Pushingforward said... Example Christine mentioned pineapple. Ate some the other night. Was up till 2am filling the toilet with blood. Not sure if it's related, but threw it out for now until the meds help me get this under control.
Pineapple contains a very strong digestive enzyme called bromelain....which can help break down foods quicker. It's high in fibre, fructose and vitamin C. All reasons that many take it....in pure form, crushed, cooked, juiced or supplement. But, bromelain is also used for pain/inflammation maintenance, in supplement form. I have a friend who swears by eating a slice of fresh pineapple if she gets a sore throat.... I love it on ice cream....and yes, I'm lactose intolerant and will have gas and discomfort and maybe a few more bms from eating it.
It wouldn't have caused you to bleed...you're flaring. It is what it is. Enjoy it with food or as dessert, but not on its own without eating before or afterward.
I am just trying to be a bit pro-active that's all. I don't want to sit on the couch and just wait and see. Even if it just means stepping up my diet to be a bit more well-balanced and healthy.
Everyone on here is proactive in many different ways. The very reason you're here is because you are. You have to remember that eating is subjective...we all eat differently, and not all foods agree with everyone. Food, itself, has action in the digestive tract....so, there are definitely ways you can have your cake and eat it too, so to say. One thing I will suggest....eat your calories in good foods rather than drinking them. Eat smaller meals and more often during the day. Protein is important for healing and body strength and stamina. It also fuels the body for longer periods and keeps blood sugar at a steadier level.
It all takes time to figure it out....just don't assume it's one thing unless it's consistent. Adjustments are sometimes/somewhat necessary when we flare compared to when we aren't...Oh, and certain meds will also change our appetite/symptoms.
Heather, you mentioned rectal meds. I will mention them to my dr. Not sure if the reason he didn't go for them was the fact the my colitis is throughout the entire colon. I will ask next follow up.
UC starts at the rectum and continues upward, either affecting the whole colon (eventually) or remaining limited. It heals the opposite....meaning from up to downwards. The rectum is the last area and sometimes the most stubborn to be healed. No matter...we all should be on rectal meds.
They are used for treatment and tapered to maintenance in conjunction with oral meds. They come in 5ASA form and in steroid form. Both are considered topical, but some does eventually absorb into the bloodstream.
No doctor should ever discount the effectiveness of them...and no oral topicals can treat the rectum. When the lowest part of the rectum is inflamed, symptoms are totally different....being constipation, gas, stomach discomfort, formed stool. One usually doesn't recognise early symptoms until the urgency, frequency, rectal PAIN/THROBBING , and if the tissue is really fragile..bleeding. I haven't had diarrhea with a flare in many, many years. I treat early and since my last c-scope, all is well. I was feeling I was starting to flare before the scope, and it was confirmed with only 2 inched inflammation, mild. Regardless, my point is that flares and inflammation can be controlled with the goal of one's flares to be as minimal as possible. It may take a while for them to heal, but the consistency of meds do pay off in the long-term. nearly 20 years for me and all is good... but I don't have pancolitis, and I'll never know if I would have if my doc's med choices for me would have been different.
I'm sure I've gone on long enough....but do the research and make a list of questions for the doc when you see him. I repeat it all takes time, and for me it took a good 2 years to get it all figured out. (and I didn't have the internet back then...lol...but I do have a good doc!)
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!