Lialda Reactions? Any ideas.

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sumnorm
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/8/2008 12:06 AM (GMT -6)   
Hello all,
A week before Thanksgiving I was prescribed Lialda 4x 1.2g tablets a day.  The following day I took the second dose and started noticing sharpe pains and gas building up.  I did'nt think much of it relating to the medication but stoped it anyways after the second dose, and thought maybe I got the flue. 
 
The following three days I was in bed, fever, chills, confusion, no apitite, neasua, diherriah, adombinal pain, headache.  I know I was getting dehydrated as my lips became chap and water was no longer appealing to me.
 
I went from being partially in remission to full blown 20+ x a day blood/ bowl movements, and I had no blood in the past week before.
 
Took me a good two weeks to recover.  Now again, I just assumned i was laid out with the flue.  Then I took Lialda in half the dose just in case yesterday.   And again, I am down and out with the same thing.  Blood now when there was none, 20 momvents + a day.
 
I thought this medication is to help, not make worse.
AS and all the wonders with it.
Age 16 SI, knee.  Age 18 Iritis.   Age 20  Back pain.  Age 24 Diagnosis  UC.  Age 25 Diagnosis AS
-Active AC with UC and SI joints warn and fusing, no fusing in back.
Taking
Prednisone, Methotrexate
Took
Colazal - no effect.  Canasa - no effect.  Lialda - Reaction.  Sulfasalozine - Reaction
Prescribed but can't affored
Cotrifoam, Remicade
 
 
 


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 12/8/2008 12:10 AM (GMT -6)   
I have never had any problems with it and have taken it for over a year but I wonder if you are allergic to it???

Dx 2006 right after the birth of my daughter
Lialda varies 2-4 pills a day
Canasa on and off as needed
Probiotics
Just tappered off pred


sumnorm
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/8/2008 12:29 AM (GMT -6)   
allergic, It seems I am.  But what do  I do.  Wait it out a couple more weeks again.   Pain : /
AS and all the wonders with it.
Age 16 SI, knee.  Age 18 Iritis.   Age 20  Back pain.  Age 24 Diagnosis  UC.  Age 25 Diagnosis AS
-Active AC with UC and SI joints warn and fusing, no fusing in back.
Taking
Prednisone, Methotrexate
Took
Colazal - no effect.  Canasa - no effect.  Lialda - Reaction.  Sulfasalozine - Reaction
Prescribed but can't affored
Cotrifoam, Remicade
 
 
 


KatieBwithUC
Regular Member


Date Joined Sep 2008
Total Posts : 125
   Posted 12/8/2008 11:38 AM (GMT -6)   
I have also been on Lialda for almost a year and have had no problems with it. I agree, I think you are allergic to it.
Katie

Age 25
Diagnosed with UC in March 2008
Lialda 2x daily
50 mg Imuran
Oscal
Stopped Remicade Nov. 2008 due to severe allergic reactions


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 12/8/2008 12:50 PM (GMT -6)   
Sumnorm, I would call your doctor ASAP. You don't want to keep taking something that is causing these problems. In my experience Lialda did not get me out of a bad flare, pred did - for me the Lialda is just as a maintenance drug so since you are already on pred the doctor may just want you to stop the Lialda...not sure...but I would say call the doctor and ask.
Dx 2006 right after the birth of my daughter
Lialda varies 2-4 pills a day
Canasa on and off as needed
Probiotics
Just tappered off pred


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 12/8/2008 8:01 PM (GMT -6)   

LIalda is same os Asacol - it is a mesalamine (5ASA) and I also had the same reactions to it - just like I had the flu - tried Colozal also and same thing.  I called my NP who works with my doctor and she told me to quit taking it and I will never try anything in that class of medication again.  No sense in taking something that makes you feel worse than the disease.  I know some doctors (including mine at first) believe we should "ride out" some of these side effects - but I said NO THANKS!  Now my UC is confined to rectum so I am on Proctofoam only - it is slowly getting better along with probiotics and eating lowfat and mostly bland.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Close to remission -spoke too soon!
 
 
 
 
 
 
 

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