In remission...but is this it?? What is your remission like?

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Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 12/9/2008 7:12 PM (GMT -6)   
So, I'm in remission and I've been in remission since October. This is the first time in my life that I've ever been in full remission--no blood, mucous, stomach pain, stools are formed (unless I eat bad food--IBS), and I go one to four times a day. That's amazing from my minimum of eight times before.

Even though I'm in remission I'm still super achy and very tired. I'm pretty much spent after getting my daughter up and giving her breakfast. I still don't go out in the day time--only night when I know I'm stable. I think that's just habit though...

Anyway, what it like for you to be in remission? When you go into remission do you all of a sudden become wonder people?

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day Completely off as of 10/21/08. Took 2 years!
Imuran 150mg once a day


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 12/9/2008 8:07 PM (GMT -6)   
no I dont become a wonder person. I am still achy and I have been totally worn out and unrested sense 2004 when I was DX. like you no blood are mucous,and the pain is normally gone, but I really dont have well formed stool either. But I dont know how much of me being tired has to do with the uc are my heart condition, but like you I am always tired.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/9/2008 8:11 PM (GMT -6)   
Maybe you're suffering with extraintestinal manifestations that can go hand in hand with having an IBD (osteo, arthtitis, ect).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 12/9/2008 8:57 PM (GMT -6)   
I never considered feeling achy or very fatigued to be remission. Granted, i don't go so far as to define remission as 100%l normalcy- for starters, I had mild IBSish symptoms on and off a bit before I was ever dx's with IBD- but anything beyond some mild IBS, including any outright pain, I consider non-remission.
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 15 mg pred, 100 mg Imuran
TCM, Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 12/9/2008 9:37 PM (GMT -6)   
Remission for me is a fromed BM once a day usually sometime in the afternoon. No pain but it seems like i can actually feel my food digesting...or maybe I just pay more attention to it now. No blood or mucous. I still don't feel that I will ever be back to normal like I was before UC but once a day is as close as one can get. My only complaint when in remission is my energy level. It holds steady at about 60%. I manage to make myself workout 4-5 times a week and it helps a little.
31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks
Omega 3 supp, calcium supp, VSL 3
Prednisone 10mg (tapering 2mg every week)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/9/2008 11:20 PM (GMT -6)   
Good for you vega, I work out on a regular basis as well and for me I find it helps tons in the energy dept...and especially the emotional dept.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 12/10/2008 8:44 AM (GMT -6)   
     I don't work out but try to walk as often as I can.  Remission is heaven on earth after suffering with my last flare for seven months.  I have one formed bowel movement per day (I named it Mr Hanky after the character on South Park), no blood, no urgency.  I can eat anything although I do stay away from my beloved crab cakes (which twice contributed to a flare), spicy and fried foods.  I say a prayer of thanksgiving for every day that I feel well.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/10/2008 8:53 AM (GMT -6)   
I guess I am in a remission but I know that it's hard to classify it as such. But for me, it's fairly stable. Right now my remission consists of going to the bathroom 1-3 times a day (semi solid to solid), no blood or pain. I do still suffer from joint pain but not nearly as bad as when I am flaring. I believe that I have some form of arthritis that the docs haven't found yet. Have you been checked for any arthritis?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
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princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 12/10/2008 9:33 AM (GMT -6)   
Achy and tired could be chronic fatigue, which can be a sign of a gut ecological imbalance and often goes hand in hand with other illnesses. Now that you have overt UC symptoms under control, it's time to look at improving your gut ecology and restoring healthy digestion so you can get your energy and well being back.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 

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