Thanks Sara14- I will keep that one in mind too. Princesa- re. the glutamine- yes, have used it on and off. It doesn't seem to have any healing effect on me at all- only a short term constipating effect. plus, now I am a bit wary, because I have actually seen some very recent research papers in Pubmed that suggest it can paradoxically increase, not decrease, some aspects of inflammation. (I was surprised too.) Re. fungal or microbial infections- I am working on that. I have had numerous, expensive alternative tests come up negative for Candida and any obvious pathogens, however I am getting some more yet again to try and rule out everything before I end up colon-less. The thing is, I have tried lots of natural antibiotics- grapefruit seed extract and oil of oregano notably, on and off and all they seem to do is flare me up. Whether that is the famous "die off" or not, it is savage in my case in anything other than very light doses. But I have been researching and am working with an alternative MD. Mycobacterium are another possibility for all of us but one for which there is essentially no testing yet available anyhow.
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 15 mg pred, 100 mg Imuran
TCM, Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie