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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 12/10/2008 10:33 PM (GMT -6)   
Well ladies and gentlemen, I will no longer have u/c after next week. I am going to have a colectomy on Friday, Dec. 19th. Ahhhhhh. I'm so scared! But in a weird way, I'm also excited. Excited to not take meds anymore, to not suffer embarrassing bathroom breaks, or have to tear myself away from my baby girl to poop all the time! I'm so glad to get off prednisone........FINALLY! I've been on it so long that I'm osteopenic, among other things. AND I'll never have to worry about colon cancer. Or get another colonoscopy, NEVER AGAIN. BUT I am scared too. I'm scared that I won't feel better (b/c it seems too good to be true). I'm really scared I won't make it through the surgery and all day I have this little negative voice that whispers to me things like "Enjoy this while you can, b/c it'll be the last time" or "Of course you won't suffer b/c you don't suffer when you're dead" or just now when I typed the surgery date, "Friday, Dec. 19th is the day they'll mark on your grave stone"-I know, I know, that's silly, but I can't help the way I think. It's so annoying. It's like obsessive. But I know it's dumb and this is the right decision.
I just want the surgery to be over so I can start healing and get home in time for Christmas.
Thanks all for your support over the years.
Chassity
Chassity
27 yrs. old. married-diagnosed with severe pancolitis u/c 2002 and have been in a "flare" since 2004-will have colectomy probably fall '08 (most likely j-pouch) Pred, Asacol, B shots, prenatal vitamin, and carafate


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/10/2008 10:49 PM (GMT -6)   
You're gonna be just fine after the surgery and finally UC free!!! What I would give to eat a giant pizza followed by a bowl of chocolate ice cream, and just think you'll be doing just that in a few weeks or so : ).
I'll say an extra prayer on the 19th (not that you're gonna need it).


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/11/2008 12:09 AM (GMT -6)   
Well here's wishing you the very best with everything and may you have a speedy and painless recovery and a very merry xmas and happy new yr with lots to celebrate!!!

Do keep us posted on how things go.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 12/11/2008 1:05 AM (GMT -6)   
The nerves and the wait time leading up to the surgery must be tough. I only know it from a mom's point of view. I can say I held up well until Bratcat went in for her first surgery and then got very emotional until we saw the surgeon afterwards. But it is great to see her happy and healthy. She feels wonderful, looks wonderful, and is enjoying her senior year of high school. Just keep thinking of all the great things you will be able to do with your family when you are healthy!

--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/11/2008 7:40 AM (GMT -6)   
Many good wishes are coming your way and have a speedy recovery. Just imagine that by next Christmas you will be healthy again and able to enjoy everything the holiday has to offer :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 12/11/2008 9:29 AM (GMT -6)   
Good vibes and wishes are coming your way for a new life UC free! I know the thought of surgery can be scary and overwhelming, but my boyfriend had a dreaded 2nd shoulder surgery and he was so crazy thinking about it beforehand....now he's almost 4 weeks into recovery and doing incredible...and we still can't believe it's over and done! So, just think before you know it you'll be up and around and feeling well again. Keep us posted on how the surgery goes and know that you are in my thoughts!
Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/11/2008 10:06 AM (GMT -6)   

Dear Chassity,

     The best of luck to you dear.  Please try to get rid of those negative thoughts.  You're young and have your whole life ahead of you.  I will keep you in my prayers.


62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 12/11/2008 10:36 AM (GMT -6)   
I didn't have much time to think about surgery before my first step because it was more of an emergency after a month in the hospital and nothing working and I was near death. But I did have to think about step 2 & 3 for a jpouch and had the very same thoughts that you have. The surgery was difficult for me only because of how sick I was before hand (I am 5'6" and was 90lbs) and the surgical pain wasn't as bad because I knew that I would heal. Going in to a surgery healthier is giving you a great advantage and I pray that you recover quickly and get to enjoy your Christmas with your family.

I remember one Christmas I was in the hospital for 3 weeks because of a UC flare when my kids were young and I'm so grateful that I will never have to worry about that again.

If you have questions about the jpouch you can go to jpouch.org, there are alot of us there who have been thru the surgeries and are willing to answer any questions you may have. You can also private message me there if you want.

Here's looking foward to a healthier new year for you!
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 12/11/2008 12:34 PM (GMT -6)   
I know this is going to sound funny, but I am almost a little jealous. Oh to be free of the drugs, anxiety and pain. I wish you the best of luck, and please keep us posted on your progress. My thoughts and prayers are with you.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 12/11/2008 12:43 PM (GMT -6)   
wishing you the best of luck and my prayers will be with you.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 12/11/2008 12:49 PM (GMT -6)   
Ah thanks so much all!
I went to the ostomy site and feel even better about my decision.
(although still a little scared)
I'll be taking our laptop with me, so I'll update you all as soon as I can.
Have a merry Christmas and Happy Holidays.
Chassity
Chassity
27 yrs. old. married-diagnosed with severe pancolitis u/c 2002 and have been in a "flare" since 2004-will have colectomy probably fall '08 (most likely j-pouch) Pred, Asacol, B shots, prenatal vitamin, and carafate


