Sherry....you are truly one of my heroes for all you are able to endure with the utmost dignity....and I deeply feel for you for all you are having to go through. I would have lost it long ago...
I would get the doc to check you for any possibiliies. Is it a rheumatologist you'd be seeing?
There are antidepressants that can help with body pain, which I can't remember at this moment...worth considering.
The other option is Remi or the new med Enbril....
Pain patches could help rather than taking oral meds. You should also be sent to a pain clinic if you're not already in one. Hopefully, they can treat you "whole"istically because all of what you have is probably related.
Hang tough....I hope your doc gets you on the right track.
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!