diets for colitis?

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LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 12/13/2008 10:42 AM (GMT -6)   
Hey guys....
 
Does anyone have any kind of diet they follow for Colitis that they think helps? or supplements that help?
I tried researching some and found them all to be quite different. The reason I ask is not that I want to stop taking meds....right now anyways.
My mindset is that (hopefully) I am on these meds now to get this under control...and work on putting it into and keeping it in remmission.
I have read many different stories of long battles with this disease. I know I don't want that to be me. I know that I can't control it neccessarily, but I'm not going to a gun fight with a knife. I'm not going to sit here and eat things that may be doing me harm, while passing up things that may help and just try to let the meds do their thing.
 
If anyone has any ideas they can share, what works for them...or helps at all...that would be awesome. I don't exactly want to go on a strict diet. I have heard eliminating carbs etc. What I want to do is incorporate all of these ideas. I mean pasta and pizza are my favourite meals. I could eat them all week. If it means eating pizza OR pasta once a week, and eating fish, chicken, eggs, and rice for the remainder....IF it would help....I'm all for it.
 
Hit me with your ideas :-)  
 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08
 
-----------------------------------
 
Pentasa 500mg 2-4x daily
Prednisone 50mg day - Calicium + Vit D
Multivitamin, Vitamin C


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 12/13/2008 11:22 AM (GMT -6)   

Hi Chuck,

     While flaring my nutritionist and GI doctor recommend following a low residue/low fiber diet.

      The following are important tips to keep in mind:

          *avoid any food made with seeds, nuts or dried fruit.

           *If you have an intolerance to milk or milk products talk with your doctor and he/she will make recommendations.

           *Meats can be marinated for added flavor

            *seasoning with herbs and spices as tolerated

             *you may have trouble tolerating caffeine, spicy food, fried food and alcohol and need to limit these items.

              Personally, I suffered a severe flare of ulcerative proctitis this past year and the following was pretty much my diet for several months:  Breakfast: rice cereal with Silk (a soy drink in place of milk) with half a ripe banana.  Lunch consisted of yogurt (make sure it doesn't contain fruit with seeds) or tuna fish with a tad of mayo.  Dinner was usually baked fish or chicken.  Baked salmon is my favorite and very gut friendly.  I could eat baked sweet potatoes (not the skin) with a bit of Smart Balance instead of butter.  Vegetable was usually cooked carrots or very well cooked string beans.

            I was able to eat canned pineapple but some sufferers of UC cannot tolerate it.  You will find everyone with UC is different in their food tolerances.  While I was hospitalized, they put a PIC line in and I was fed through that.  For a short time all I could eat was jello and chicken soup.  I did lose about 15 lbs but have gained five back.  I don't want to gain it all back...lol.

     I hope I was some help to you.  Good luck.

    

 

         

        


62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 12/13/2008 11:22 AM (GMT -6)   
Eat as normally as possible. Eat as balanced as possible. Some foods may exacerbate your symptoms,but won't make your flare worse or your flare better. Try not to make it all about food...your meds will help to do the healing.

You should consider rectal meds...truly.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 12/13/2008 11:37 AM (GMT -6)   
     Heather, while it isn't all about food, I can understand why Chuck asked about diets.  Common sense will tell you to stay away from foods like pizza and spicy foods while flaring.  These can certainly make your symptoms worse.  I believe most people who contribute to this forum have some diet issues.  Now that I am in remission I find I can eat most anything, which is heaven.  I still have a gut feeling (no pun intended) that this disease is allergy related.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 12/13/2008 11:54 AM (GMT -6)   

Good suggestions Christine. 

Well, the allergy connection would be with food, not UC...making it two issues. I don't believe it's allergy related...but one can definitely have food allergies with UC. I would think, however, one would have more systemic symptoms or quicker gastro issues...considering UC starts at the rectum and the basic "food" stuff would be processed and absorbed in the mouth/ stomach and small intestine respectfully.

