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downs
Regular Member


Date Joined Dec 2008
Total Posts : 76
   Posted 12/18/2008 5:09 AM (GMT -6)   
Hi!!! Do you guys take ASacol as a preventitive med or do you think it actually helps with the immflamation??

quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 12/18/2008 5:37 AM (GMT -6)   
it's a treatment and maintenance med. I've used it for 20 years successfully.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/18/2008 2:48 PM (GMT -6)   
Maintenance, 20 plus years here too.
Although the first time I used it (in a study, before available) I was really sick and it brought things under control quickly. I was taking 12/day in the study. Now when I flare and take more it doesn't really help, I have to use prednisone.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


katkat
Regular Member


Date Joined Feb 2005
Total Posts : 239
   Posted 12/18/2008 8:13 PM (GMT -6)   

I am also on Asacol and this is now my 7th week on it.  I'm not sure if it's quite working as I remember, but last time included pred.  I'm trying very hard not to go on it, but if I absolutely must, then I will.  But the Asacol, have you seen the side effects on it too?  Geez, especially about may cause more bleeding, headaches, cramping, nervousness, etc.  Why do they prescribe this stuff it that's what could happen!  Unless I have the misfortune of falling into the "rare side effects" category.  Or that maybe it's too much of a dosage? And why do they make it a red colour, can't they make it a clear cover, like some of the enteric probiotics/vitamins? 

I'm noticing the poop part (of course includes dark red blood most times or light red blood) if it should take this long to kick in.  At times, there is no blood or poop but it looks like red (burgundy) clay? Could this be the pills doing this?  And I noticed about 2 pills in with it today, but didn't really want to poke at it, not sure if it was just shell or actual pill.

I'm sort of a loss at the moment about only Asacol but I would prefer this evil than to other evils.  Is it mind over matter, if a drug works or not? 

I don't know, just getting tired of coddling this *#&% disease right now.  And it's almost Christmas, I want to be around family than the toilet bowl.  I'm just feeling a little of low spirit at the moment.  that's all....

Has anyone heard of homeopathic anti-anxiety alternatives?  I tried Passiflora Compose, it's a sublingual little pill.  It seemed to help a bit late this afternoon, when I was feeling jittery.
 
Also, here's another question, don't all doctors/GI's has a protocol to diagnose UC, ie., run through all possible parasite infections, then other possibilities instead of trying us on what pills could possibly work.  I really think it's a pathogen, this UC, but they haven't found it yet?!  
44 yrs old, only 3rd experience with flare-up start oct29.08, Ont.Canada.
current: asacol 400 mg - 2 4x/day
                          
last flare in 2004 with c-diff, went into shock, hospitalized 2 wks, rec'd transfusion
prednisone, asacol, metronidazole
 
in 2000 rec'd antibiotics(sinuses),c-diff,ulcerative colitis 
 


kc70
Regular Member


Date Joined Nov 2008
Total Posts : 112
   Posted 12/19/2008 12:58 PM (GMT -6)   
Asacol was the first drug my doctor prescribed after my colonoscopy and diagnosis (end of October 08). I did okay on it for 2 weeks but didn't notice a significant change in my physical health or toilet behaviour. Then I got really sick, had severe nausea and vomiting, couldn't eat anything for a week, and it took me 3 weeks to crawl back from that. I stopped taking the Asacol (1200mg/day), mostly because I didn't have any food in my system to absorb it and I'm pretty sure it was making me feel worse because when I stopped, I started feeling better.

It seems that lots of people do fine on it, but I sure didn't. I won't be taking that drug again!
 
Edit: my understanding is Asacol is a maintenance drug.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 12/19/2008 1:29 PM (GMT -6)   
I've been on Asacol for a year and a half. I started with 1200mg bid, but now up to 2400mg bid. It is a maintanence drug. However, it can be used long term in combination with others depending on the severity of the UC and how your body reacts to the medication. To me the Asacol is not a big help, but it's different for everyone. Good luck!

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Mommy of a 1 year old and a wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.

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