Just had my 3rd infusion of remicade. Seems like it's helping quite a bit. Am also on Lialda.
Last week had two mild nosebleeds and yesterday a really heavy nosebleed. I haven't had nosebleeds since I got off asacol last spring, but tho't that was caused by the combo of asacal and zoloft. Then got this current flare and went on lialda and then 6 weeks ago the remicade. My gut is better, but now the dang nosebleeds again!
Anybody else have similar problems? When I googled remicade I did find a mention of possible unusual bruising or bleeds on 3 different sites. Just when I tho't I could see the light at the end of the tunnel. Some days you just can't win--and it's a miserable dark, foggy day, and I'm feeling like a real pity party!
Moderate to severe left-sided UC, Dx 1991
Lialda 2 per day
Prednisone for flares. SCD recipe yogurt daily for probiotics.
Fish oil caps and Multivitamin and Bee PollenPrima. Reuteri. L Glutamine, and iron supplement
Started Remicade infusions 11/06/08
Posted 12/18/2008 6:48 PM (GMT -7)
Hi there- I've been on remicade for more than 2 years but i've never experienced nosebleds from it. Did you normally have nosebleeds before the Remi? Also, it's ok to be a pity party - we've all been there!
Diagnosed w/ Ulcerative Colitis in 1999
Major Flare 6/2006- in hospital for a week where I received ALOT of IV prednisone and 1st Remicade Infusion. Continued on bed rest for an additional week.
Off Prednisone since Oct 2006.
6mp- 100 mg at night- SUCCESSFULLY TAPERED OFF IN SEPTEMBER 2008!
Remicade Infusions every 8 or 9 weeks-last infusion 10/2008, next one is next monday.