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Shox
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 12/17/2008 5:04 AM (GMT -6)   
Hey,
 
I've been using this site for a while now and although this is my first post I have got a lot of information and support from reading your messages, thank you.
 
And seeing as I have gotten so much from the stories of those on this site I feel that I should put up my own. I was diagnosed with UC in April 2004 after suffering for six months. Since then I have run the pharmaceutical gauntlet trying everthing from steroids to my latest attempt (which turned out to be a failure) Remicade. Then about two weeks ago, Dec 4, I was admitted to hospital with the condition getting worse and worse, for a total proctocolectomy...good times ;). So now, after five years of ups and downs, and I must admit there have been a lot of ups aswell in that time (I have managed to finish college, meet a great girl, travel the world - that provided a lot of 'interesting UC moments'), I am disease free!! I have a bag, for the next nine months at least. The surgeon thought it best to do the procedure in 3 stages. My next op will be in May please God and the take down August.
 
So here I am at home, feeling well, the op was laproscopic which really helped my recovery, plus I had a total revamp of my diet over the past twelve months, avoiding all processed foods, sugars and grains, only eating organinc foods and drinking water...with the odd latte, gotta love them!
 
For the most part things are going really well, my GF and family tell me I amn't looking so gaunt anymore, I was pretty sick before the op with about 15-25 bms a day. Though I have to admit that it is taking some time to get used to the bag...ive had a few leaks already, small ones, but not fun.
 
Anyway, thats my story, in brief...this site really helped me over the last year, and I dont think I would be as positive as i feel I am without it so for that, thank you to everyone who has shared their story before me.
 
P

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/17/2008 5:46 AM (GMT -6)   
Hi and welcome to HW :) I'm glad you shared your story as well. Many Uc'ers face the possibility of surgery so it's always nice for someone to come here and share their history and story. I'm glad you are feeling better and on the road to recovery.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 12/17/2008 6:08 AM (GMT -6)   
Shox - Welcome and what an inspiration you are! I want to THANK YOU for sharing your story and for the positive outlook on life. I am so happy for you that you are on the road to being free of UC, but more than that that you have such a wonderful lady in your life and that you have finished college! Hooray!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 12/17/2008 7:16 AM (GMT -6)   

Being new with UC here, it's always good to hear the positive stories and the fact that there's green grass on the other side of the fence for any of us.

Thanks for Sharing ... good luck with everything!!


 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08
 
-----------------------------------
 
Pentasa 500mg 2-4x daily
Prednisone 50mg day - Calicium + Vit D
Multivitamin, Vitamin C


quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 12/17/2008 3:05 PM (GMT -6)   
Shox..welcome to the forum and thank you so much for sharing your experience with UC and surgery and getting on with life. Very inspiring. Please continue to post with how you're doing.

Be well,
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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