Eating as normally as possible...I should have added with common sense. Do the homework. We are told to eat lots of fruits and veggies to avoid constipation..if one has diarrhea, don't eat as many, chew well and cook veggies to the point of easy chewing.
 
Coffee can trigger a bm...maybe have it in the morning and if it causes bms in the afternoon while working, not a good idea.  Save it for when you know what to expect.

I'll point out one issue.....regarding the new spinach and seeds diet that many are following. While this may create a rise from those who are eating it....my observation is that they are finding new and creative ways to eat it. Foods that people may have cut out before...they've added because of the spinach..etc. I see them as eating...eating a lot more food....and that, in turn allows the colon to actually function better. Is it the spinach? Well, spinach sure absorbs a lot of water...it's a natural fibre source. I would worry about the fact that it's high in oxalate...can cause kidney stones..but they're eating!!

Limiting foods based on gut comfort is one thing...but one is going to have more bms anyway while flaring...while on meds, that should take care of the inflammation, and eventually, the comfort level will even out.

Pizza is pretty subjective...we all don't eat the same kind. So, eat pizza, but eat it with common sense and good health in mind.

Digestive enzymes can help...although too many can encourage diarrhea or gas. So, that's a suggestion depending what one's needs are.

Fibre supplement to help bulk the stool...good idea.

I will, however....suggest that anyone not overly consume any artificial sweeteners.

I'm sure many others will give lots of suggestions.

I don't like the yes and no rules, however....keeping a food diary is helpful. Remembering that food eaten one minute isn't the cause of symptoms....it will help kick start the peristalsis, and whatever is in the lower colon will be emptied whether one has necessarily eaten or not...especially with an inflamed colon.

I had lots of foods come out looking as they did going in (after chewing, however). It's not a bad thing...because if one has diarrhea, that's how it would look anyway. I believe that understanding how it all works, adding foods or fibre supplements to help change the consistency and look of stool can aid in the frustration and the distress that one might not be improving.

Don't make it all about food....but if one truly believes that certain foods cause problems or allergies, it should be brought up to the doctor and a referral to an allergist to have it checked out should be in order.

Way too much said, I know, but it's difficult to say to people, don't eat that and have it true for everyone.

quincy


*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 12/13/2008 10:58:51 AM (GMT-7)


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 12/13/2008 12:25 PM (GMT -6)   

I really thank you both for your suggestions and anyone else who has some.

I have heard so much info in the last couple weeks...hard to take it all in. I have read alot about diets, and all this different stuff. I don't really want to go on a strcit diet (yet anyways)...was just wondering if people had suggestions about what helped them. Example Christine mentioned pineapple. Ate some the other night. Was up till 2am filling the toilet with blood. Not sure if it's related, but threw it out for now until the meds help me get this under control.

I am just trying to be a bit pro-active that's all. I don't want to sit on the couch and just wait and see. Even if it just means stepping up my diet to be a bit more well-balanced and healthy.

Heather, you mentioned rectal meds. I will mention them to my dr. Not sure if the reason he didn't go for them was the fact the my colitis is throughout the entire colon. I will ask next follow up.

I wish none of us were going through this. It sucks, but I have to learn it's part of my life now.

Anyways...if anyone has anything else that helps them...foodwise or other...I'm all ears.

Thanks for everyone's thoughts. It does help to not be the only one.....


 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08
 
-----------------------------------
 
Pentasa 500mg 2-4x daily
Prednisone 50mg day - Calicium + Vit D
Multivitamin, Vitamin C


benjwl123
Regular Member


Date Joined Dec 2008
Total Posts : 21
   Posted 12/13/2008 2:41 PM (GMT -6)   
Pushing Forward,

I have just recently starting seeing a Nutritionist and have been introduced to a brand new test that I will definitly be taking advantage of since I am very much interested in treating this disease holistically and not through more medications since this is a trial and error disease. It is called LEAP/MRT testing and studies have shown that the diet protocol have been tremendously helpful in relieving IBS and digestive problems. The test consists of 150 foods and your body's immune respose to them. Here is the link if you want to read more about it! I am planning to set up the test in February if I am in remission and use the diet to keep myself in remission.

