colonic inertia

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shakylady55
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 12/8/2008 1:41 PM (GMT -6)   
Hi,
Are there any of you out there with colonic inertia?  I was diagnosed 5 years ago and treated...(somewhat).......then as time has gone by it has gotten worse..
Went to the gastroenterologist on Friday and he said my condition is getting bad enough that my colon is trying to stop working!!!! This is a little worrisome to me. Of course I am being scheduled for another colonoscopy. 
But, my question is...........what kind of treatments are other patients on with this conditon.??? Please email and let me know what you are doing and if it is helping.
farfrompoopn

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/8/2008 2:11 PM (GMT -6)   
You can meet others with colonic inertia on HealingWell's Ostomy board. This board is pretty much all ulcerative colitis, or the ocassional Crohn's patient. But th Ostomy board has several CI people.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


shakylady55
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 12/8/2008 2:13 PM (GMT -6)   
ok thank you......am new to this site and will try to learn how to find my way around it!!

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 12/8/2008 2:15 PM (GMT -6)   
Well, I think most people on here are dealing with the flip side of colonic inertia whereas we have diarrhea instead of constipation. I at times get constipation because of the Remicade, but I did have someone close to me that was dx'd with your same issue. He was taking too many laxatives, and therefore his colon slowed down; the docs labeled it "lazy colon." It forgot what it was supposed to do because the laxatives did the job for the colon. Good that you are getting a colonoscopy to find out what the heck is going on. And welcome to the forum! You might also want to check out the IBS and Crohns forum too. They may be able to help with some of your questions. Take care, and let us know how your colonoscopy comes out.
Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 12/24/2008 6:54 PM (GMT -6)   
email me
(e-mail address removed)

emovedI had/have colonic inertia. I'll be happy to help you!
 
 
This member may be contacted by clicking on the envelope icon to the left of this post.
 
I removed your address from the post to prevent it from being collected by phishing software that scans forums such as this to collect e-mail addresses for spamming or worse.

Post Edited By Moderator (Judilyn) : 12/24/2008 7:53:01 PM (GMT-7)


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 12/25/2008 9:02 PM (GMT -6)   
thanks
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed

Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.

Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have.

If you want to know more, just ask me!

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