No relief on Pred

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downs
Regular Member


Date Joined Dec 2008
Total Posts : 76
   Posted 12/12/2008 6:32 AM (GMT -6)   
hi i am Dawn,,,,,,,,,,,,40 mg of prednisone for 4 days no releif,,,,,,,,,,,,,,,i have had UC for 13 years i get 2 bouts a year .

Post Edited By Moderator (Loneylane) : 12/12/2008 7:40:51 AM (GMT-7)


taljones
New Member


Date Joined Dec 2008
Total Posts : 9
   Posted 12/12/2008 1:36 PM (GMT -6)   
Hey Dawn! Hang in there. I too just increased my Pred from 30mg to 40mg. It's been 3 days. The 1st day things quieted down, but yesterday I had 1 very loose BM and then quite a bit of D at night. So far today, no BM's and I feel slightly better.
So just give it a bit more time, and try to eat foods that are low residue - mashed potatoes, macaroni, chicken, etc.

I hope that you feel better soon!

ps. The more I think about this condition and the posts on this forum, the more I see myself going for the surgery. I'm not sure how long I can live my life depending on meds that work for a while, but then start to become ineffective. My body gets used to the pred very quickly. And I may have to jump up to 60 mg to contain this flare, but I'm trying to stay at 40 mg and give it a bit more time.

My GI has me on Imuran (175mg) - have been on it since Oct, no real visible improvement, though I know it may take more time.
He's started the preparations for Remicade. I'm not exactly holding my breath, but you never know!

I wish you luck and a speedy recovery Dawn! Be strong, and keep positive!
Male, 31 years old. Daignosed with UC in Dec 2007.
Had remission with Salofalk for 5 months, then began to flare
and switched to Lialda, which did not work.
Recently hospitalized.
Now on 40 mg of Prednisone and 175 mg of Imuran


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 12/12/2008 4:09 PM (GMT -6)   
Have you taken pred before? I am taking it now- the third time around and have found this time that it takes a higher dose to quiet things down. Now 30 mg is not doing the trick----
Jackie, 43

Pancolitis, DX October 06

Lexapro, colazal 3x3, Sythroid, Protonix, Flagyl

10 infusions of Remicade- doesn't work
tried 6MP - taken off because of health concerns

tapering prednisone at 25 mg
Added 6MP- November 25th


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 12/13/2008 1:02 AM (GMT -6)   
dawn, are you taking anything other than the prednisone? I would give it more than 4 days, and hopefully it will take hold, good luck

------------------------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily to remain in remission

fargman
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 12/13/2008 2:30 PM (GMT -6)   
I haven't had any luck with Prednisone so far. I just went up to 60mg from 40mg and am having the worst flare up ever. No help at all.

After a colonoscopy last Wed, my doctor realized the Prednisone wasn't doing a thing so I started back up with Remicade yesterday (it worked for me in the past), and my fingers are crossed.
Diagnosed '93. 
 
Asacol, Prednisone
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 12/13/2008 5:35 PM (GMT -6)   
     I was under the impression that once you stopped Remicade you couldn't go back on it.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


downs
Regular Member


Date Joined Dec 2008
Total Posts : 76
   Posted 12/14/2008 5:56 AM (GMT -6)   
hi,,,,,yes i have taken prednisone and it usually worked immed.....oh well....whats remicade? never heard of it,,,,,,,,the cramping finally went away ,,thank god ,,it was brutal.........