http://www.rbitzer.com/acrobat/LEAP_Forms123456.pdf
Diagnosed with UC since 1999
Current Meds:
 
Sulfasalizine 500 mg tabs 2x's daily
Rowasa enema 2x's daily
Colocort Enema 1x daily
Prednisone during active flares
Imuran 6 months in 2006 (Joint Pain) Stopped
Florastor Probiotoic
Bentyl for cramping
 


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 12/13/2008 2:49 PM (GMT -6)   
Chicken and rice.
27m - Dx January 2005 and given 80mg Prednisone to taper off and 12 tablets of Asacol
Normal medication: 12 tablets of Asacol daily


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/13/2008 3:13 PM (GMT -6)   
Q,

fruits and veggies are fibre so the chances of them inhibiting D is not likely, sure if you eat a ton of cherries or grapes in one sitting it can get you going but in general fruits and veggies are both soluble and insoluble fibres, they help bulk up stool and make it easier for bulked stool to pass through the digestive tract, fruits and veggies do not exacerbate D.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 12/13/2008 3:39 PM (GMT -6)   

Thanks for the suggestions.

benjwl123....I have heard of this. My girlfriend gets TERRIBLE migraines that last for months and has had these tests done. I am hoping to go speak with a natruopathic (sp.?) doctor in the new year as well. Can you keep me posted how this works?

I heard Salmon is great too.

By the way, if any of you eat fish in your diets and include Tilapia (the great tasting, easy cooking white fish)...it has recently been pointed out that this fish actually has pro-inflammatory effects and not anti-inflammatory such as many other fish. Also something about them not being very high in healthy omega 3. My dad ate a lot of this (he eats extrememly healthy since heart surgery 15+ years ago). I gave him the article and he no longer eats it. Neither do I.

Thought you guys might find this interesting.

Keep your thoughts coming if you have more.

idea
 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08
 
-----------------------------------
 
Pentasa 500mg 2-4x daily
Prednisone 50mg day - Calicium + Vit D
Multivitamin, Vitamin C


dothu
New Member


Date Joined Nov 2008
Total Posts : 16
   Posted 12/13/2008 4:36 PM (GMT -6)   
I read the same thing about the Tilapia - Prevention Magazine I think. Trying to get more fish and I end up picking the one fish that adds to the problem!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 12/13/2008 5:14 PM (GMT -6)   
      Wow, thanks for the info on tilapia.  That is one of my favorite fish foods too.  I haven't eaten it in quite awhile.  Salmon is my favorite, especially while flaring.  I eat it three times a week while in a flare.
      I cannot tolerate any fiber while flaring.  Maybe some people can.  As a matter of fact, when I first started getting sick, ten years ago, I took a fiber supplement and that really threw me over the brink.  I was told the same thing as most people would think.....eat fiber to bulk up the stool.  Well, it sure didn't bulk up mine...made me poop buckets and bleed like crazy.
     One more thing to add....two of my past flares started the day after eating crab cakes.  Don't know if this is just coincidental or not.  But I sure stay away from crabcakes now.  Small price to pay.  Another flare started after I took a bubble bath with dollar store bubble bath beads.  My GI doctor said there could have been an allergen in the bath beads and for most people it would cause no harm but for people with UC it triggers an immune system responce.  Go figure.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 12/13/2008 6:57 PM (GMT -6)   
i fully agree with everything quincy said.

eating something and then running to the toilet, cramped up and bleeding is not caused from what you just ate.
its impossible as that is still in your stomach and has even made it to the small intestines.

its peristalis (spelling?) and its the food you ate the day before that is coming out now.

its an auto-immune disease, not a food allergy disease.
steph - 32 - female - gold coast australia - UC since 2000
severe UC in descending colon and sigmoid colon ONLY
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
prednisolone 25mg x1 a day (ick ick and did i say ick?)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
tumeric capsules - if i remember to take the bloody things.
i still eat what i want, when i want, if i feel like eating at all :(
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/13/2008 7:21 PM (GMT -6)   
It can actually take 3 days for the food you've eaten today to fully evacuate from your body...however when you have the stomach flu for example, things tend not to stay in as long, and I'd imagine for IBDers it's closer to that as well then the 3 day mark, especially for those with D, those with solid or semi-formed/mush likely have food they ate in their system a little longer than those with D.

