just wanted to share

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anglfrmhvn69
Regular Member


Date Joined Dec 2006
Total Posts : 337
   Posted 12/9/2008 7:29 AM (GMT -6)   
i went to the store yesterday and was in the pasta isle,i was talking to my mom about wheat pasta.well anyway's there was this women in the same isle and over heard me talking to my mom.she said that the 2nd leading cause of death for women is colon cancer and that she eats alot of wheat pasta. well i was telling her that i needed to eat more fiber and stuff cause i have ibd. she said to me that she has been through all of that and glad she got rid of it,from where she eat's alot of wheat. i didnt say anything to her but i thought to myself you never get rid of it lady,unless you have no colon. people amaze me when they think they know what they are talking about when really they dont know as much as they think they do. just thought i would share that store experience, people amaze me sometimes.

pamela

 i was diagnosed with uc on april.16,2003. had my sec. colonoscopy on aug.22,2007 came back normal.

still mildlyflaring.

i also take nexium 40mg once a day for acid reflux.

take one multivitamin a day

started taking one a day acidophilus probiotic

one a day omega 3 fatty fish oil capsule

                                                                      

 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/9/2008 10:10 AM (GMT -6)   
Yep, I've heard many things like that too over the course of my Uc history. In fact that is one tip I have on Myspace about what NOT to say to people with Uc. "Oh, I had Uc once but it went away!" Uh huh sure. I have learned just to ignore people like that.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/9/2008 11:33 AM (GMT -6)   
Yeah, it really is amazing how oblivious some people are to what's going on with their health. When I'm told I have something, I research the crap out of it!! I had a primary care doctor once question whether I had colitis (like, "Are you SURE? How do you know?") but then I proceeded to tell her about it and she admitted that I knew more about the disease than she did.
But I've heard people say "Oh I was sick, they told me what it was but I don't remember".. One guy at my work had a stent put in but he didn't even know what for! That to me just seemed crazy. I would never undergo a procedure like that without knowing ALL of the details.

It's more likely they had gastroenteritis or the type of colitis that is temporary (don't remember the name) or something and when they hear colitis or "stomach problems" or IBD they immediately think it's the same thing. Which is really annoying.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 12/9/2008 2:17 PM (GMT -6)   
depends on what the fads are. I guess if that were true, Italian food would cease to exist.

q


*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 12/10/2008 8:57 AM (GMT -6)   
     I have a friend who said she "had" UC too.  Her remedy for getting rid of it was to take six flaxseed pills per day.  She even bought me a bottle of it.  Didn't do a thing.  Of course, I didn't take six pills per day.  My GI doctor said it could give me diarrhea, so that was the end of me taking even one pill per day.
 
     People confuse IBD with IBS.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 12/10/2008 12:35 PM (GMT -6)   
Has anyone ever gone into a long term remission without having to take 'something' regularly?
Waiting to see if I'm cured - no symptoms since probiotics started

Probiotics 16 strains (vsl#3 + Natural Factors ultimate multi probiotic + Trophic Acidophilus Plus) - 475 billion per day. Pre-biotics 1x a day. No sugar.
L-glutamine, elm powder, vit b & folic acid, 5 g vitamin C, vit D, vit E, Calcium+Magnesium


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 12/10/2008 2:30 PM (GMT -6)   
no.  I went a couple of months without meds oh so long ago, but there was always some crisis in my life.  The benefit for me far outweighed the symptoms considering how well I do on 5ASA meds...again proven with my last c-scope.  I'm coming up to the 20 year mark after diagnosis in January.
 
 
q


*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 12/10/2008 2:39 PM (GMT -6)   

crazytrain411,

I once made it two years in remission without any pills or medication. I  had little bouts of diarhea inbetween, but it lasted days like a slight stomach flu. I have no idea how I pulled off that stunt. Then the UC came back mildly and I took 6 Asacol a day again and the occasional steroid enema. Sweet life. Now I am at Pred that doesn't work, just started 6-MP and doc is babbling Remicade in both of my ears. Ahhhh, sweet memories.