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 12/15/2008 9:37 PM (GMT -6)   
It sounds like you are refractory on prednisone(ie pred is not working anymore), and you're doc will likely put you on an immunomodulator like 6-mp or Imuran.
Pharmacy Student, Class of 2009.  Diagnosed 8/99.  Suffered for almost 10 years.  I am currently on the Specific Carbohydrate Diet and am nearing remission.  I feel fantastic!    I have lost so many years to this disease.  I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.  My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice. HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!  (In remission since 2/15/08)
Meds 3200 mg Asacol, 2.5 mg Prednisone.  Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications!  For me, diet works...


downs
Regular Member


Date Joined Dec 2008
Total Posts : 76
   Posted 12/16/2008 2:59 AM (GMT -6)   
what do you eat?

kc70
Regular Member


Date Joined Nov 2008
Total Posts : 112
   Posted 12/16/2008 10:15 AM (GMT -6)   
It sounds like I've had a similar experience with prednisone. It's my first time going on it, after no success with asacol (in fact, it made me really, really sick). I've been flaring since September, officially diagnosed in October. I was on 40mg for 2 weeks, just started to taper, now on 35.

I'm sticking to a pretty low-residue diet, with no wheat or dairy, no fresh fruits or veggies (and boy do I miss them!). Still everything is very loose, and as the day wears on my energy just goes, the pressure in my rectum grows, and so does my misery.

My gastro suggested another immunosuppressant med at our last visit but I didn't write it down and now I forget what it was. I was reluctant to try it right away because a) it's flu season and my immune system is already compromised by prednisone, b) she said it would take weeks or months for the drug to kick in, so I figured I'd wait till my course of pred is over and then maybe try it after that.

An unrelated comment: is it common with this disease (I'm very new to it) to have to choose between your doctor's advice and listening to your own body? Because some things were feeling good to me (i.e. a small amount of chopped salad) and my doctor sternly told me to cut that out. I'm listening to her. For now.

downs
Regular Member


Date Joined Dec 2008
Total Posts : 76
   Posted 12/16/2008 10:19 AM (GMT -6)   
oh god ,,seriously....follow your body...this is not a food related illness,,,,i just had eggplant parm ,,last night i had prok tenderloin,,salad broccolli,.......wow 2 weeks,,are you out of your skin?? I cant sleep on it and i am a zombie i couldnt even work

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 12/16/2008 4:22 PM (GMT -6)   
Started 40mg pred today to try to knock out this flare. I am hoping for relief. Took the pred about 6 hours ago....I feel like I am plugged into a wall socket.....or i guess i could relate it to drinking about 12 expresso's with a red bull chaser.... Hopefully a few ativan tonight will allow me to relax a bit.... my fingers are crossed for this pred to work....it doesnt seem like i am able to take remicade or immuran, so this is my only option unfortunately.... very close to you in having uc for 14 years... i guess over time uc can just laugh at pred and keep on inflaming...
34 yr old male. UC for 14 years. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!) "I poop in the woods because I can"


downs
Regular Member


Date Joined Dec 2008
Total Posts : 76
   Posted 12/16/2008 6:33 PM (GMT -6)   
how do you like the probiotics>???

fargman
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 12/16/2008 7:03 PM (GMT -6)   
Christine1946 said...
     I was under the impression that once you stopped Remicade you couldn't go back on it.

I hadn't heard that.  I am actually seeing some improvement on it already.  My second infusion is next week. 
Diagnosed '93. 
 
Asacol, Prednisone, Remicade
 


Jen30
New Member


Date Joined Dec 2008
Total Posts : 11
   Posted 12/16/2008 8:21 PM (GMT -6)   
SCD diet works- I modify it to work for me- not so many restrictions.

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 12/16/2008 9:19 PM (GMT -6)   
Currently taking culturelle....somewhat torn on its effectiveness....i felt more results from garden of life products...although a bit pricey....i havent had a negative effect from any so far. possibly just pooping away $50 bucks a bottle....but i will continue to take for now....will probably switch back to GOL if it is still available...last i checked they had some nasty litigation going for false advertising...
34 yr old male. UC for 14 years. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!) "I poop in the woods because I can"


downs
Regular Member


Date Joined Dec 2008
Total Posts : 76
   Posted 12/17/2008 4:10 AM (GMT -6)   
hi mbx5,,i am 14 years also.....hate it!!!.....you poor thing,,brain surgery? did the meds (anesthesia) affect the colon? e-mail me Dakeley@comcast.net
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