And I know from experiance, one time I ate a cesar salad during my D-days and shortly after eating it I saw it in the bowl, so much for the theory that what you just ate does not appear instantly because it can and it has to me and I'm sure for many others as well...and that has happend on more than one occassion in the past.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 12/13/2008 10:20 PM (GMT -6)   
I've been sticking to as balanced a diet as I can, but am going to try a strict diet called the Maker's Diet within the next few months. I've heard good things about it. The guy who wrote this book is a Doctor himself diagnosed with Crohn's. It's helped him, and it has helped a friend of mine. It seems like it's worth a try. I'm in remission, but want to get stricter on my food intake. I've been fudging a lot lately and need to get back on track. Hopefully this diet I'm considering going on will help.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


chicagoatc
Regular Member


Date Joined Sep 2006
Total Posts : 133
   Posted 12/13/2008 11:59 PM (GMT -6)   

 This sounds kind of weird but when I'm flaring (currently) I notice that if I'm really craving something, usually it won't make me sick. I've been in a flare and been on a mostly liquid diet (to avoid having to go so much at work) lately and the other day I was craving Papa John's Pizza. Go figure but I ate it then and for a few days after and that was about the only thing I could tolerate. Sometimes I think my body is telling me what it needs. They are usually off the wall things but surprisingly non-upsetting. Other than that, I'm liking miso soup (you can get it in packets in the Asian food aisle) and Carnation instant Breakfast has worked well too. I know you have to mix the Carnation stuff with milk but I need to have something to eat before I go to work as a nurse (my patients are thankful too I'm sure!) and I have really tolerated it well. It gives me some nutrients and other good things but doesn't taste so vitamin-y like Ensure or Boost or something. There are also some lactose free protein drinks in the fridge in the produce department. Some brands are Odowalla, Naked Juice or Bolthouse Farms. They can give you protein and make you feel sane again if you aren't eating a lot of real food.

Good luck and hope I was some help!

Becky


30 years old; diagnosed since 1997 (but I've had it forever)
Current meds:
-Began Humira 11/08
-Prednisone 5 mg!
-Re-trying Imuran; I'm at 50 mg now...but it's making me so tired!
-Asacol 12/day
-Failed Remicade (8/06-8/07)
-Calcium + Vitamin D (for my steroid-affected bones)
-Prenatal vitamins (for the extra stuff, not for pregnancy)
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 12/14/2008 1:16 AM (GMT -6)   
pb4 said...
Q,

fruits and veggies are fibre so the chances of them inhibiting D is not likely, sure if you eat a ton of cherries or grapes in one sitting it can get you going but in general fruits and veggies are both soluble and insoluble fibres, they help bulk up stool and make it easier for bulked stool to pass through the digestive tract, fruits and veggies do not exacerbate D.

:)

Not true....but true.... depending on what other substantial foods are in the mix.   Too many and too much or with an inflamed gut...the symptoms will be exacerbated.  I've proven that over the 20 year process of having UC.   Hence the suggestion of some to limit fruits and veggies in their pure form rather than, let's say, cooked form or well cooked form.     
 
Fruits are also high in fructose, which we don't digest....some people have problems with some fruit, but not all. 
 
Fruit  and some veggies are high in vitamin C.....vitamin C, if taken in high dosages (through foods or supplements) can cause diarrhea or at the very least, a looser/softer stool.
 
