One doctor referred to my UC as pancolitis, but my others doctors don't use the term. What I know is my whole colon can be inflamed, or sometimes it is found to be only inflamed in certain areas.
Maybe I'm missing something, but what difference does it make what it is graded?
Either you are flaring and need more aggressive treatment to get it under control, or you are not and need to be on a maintenance regimen (whether that is diet, drugs, etc.).
Seems you are both experiencing the latter...that's good!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares.
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills.
Doing much better, but still experience anxiety that interferes with activities.