Okay, You Gotta Love Me!

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Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 12/15/2008 8:01 PM (GMT -6)   
You gotta love me, but I just have to ask a common question!  I am doing so well and it is incredibly exciting.  However, while 85 - 90% of my symptoms are gone, my bottom and upper back of my legs (joining my bottom) still ache.  It's not so bad in the a.m., but by the evening it is worse.  Does this ever go away?  For those in complete remission, do you remember how long this ache takes to go away?  I know this is such in individualistic disease, but I couldn't resist asking.
 
Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 12/16/2008 4:02 AM (GMT -6)   
We love all your questions and suggestions! yeah
 
Do you have hemorrhoids or fissures?

I had that feeling for the past few days (like I did leg curls or lunges)..but I how have a cold (and slight fever), an external hemmie and a re-opened fissure. I spoke too soon in my past postings..curses!!!

It could just be stress in that area....do you do any exercises to help stretch those areas...not a lot, but to help relax the muscles so that they might stop spasming?

Can Tylenol help?

q


*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 12/16/2008 2:08:17 AM (GMT-7)


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 12/16/2008 7:14 AM (GMT -6)   
Quincy - thank you! I do stretching exercises w/ my legs, as well as, leg lifts. I also keep an electric blanket on the couch to sit on - feels good to my bottom, but it also feels good to wrap up in w/ this cold weather! Hot baths also help. We had ice last night here in Tennessee so the warm blanket feels extra good! I may have some fissures, honestly I don't know. Does itch a bit down there in that area. Yes, I do take a few Tylenols in the a.m. and that may be what helps for the better part of the day. I am not one to sit - I have to be doing something all the time - LOL my husband sometimes says, will you just come sit by me! Today it's clean house since I can't drive to work.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 12/16/2008 3:12 PM (GMT -6)   
Well, the cold weather can cause us to "shiver" and hold certain areas tighter..at least it does for me.

If you have itching or discomfort, maybe try hydrocortisone cream to start..because it could be a fissure or external hemmie. Of course, you could take a look-see.

Those ice storms are so scary.....seeing it all on TV as to how many people are without electricity is sad. I sure hope these systems stop for a while and allow people to recover.

We have cold here..but I do like it and feel warmer compared to the damp weather.

Happy cleaning day! although I;m sure your house doesn't really need it.
Maybe your husband is telling you to relax and your cleaning is causing him to feel guilty..lol!

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/16/2008 3:18 PM (GMT -6)   
That's funny, my husband will also make me sit down sometimes! Especially on the weekend. He knows if I stay as active as I want to be that it will trigger back pain and I will later be miserable. Or is it guilt? Probably a little, he can sit and watch the same old westerns or war movies over, and over, and over...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. 
Doing much better, but still experience anxiety that interferes with activities. 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 12/16/2008 3:35 PM (GMT -6)   
Interesting point Peety...maybe it is to prevent the pain s well. I'd rather be asked to come sit rather than be ignored. I'm hopeful to believe that usbands really do not want their wives to suffer if it ends up being bad company or in a situation that they cannot help. I'm pretty sure of that based on my own husband. As well...watching something together is sharing of an experience.
I guess you could trade off movie preferences so that he can learn to enjoy yours..westerns, eh? What kind of movies do you like?

Well, it's replacing the sitting out on the porch in rocking chairs..lol!

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 12/16/2008 3:46 PM (GMT -6)   
You guys are a hoot! Now, Quincy, in the spring, summer, and early fall we love sitting out by our Koi pond and waterfall in our "rocking chairs!" Yes, my Jim (dh) loves westerns too, as well as, scientific shows (he has his masters in biology if that tells you anything!) and oh he loves HGTV! Sometimes I have to tell him that I can't watch one of his "scientific" shows while eating dinner! I agree, watching a movie together is good. He even enjoys a romance movie w/ me on occasion - LOL he gets mushy! We watched "You Got Mail" the other night and really enjoyed it!

I will try the cream to see if that helps - again, thank you!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 

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