Flare of Rectal Stump (after colectomy)

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picklechic
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 12/13/2008 10:34 PM (GMT -6)   
Has anyone else dealt with this? My 3 year old had her colon removed and a temporary ileostomy done in August. Things were great for a while, but now she's having uncontrolable bloody discharge from her rectum. The surgeon's nurse thinks she is having a flare in her rectal stump now. We are waiting to hear back from the surgeon as to what to do next. Any ideas? Thanks in advance!
Kimberly
Mom to 3 year old daughter with UC and XY Turner's Syndrome
dx. 1/08, s/p total colectomy with ileostomy 8/13/08
J-pouch surgery in 2009
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 12/14/2008 3:11 AM (GMT -6)   
Sad she's got so much to deal with at her young age...hope this is a minor setback and she'll have this all healed soon and does awesomely after her j-pouch. I've read that inflammation can happen (considering that the rectum is where UC) starts and if the rectal cuff (I think it's called) isn't removed, then it can still flare for some.

I would suggest you ask the doctor for suppositories to help the inflammation heal. 5ASA or the hydrocortisone/corticosteroid suppositories.


Keep us posted as to how she's doing.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/14/2008 9:24 AM (GMT -6)   

Yes, this is normal and as Quincy said it can be treated with UC meds.  I think you should also query her surgeon and ask if he plans on a mucosectomy for the second surgery of if more of the rectal stump will be removed.  Either of these scenarios will reduce continued problems after her ostomy is reveresed.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


picklechic
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 12/14/2008 2:02 PM (GMT -6)   
Thanks for your help! Do you know if corticosteroid suppositories have the same side effects as oral steroids do? When my daughter was on Prednisone orally she had some awful side effects and I'd hate to go through that again.
Kimberly
Mom to 3 year old daughter with UC and XY Turner's Syndrome
dx. 1/08, s/p total colectomy with ileostomy 8/13/08
J-pouch surgery in 2009
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 12/14/2008 2:10 PM (GMT -6)   
There are some adult members posting here who have written that their doctors put them on 5-ASAs to prevent re-inflammation of the rectal remnant after colectomy/resection surgery. Sorry to read that your little girl is going thru all this. Best wishes for a quick resolution of her set-back. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

A2PT
New Member


Date Joined Dec 2008
Total Posts : 1
   Posted 12/14/2008 11:23 PM (GMT -6)   
I am currently going through the process of the colectomy and J Pouch surgeries, I had my first surgery on 10/22 for the colectomy and temporary ostomy creation, with the next surgery scheduled for 2/4/09 to perform the ileoanal anastomosis.  I have the rectal stump in place currently and on 12/3 I noticed sharp pains in my rectum (where I couldn't sit down without pain).  My surgeon performed a flex sig the next day and prescribed the Canasa suppositories.  I have been taking these nightly, 1000mg doses, but last weekend and this weekend I had a problem arise.  I had a bowel movement--and it wasn't just mucous. 
 
I've been doing research online, and took a pic on my phone to show my doctor's office, but I am incredibly worried about what this may mean to my recovery.  I wasn't sure if this was at all normal, or if I really should be worried.  Please let me know if you have any experience with this--and I am so sorry that your daughter is having to go through this--I work with the CCFA as a volunteer and constantly am in awe of the children that live with UC and Crohn's.  I wish you all the best and thank you for your help!
 
KH (27 y.o female)
 
Diagnosed with UC in 2002
Finally off prednisone as of 12/2/08!!
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