Fruits and veggies will also help in quickening the peristalsis.....they also have soluble and insoluble fibre.   Some have more water, some don't.   Both of which do can absorb fluid, although, not all insoluble absorb.  The insoluble also takes up space, so that stool isn't as compacted. 
An apple is the perfect example...it can be eaten cooked, peeled, not peeled, sauced, drank.  There are also different apple varieties...some less water, some less fructose, some harder peels, some more pulp, etc.   I compare it to making concrete...one needs to mix water in cement and stones or pebbles or gravel...depending on what the need is.   
 
Regardless....f & v can change consistency of the stool, the peristalsis, exacerbate some symptoms...etc.  but, they can help as well. 
One also needs fibres such as grains....not all agree with everyone, not all work the same on everyone, some can cause constipation, others cause more discomfort.
 
Definitely all subjective, but fibre is necessary in helping keep the colon in a good rhythmic flow, even during the spasming, etc.  Not all will work as well as the others for everyone. 
 
In general....eat as normally as possible.  Foods digest and go through the system at a different rate.  Foods high in water will go through quicker, foods that demand more processing/digestion go through slower.  That's also why I suggtest meat and fibre "supplements"...because most will avoid veggies and fruits.  You and i know the importance, but it's a learned process. 
 
The bottom line is comfort, but with an inflamed gut/butt....it'll all come out regardless if we're eating or not.  It's best to eat as balanced as possible and help the colon either slow down or quicken up, to change consistency depending on what one's symptoms are (diarrhea or constipation) so that exit is a bit more comfortable or that one has less digestion distress.
 
Doctors suggest the BRAT diet for a reason...so that the colon doesn't have to work so hard.  But, that in turn can set one up for a lazy colon if it's continued over long periods of time.
 
Keep warm!!!  Hey, doesn't it just bug you that the newscasts are now stating our temps in the windchill form as the real temp and not what the actual temp is?  did you know it's going to be -45C!!! bwahahahahaaaaa...some people couldn't even imagine the actual -45C....I could only imagine their horror!   smhair   (ok vent over)
 
Be well...
q turn
 
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 12/14/2008 1:46 AM (GMT -6)   
Pushingforward said...  Example Christine mentioned pineapple. Ate some the other night. Was up till 2am filling the toilet with blood. Not sure if it's related, but threw it out for now until the meds help me get this under control.

Pineapple contains a very strong digestive enzyme called bromelain....which can help break down foods quicker.  It's high in fibre, fructose and vitamin C.  All reasons that many take it....in pure form, crushed, cooked, juiced or supplement.     But, bromelain is also used for pain/inflammation maintenance, in supplement form.  I have a friend who swears by eating a slice of fresh pineapple if she gets a sore throat....  I love it on ice cream....and yes, I'm lactose intolerant and will have gas and discomfort and maybe a few more bms from eating it.  

It wouldn't have caused you to bleed...you're flaring.  It is what it is.  Enjoy it with food or as dessert, but not on its own without eating before or afterward.  

Pushingforward said...

I am just trying to be a bit pro-active that's all. I don't want to sit on the couch and just wait and see. Even if it just means stepping up my diet to be a bit more well-balanced and healthy.

Everyone on here is proactive in many different ways.  The very reason you're here is because you are.  You have to remember that eating is subjective...we all eat differently, and not all foods agree with everyone.  Food, itself, has action in the digestive tract....so, there are definitely ways you can have your cake and eat it too, so to say.  One thing I will suggest....eat your calories in good foods rather than drinking them.    Eat smaller meals and more often during the day.  Protein is important for healing and body strength and stamina.  It also fuels the body for longer periods and keeps blood sugar at a steadier level.

It all takes time to figure it out....just don't assume it's one thing unless it's consistent.    Adjustments are sometimes/somewhat necessary when we flare compared to when we aren't...Oh, and certain meds will also change our appetite/symptoms.

Pushingforward said...

Heather, you mentioned rectal meds. I will mention them to my dr. Not sure if the reason he didn't go for them was the fact the my colitis is throughout the entire colon. I will ask next follow up.

UC starts at the rectum and continues upward, either affecting the whole colon (eventually) or remaining limited.  It heals the opposite....meaning from up to downwards.  The rectum is the last area and sometimes the most stubborn to be healed.  No matter...we all should be on rectal meds.