And regarding the wise words some people have to say to someone with UC ... been there, done that. An apple a day keeps the doctor away <--- heard that many times, my ass! Excuse my language! rolleyes


Pancolitis since 3/1997
Worst flare of my life since 8/2008, finally showing improvement!!
 
Meds
10 x Asacol a day
40 30 25 20 15 10 5 mg Prednisone
75mg 6-MP
Align
Flintstones Complete Vitamins
Cortenema
Rowasa


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/10/2008 5:28 PM (GMT -6)   
LOL I know, I wish I could even eat apples without running to the bathroom :P But it would be nice if it were that simple. Then again, my boss at work eats an apple a day (core and all which I find weird but whatever) and she's never sick).

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4202
   Posted 12/10/2008 10:23 PM (GMT -6)   
I thought apple seeds were poisonous...or is that a myth?

So all we need to do is eat wheat pasta every day and we'll all be cured? Wow, wish I'd known that sooner! (sarcasm...)
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 12/11/2008 12:34 AM (GMT -6)   
Scarlet504 said...
crazytrain411,

I once made it two years in remission without any pills or medication. I had little bouts of diarhea inbetween, but it lasted days like a slight stomach flu. I have no idea how I pulled off that stunt. Then the UC came back mildly and I took 6 Asacol a day again and the occasional steroid enema. Sweet life. Now I am at Pred that doesn't work, just started 6-MP and doc is babbling Remicade in both of my ears. Ahhhh, sweet memories.

And regarding the wise words some people have to say to someone with UC ... been there, done that. An apple a day keeps the doctor away <--- heard that many times, my ass! Excuse my language! [img]/community/emoticons/rolleyes.gif[/img]


2 years with nothing taken, thats amazing! I wish we could solve that mystery.
Off of 5-ASA (6 years) and no syptoms since probiotics started.

Probiotics 16 strains (vsl#3 + Natural Factors ultimate multi probiotic + Trophic Acidophilus Plus) - 1.1 trillion per day. Pre-biotics 1x a day. No sugar.
L-glutamine, elm powder, vit b & folic acid, 5 g vitamin C, vit D, vit E, Calcium+Magnesium


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 12/11/2008 10:00 AM (GMT -6)   
crazytrain411 said...
Has anyone ever gone into a long term remission without having to take 'something' regularly?


18 months. This last spring threw me into one though. So, I am pushing to go longer on the next remission train. I always have different things lined up to do to see what gets me and can keep me in remission. Still waiting on my babies poo to get up to speed so I can try this fecal transfusion thing. That plus the study I am hopefully starting next week should keep me occupied for awhile.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 3 day
Immuran
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 12/11/2008 2:15 PM (GMT -6)   
Dr-A said...
crazytrain411 said...
Has anyone ever gone into a long term remission without having to take 'something' regularly?


18 months. This last spring threw me into one though. So, I am pushing to go longer on the next remission train. I always have different things lined up to do to see what gets me and can keep me in remission. Still waiting on my babies poo to get up to speed so I can try this fecal transfusion thing. That plus the study I am hopefully starting next week should keep me occupied for awhile.


What study are you starting?
Off of 5-ASA (6 years) and no symptoms since probiotics started.

Probiotics 16 strains (vsl#3 + Natural Factors ultimate multi probiotic + Trophic Acidophilus Plus) - 1.1 trillion per day. Pre-biotics 1x a day. No sugar.
L-glutamine, elm powder, vit b & folic acid, 5 g vitamin C, vit D, vit E, Calcium+Magnesium


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 12/11/2008 2:25 PM (GMT -6)   
golimiumab, just got call so my sig is scheduled on monday.

Recent thread on it in here somewhere.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 3 day
Immuran
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA

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