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Lil lilian
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 12/17/2008 9:39 AM (GMT -6)   
ok so i keep going through stages of cramps and a diareagh but no bleeding, i lose my appetite and my BM are different each day but never solid so far this has lasted for about 3 weeks. Is this actually a flare or just a blip? it's affecting activities with my friends and boyfriend and it's our anniversary on sunday but it's affecting what i do, what can i do?? i take imodiums when i need to but then i get blocked up and don't want to leave the house the next day in case it wares off when i'm out and have an accident......any thoughts??
23 years old
diagnosed uc in 2005 but began 2 years before but unsure if it's left sided or extensive, diagnosed IBS 2003
6x mesalazine daily
iron supplements and calcium
1/2 predfoam during bad periods (but dont respond well)
6x prednisolone daily and reducing
recently started organic diet and check every ingredients label for additives!! it helps! :-D
regular excercise and last signoidoscopy late 2005.
Status: mini relapse.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/17/2008 2:55 PM (GMT -6)   
are you still tapering pred?

how many oal 5-ASA are you taking I can't tell from your sig?

Are you using the predfoam? maybe consider to start again.

You could add a fibre supplement such as Metamucil smooth or the regular one...but don't get the kind that's sugar-free.

Are you taking any probiotics?

You do, however, need to get in with your doc to have another c-scope...it's been 3 years, and you really are due.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Lil lilian
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 12/17/2008 3:26 PM (GMT -6)   
hi, no i'm off the pred now, sorry forgot to update my sig!! i take 6 asacol a day but will admit i haven't always fit the full 6 in but never less than 4 a day.

i;ve been to see my GI and have scheduled a colonoscopy for after xmas. i think it might be the beginning of a flare as it feels like it's getting worse. just gets me down cause i'm not seeing my friends and not alot of my boyfriend!!
23 years old
diagnosed uc in 2005 but began 2 years before but unsure if it's left sided or extensive, diagnosed IBS 2003
6x mesalazine daily
iron supplements and calcium
1/2 predfoam during bad periods (but dont respond well)
6x prednisolone daily and reducing
recently started organic diet and check every ingredients label for additives!! it helps! :-D
regular excercise and last signoidoscopy late 2005.
Status: mini relapse.


Lil lilian
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 12/17/2008 3:35 PM (GMT -6)   
oh and also i'm not taking pro-biotics, do they help?? and i tried the predfoam a couple of times but both times i ended up with severe cramps for about 3 days and alot of bleeding so i haven't gone back to them x
23 years old
diagnosed uc in 2005 but began 2 years before but unsure if it's left sided or extensive, diagnosed IBS 2003
6x mesalazine daily
iron supplements and calcium
1/2 predfoam during bad periods (but dont respond well)
6x prednisolone daily and reducing
recently started organic diet and check every ingredients label for additives!! it helps! :-D
regular excercise and last signoidoscopy late 2005.
Status: mini relapse.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 12/18/2008 3:47 AM (GMT -6)   
Hi..do adk the doctor for Rowasa if you cannot use th epredfoam...or maybe ask for Canasa or hydrocortisone suppositories if you cannot use the liquid enemas.

I would suggest you take the Asacol twice a day...3 in the morning, 3 at night. That way, you won't forget your dosage.

Yes, probiotics are good for everyone to take.

Looking forward to hear how your scope goes...and what the doc will prescribe for you.

Please still try the predfoam again consistently at night...the period of discomfort may pass with improvement.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


downs
Regular Member


Date Joined Dec 2008
Total Posts : 76
   Posted 12/18/2008 4:06 AM (GMT -6)   
i would stop the probitoics,,,,they can aggravate you,,iron also,,,,,I would go back on pred to get thru holiday!!! ..I say you are i a bout!!!

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/18/2008 4:01 PM (GMT -6)   
Huh?
Keep the probiotics, we need them. But I agree stop the iron, it will irritate anybody. Maybe try to get by without the prednisone until your colonoscopy... but if it's really ruining your holiday, jump on them again. (Try asking the docs office for an Rx, they will check with the doc and maybe even get you in).
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


Limeycricketlover
Regular Member


Date Joined Oct 2008
Total Posts : 67
   Posted 12/19/2008 3:28 PM (GMT -6)   
Hi Lil,
I take it you're having quite a few BMs a day?
It may be worth trying a soluble fibre supplement (like benefibre) as this can bulk up the stools and slow things down in a kinder way than imodium. Doesn't work for everyone, but not too expensive an option, and the only negative reaction I've seen posted is a bit of extra wind while the body gets used to it. I'd suggest you have a chat with your GP or gastroenterologist about taking Imodium - long term use can be dangerous, especially if you are flaring.
I've recently started taking Muller pre and pro-biotic low fat yoghurt - Tescos are doing a deal for 2 six packs for £3 at the moment. Don't know if it's having a huge effect, but they taste great to me, and it's a good way of getting some extra calcium.
I'm a bit surprised that you've not had a colonoscopy to determine the extent before now - blinking NHS. You should expect to have a scope around about every 2 years to check on the disease's progress and make sure there's no other danger signs lurking.
Your doc may also want to up the mesalazine dosage to 8 x 500mg per day.
BTW, hope you've got a prepaid prescription as well - can save quite a bit on the medicines.
UC - diagnosed Sep 2008 - awaiting colonoscopy to determine extent
Omeprazole 2 x 20mg
Prednisolone 15mg
Calcium (Adcal-D3) 1500mg
Mesalazine 8 x 500mg
Mesalazine foam enema
Multivitamins x 2
Omega 3

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