They are used for treatment and tapered to maintenance in conjunction with oral meds.  They come in 5ASA form and in steroid form.  Both are considered topical, but some does eventually absorb into the bloodstream.

No doctor should ever discount the effectiveness of them...and no oral topicals can treat the rectum.  When the lowest part of the rectum is inflamed, symptoms are totally different....being constipation, gas, stomach discomfort, formed stool.   One usually doesn't recognise early symptoms until the urgency, frequency, rectal PAIN/THROBBING shocked , and if the tissue is really fragile..bleeding.  I haven't had diarrhea with a flare in many, many years.  I treat early and since my last c-scope, all is well.  I was feeling I was starting to flare before the scope, and it was confirmed with only 2 inched inflammation, mild.  Regardless, my point is that flares and inflammation can be controlled with the goal of one's flares to be as minimal as possible.  It may take a while for them to heal, but the consistency of meds do pay off in the long-term.  nearly 20 years for me and all is good... but I don't have pancolitis, and I'll never know if I would have if my doc's med choices for me would have been different.

I'm sure I've gone on long enough....but do the research and make a list of questions for the doc when you see him.  I repeat it all takes time, and for me it took a good 2 years to get it all figured out.  (and I didn't have the internet back then...lol...but I do have a good doc!)

quincy


*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/14/2008 1:49 AM (GMT -6)   
Enzymes are necessary for many bodily functions. Enzymes are necessary for digesting food. Raw fruits, vegetables, nuts, and grains contain all of the enzymes needed for digesting them. When those foods are cooked, they lose many of those enzymes, and your body has to provide them. There is evidence that the body only produces a finite amount of enzymes in its lifetime, and aging may accelerate rapidly once the supply begins to dry up. By consuming foods in their living state, you can protect your body's natural supply and potentially live a longer, healthier life.

People can digest the natural sugars found in fruits and veggies unless they have issues which they have intolerances.
 

Fructose is a sugar found in fruit. It's also a basic component in table sugar (sucrose). In addition, sorbitol — a sugar alcohol — is converted to fructose during normal digestion. So if you have fructose intolerance, you should avoid foods that contain fructose and sucrose as well as sorbitol. These include:

  • Fruit and fruit juices
  • Meat products cured in sugar or breaded
  • Sweetened milk or sweetened milk beverages
  • Honey
  • Maple syrup
  • Corn syrup
  • Table sugar (beet and cane)
  • Confectioner's sugar

Some vegetables as well as some bread and cereal products also may contain fructose. Consult a registered dietitian for a complete list of foods your daughter should eat or avoid. The dietitian also can help create a healthy diet plan for your daughter to make sure she gets the nutrients she needs.

It is important to note that "fructose intolerance" is a general term that describes two possible conditions:

  • Hereditary fructose intolerance, a rare genetic disorder. People with hereditary fructose intolerance lack an enzyme that breaks down fructose. This is a serious disorder that can lead to liver and kidney damage.
  • Fructose malabsorption, a digestive disorder. People with fructose malabsorption have difficulty digesting fructose. This is a less serious disorder because it doesn't result in liver or kidney damage. But it can cause abdominal pain, nausea, bloating and diarrhea.
 
Ya, I heard that it'll be/is -45 with the windchill in winnipeg BRRRRRRRRR, although it sucks here too, -30 with the windchill, oh how I HATE winter!!!!!

:)


My bum is broken....there's a big crack down the middle of it! LOL :)

Post Edited (pb4) : 12/14/2008 12:54:33 AM (GMT-7)


Jjay
Regular Member


Date Joined Sep 2007
Total Posts : 61
   Posted 12/14/2008 3:35 AM (GMT -6)   
Try teading the post about FODMAPS "Finally help achieved through diet.

Good luck
Joan
Joan
UC since 1994.
Medications
Mesasal 2 tablets x 3 daily
Salofalk enemas when required.
Salazopyrin (Sulphasalazine suppositories) when required.
 


