Dilemma with UC

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tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 12/13/2008 8:11 AM (GMT -6)   
Hi, all! I've been quite busy lately and haven't posted much-sorry! Here's my current dilemma:

I've only had UC since July '06, and I've flared a few times since, but not enough yet to establish a clear pattern. I'm currently in a flare which was worse a month ago (I had a very early miscarriage in October that I am convinced triggered it), but still a nuisance. I have formed BM's anywhere from 2-5 times a day, with some urgency, but this flare isn't keeping me out of the house or work. However, I have episodes of mucous release (Ick!!) that occur very suddenly and I have nearly no bowel control at these times. They don't happen often (2-3 times per week) but if I am in a car or any place where the toilet is not immediately available, I am rushing to the bathroom w/ a change of clothes. It's awful!

I'm not losing weight like with my first horrible flare. I am actually bemoaning 5 extra pounds because I find that walking seems to cause the mucous to release, and so I haven't been exercising daily. (too messy!)

My doc wants me to go back on prednisone, a 40 mg taper lasting about 8 weeks. I use rowasa, but not nightly, though I have increased my rowasa use to almost nightly for the past 3 weeks. Things seem to be improving.

I detest pred and don't want to use it unless absolutely necessary...but am I being pig-headed here? Things seem to be calming down, and I am able to function pretty well most of the time (haven't missed work, have travelled out of town the last 2 weekends, etc).

Do I stay on rowasa and hope that things clear up on their own, or do I need to go on the pred again? Any thoughts would be appreciated.

Thanks, E


tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 12/13/2008 8:12 AM (GMT -6)   
whoops, forgot to put a title on this post...not sure how to do that...
Erica, 31
Pancolitis, diagnosed July 2006, at age 29
Imuran, Asacol, Rowasa*(new!)
Experimenting with diet, live culture yogurt and probiotics


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 12/13/2008 12:36 PM (GMT -6)   
Hi...condolences on your miscarriage. I truly believe hormonal extremes as in being pregnant, miscarriages and even periods will cause a flare. I would also imagine the stress on the body during those hormonal peaks as well as the possible distress of one's emotional state could exacerbate symptoms.

Personally, regarding the preg....you're not being pig-headed in any way. I wouldn't go on it until the 5ASA meds weren't working...and it seems for you that if you were to use the Rowasa nightly, you would see even more improvement (since you have already). I was once on Salofalk retention enemas (sam eas Rowasa) for 4 months nightly before I was able to taper to every second night..etc.

Are you still on Imuran and Asacol? How many Asacol?

Your symptoms seem a mild flare probably limited to the rectum...and you starting on Rowasa is awesome . Do do them nightly until you have normal bms..etc...then go another week until you taper to every second night.

You don't have to go on pred, and considering the hormonal swings from the miscarriage, I'd actually suggest you avoid it until things level out...then make the decision if you haven't any improvement.

My take on it.

Hope you feel better soon,
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/13/2008 6:41 PM (GMT -6)   
     I agree with Heather.  Your symptoms don't seem too extreme.  I know they are a nuisance but you didn't mention bleeding, diarrhea and urgency.  I had them all before my doctor put me on the prednisone.  Stay with the Rowasa...I took one in the morning and one at night.  Cort enemas seem to help me better and I also was on Canasa when my symtoms were severe and I couldn't hold in the enemas.  Watch your diet, low residue for awhile may help and no caffeine.  See if your symptoms don't improve over a few weeks.  If they worsen, then, by all means I would go with the prednisone.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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