Low white count and 6MP

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/16/2008 2:05 PM (GMT -6)   
     I had an appointment with my GI doctor yesterday.  My white count is down to 2.6.  He said he doesn't want it to go lower than that and wants me to get monthly blood counts drawn, which I have been doing.  This is the lowest my white count has ever been and frankly, I am quite concerned.  I am a former lab tech and know you need white cells to combat infection in your system.  Too low of a white count is dangerous.
     What I am asking is.....for you people out there taking 6MP.  What do your doctors want your white count levels to be before being very concerned?  I am taking 50 mgm of the 6MP at the present time.  He said there is another drug out there to boost the white count...forget it...I adamantly refuse to take another pill.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 12/16/2008 2:21 PM (GMT -6)   
I am also taking 50 mg of 6mp- just started November 25th and have had two blood tests so far. I don't know what my white blood count is, but I will ask the doctor Monday when I see him. I talked to him last week and he told me everything was good except my red blood count. I am very anemic.

Thanks for bringing this up... and I agree with you about taking another pill. I just don't think I can do it either. I almost choked today on the Colazal I take.
smhair
Jackie, 43

Pancolitis, DX October 06

Lexapro, colazal 3x3, Sythroid, Protonix, Flagyl

10 infusions of Remicade- doesn't work
Severely anemic-

back up to 30 mg of pred
Added 6MP- November 25th
 
Surgery almost certain


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/16/2008 3:16 PM (GMT -6)   
I can't remember what my numbers were but my WBC was a little on the low side and I had to go in every 2 weeks for a blood draw. My numbers went back up and in fact, my WBC still fluncuates but nothing to be concerned about according to my GI. I wished I could remember what my GI told me about what is too low.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
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piccolobellezza
Regular Member


Date Joined Dec 2008
Total Posts : 55
   Posted 12/16/2008 6:52 PM (GMT -6)   
When I was on 100mg of 6mp, my doctor discontinued it when my WBC dropped below 3. I started it again at 25mg once it rose above 3 and then he permanently ended it when my count dropped to 1 after restarting.
21, female
Diagnosed September 2007
Remicade
Prednisone
Asacol
Protonix
Bentyl
Lomotil
Lasix
Zofran


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/16/2008 7:16 PM (GMT -6)   
     I thought 2.6 was awfully low.  It used to be 3.5 and I remember my doctor saying he didn't want it below that!  I was thinking of lowering the dosage myself back to 25 mgm but am afraid the UC will come back.  Boy this really is a catch 22.  I see you are on Remicade piccolo, which is not an option for me.

62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


piccolobellezza
Regular Member


Date Joined Dec 2008
Total Posts : 55
   Posted 12/16/2008 8:08 PM (GMT -6)   
My doctor had said that even at 5 my count was low. My uncle is a radiologist and hes been helping me a lot with my meds and what not and he told me that 3 is low but that normally people that are taking chemotherapy don't get concerned until the count drops below 2.5. I am not sure how true that is, I just know that my doctor promptly stopped it when my count was at 2.8.

Why is remicade not an option for you Christine?
21, female
Diagnosed September 2007
Remicade
Prednisone
Asacol
Protonix
Bentyl
Lomotil
Lasix
Zofran


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 12/16/2008 9:52 PM (GMT -6)   
My doctor has always told me that on 6MP they don't want it lower than 4. Lately mine has been a little high (a 10) which concerns me since I'm on immunosuppressants to lower the white count so why is it a 10? lol
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/17/2008 9:25 AM (GMT -6)   
     Glamore girl....did you have a cold or infection lately?  That could boost your white count level.
 
     Picolo...I cannot take Remicade because years ago I had a positive TB test.  Negative chest xray but because I was exposed to the TB virus (worked in a lab years ago and also had an aunt through marriage who had TB and I was around her a lot), the virus lies dormant somewhere within this old body.  Remicade could activate the virus (my GI's associate told me and he actually had a patient who died while on Remicade) and it could kill me.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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