Jjay
Regular Member


Date Joined Sep 2007
Total Posts : 61
   Posted 12/14/2008 3:37 AM (GMT -6)   
Dear All,

Please read FODMAPS Finally help achieved through diet. Heer on the forum.

http://www.healingwell.com/community/default.aspx?f=38&m=998680


Good LUck
Joan
Joan
UC since 1994.
Medications
Mesasal 2 tablets x 3 daily
Salofalk enemas when required.
Salazopyrin (Sulphasalazine suppositories) when required.
 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 12/14/2008 2:22 PM (GMT -6)   
Salmon is one of my favorites, and when flaring or not we try to eat it a lot... Giant Eagle has those Salmon patties w/ Feta chese & spinach....freakin great stuff!! Some people may not do well with the feta, but I recommend trying those - they taste great smilewinkgrin I am flaring right now - been feeling pretty sick and dehydrated. I have been talking some fiber suppliments (fibercon pills) 2x a day - and I am thinking they are making me much much worse. I can normally make it through flare by eating very carefully - bland diet of baked chicken, yogurts, salmon, etc...but this time I was trying the fiber suppliments and am going to stop because i am getting exponentially worse....even by eating those "inert" foods.

Lots of great suggestions in this post.....very true that everyone can tolerate different things - I have had this 14 years and can tell you that a great place to start is with a bland diet....experiment and document....
33 yr old male. UC for 14 years. 5mg pred (tapering off), 12 pills Asacol per day, Dicyclomine (for cramps), 0.5 - 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!)  "I poop in the woods because I can"


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 12/14/2008 7:10 PM (GMT -6)   
     mbx5....DON'T TAKE FIBERCON!!!  Voice of experience here..lol.  I learned the hard way.  When I first came down with UC symptoms back in 98 I took Fibercon too thinking it would help me.  Well, I wound up in the hospital.  It sure did make me much, much worse!!!  My GI doctor said while flaring stay away from fiber.  This illness is hit and miss isn't it?  Your system must be similar to mine.  I LOVE salmon too and it is very gut friendly.  I'm not sure I would eat the feta though.  I bake my salmon with a bit of Mrs. Dash, olive oil and papricka..mmmm gooood.  During flares I stick to a low-residue diet too.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/14/2008 7:22 PM (GMT -6)   
Keeping in mind that although fibrecon may cause issues for some, it may work wonders for others, it's pretty much trial and error. My GI told me to take fibre supplements while flaring and indefinitely and it was the best advice I'd ever gotten from a GI, it gave me many improvements with both my crohn's colitis (CD affecting the colon) and my IBS...it's been 5 yrs and I still take it daily along with eating fibreous foods with no added gas or bloating from them anymore...popcorn too.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 12/14/2008 7:34 PM (GMT -6)   

You guys all have such great suggestions.

A thing I started doing is keeping boiled eggs in the fridge so I can just grab one anytime during the day. I know how important protein is and I think, even if I just eat the whites (sometimes yolk too) that this is a great shot of protein that I can just grab and eat in 30 seconds while walking by the fridge.

I'm glad to hear that pineapple has such good effects. Fresh pineapple has become one of my fav's. I will make sure to eat it with something else and give it another shot.

I also love salmon. Still learning the trick of not overcooking, but not undercooking. Here we can get salmon marinated in a wine and herb base at my Loblaws...so good. Sometimes I just bake it plain and add a bit of lemon pepper or something. Not the best chef, but learning new things all the time. I even pan fry it quite a bit. You don't have to add any oil at all since it has enough natural fats...trust me, if it didn't stick to my crappy old pan, it won't to anyones.

Do any of you drink green tea? I've been trying to drink more. I have been told it has an anti-inflammatory effect as well.

Just a thought. Great ideas everyone...you all help me out alot for a guy who's just trying to figure this all out. 


 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08
 
-----------------------------------
 
Pentasa 500mg 2-4x daily
Prednisone 50mg day - Calicium + Vit D
Multivitamin, Vitamin C

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