpoint what's blocking me from remission soon--I have five weeks before spring semester begins. Thanks again, quincy and emory!
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/11/2008 6:34 PM (GMT -6)   
Awesome you felt better today!!! Hey, the process of elimination is what we need to do sometimes. And, if for you it's 5ASA that's not agreeable, you just cannot take it, no matter what.

5 weeks seems enough time to get you at least feeling better..considering today. Hope it continues.

Good you called the doc.

Keep us updated as to how the next few days go for you...

Have a feeling better day.
q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 12/11/2008 10:07 PM (GMT -6)   
Yes, have another feeling-better day, CD! Take good care, both of you --
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008. Still flaring? Not sure.
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Had some success with acupuncture
Osteopenia and other assorted ailments

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