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 12/11/2008 5:14 PM (GMT -6)   
The ostomies board helped me so much during my surgeries, I would have been lost without them! Go there for any questions or tips that you might need, there is a wealth of information from a very caring group!
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/11/2008 5:24 PM (GMT -6)   
What a great Christmas present to yourself!!!!! : )))
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 12/11/2008 6:22 PM (GMT -6)   
Hey congrats on getting off the fence, Chassity- you will do fine and have a new life free of this idiotic disease soon! And even if you have some challenges recovering at first, it will be the sort we can handle- healing as opposed to the body attacking itself absurdly day in and day out. The day before and of the surgery, here;s hoping you are relaxed and giddy with light at the end of the tunnel. .
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 15 mg pred, 100 mg Imuran
TCM, Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


katkat
Regular Member


Date Joined Feb 2005
Total Posts : 239
   Posted 12/11/2008 8:30 PM (GMT -6)   
Wow, what a commitment you are making for yourself! All the best, a quick recovery and will think of you on that day! When you're up to it, let us know how you're doing, feeling, even when you need some encouragement. We'll all rooting for you!
44 yrs old, only 3rd experience with flare-up start oct29.08, Ont.Canada.
current: asacol 400 mg - 2 4x/day
                          
last flare in 2004 with c-diff, went into shock, hospitalized 2 wks, rec'd transfusion
prednisone, asacol, metronidazole
 
in 2000 rec'd antibiotics(sinuses),c-diff,ulcerative colitis 
 


taljones
New Member


Date Joined Dec 2008
Total Posts : 9
   Posted 12/11/2008 9:31 PM (GMT -6)   
This is my first post on this forum! I wish you all the best, and to be honest, I too have been considering surgery quite a bit the last few days. I have only had the disease for 1 year, but it's progressed so quickly, without any real relief, that I am getting sick of relying on treatments that ultimately work for a time, only to fail and have the symptoms return with a vengeance. It's disheartening.

I used to have a life before this disease - last year this time I was first daignosed - lost a lot of weight - throughout the year I had a brief remission with the 5-ASA's, but a flare kicked in that would not subside. I wound up in the hospital. The Prednisone saved my life - for this I am grateful. My GI had me taking 40 mg of Pred and started me on Imuran (50 mg now taking 175mg). When he tried tapering the pred, we got down to 15 mg and I flared. We bumped it up to 20, worked a few days, then flared, now I'm at 40mg and still flaring.

My GI has already begun the tests for Remicade. But I'm not exactly holding my breath. And if the 40mg of Pred are not enough, I'll have to jump to 60mg. Perhaps that will work for a time, but my body seems to get used to the steroid quite quickly, and symptoms come back.

I'm sorry to vent - like I said, my first post. :) But as I sit here, wondering how many times I'm going to go to the washroom tomorrow and how the BM's will be, suddenly the option of surgery isn't so scary any more. So for that I commend you, and can relate to the excitement you feel. I too feel excited at the thought of getting my life back. I grow weary of being ill - weight loss, depression, anxiety. I can't work. I am sick of being sick, and so I applaud your decision, and am probably not too far behind you in the process!

From the bottom of my heart, I wish you luck and health! You deserve it! As do all of us!
Daignosed with UC in Dec 2007.
Had remission with Salofalk for 5 months, then began to flare
and switched to Lialda, which did not work.
Recently hospitalized.
Now on 40 mg of Prednisone and 175 mg of Imuran


Shaz032
Veteran Member


Date Joined Feb 2003
Total Posts : 1251
   Posted 12/12/2008 6:55 AM (GMT -6)   
Regarding the dieing while on the surgery table thing Chassity. I've been on the net chatting with, literally, thousands of ostomates for over 10 years and in all that time have never heard of such a thing happening - and believe me, if it HAD happened, it would be BIG news in the ostomy net world. So please try and use that as reassurance :)

Good luck with your surgery. I know from experience that you'll feel sooooooooo much better afterwards. Sometimes, when we're sick for so long, we forget what it's like to feel well again :)
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 12/13/2008 6:15 PM (GMT -6)   

Hi Chassity,

Well, making the decision is definately the hardest part!  You may want to visit our blog ucstory.wordpress.com you'll find lots of info and pictures from people having the uc to jpouch surgery. http://ucstory.wordpress.com/2008/08/08/mark-9-month-jpouch-update/ here is my 9 month jpouch update that should help you feel like there will be light at the end of the long long tunnell.  Also, lots of good success stories from men and women. You also may find that jpouch.org forum board will be able to help you with learning more details about your ileostomy and jpouch. 

Good luck and heal well!


Mark & Megan
7 yrs UC to 1 year J-Pouch
Surgery Photo & Journal below: http://ucstory.wordpress.com/
We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD!


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 12/13/2008 9:00 PM (GMT -6)   
hey, congratulations!!!! I give you so much credit for doing this, really... You are doing the right thing at the right time, know that. Please let us all know how everything goes- you will come thru this so much stronger & healthier & MED-FREE!!!!!!! yeah
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 

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