Pred finally caught me!

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Red_34
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Date Joined Apr 2004
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   Posted 12/18/2008 1:11 PM (GMT -6)   
Wouldn't you know it??? After years of having Uc, I have managed to avoid prednisone.  In comes arthritis and guess what? Yep, put on prednisone.  I went to see my primary today and she didn't quite know what to do to help me.  I really wanted a steroid injection in my one finger that hurts but she felt that an oral steroid would help my other finger joints that are hurting.  Sort of killing 10 little piggies with one stone sort of deal.  I am to take 10mgs for 7 days, 5mgs for 7 days and then 2.5mgs for 7 days.  And after that, I am going to attempt short burst dosages of an anti-inflammatory such as Celebrex if my insurance will cover it.  My insurance normally doesn't cover it so my doc is going to call in an authorization - but I doubt that will work.  However, IF my insurance says ok, then I am not going to be doing typical dosing because of the bleeding risk.  More like one a day for a couple days then off it for a few days and then on.  I know I've read on here that it's best to take Pred in the morning so I won't get insomnia right?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


unclebubba
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Date Joined Dec 2008
Total Posts : 510
   Posted 12/18/2008 1:19 PM (GMT -6)   
morning seems to be the best for me. Except I'm on 3 10mg tabs a day, so I take on morning, one lunch and one dinner. and for me the last one had better be before 5 pm. If not I'll be up till 3 am or so. if i get it in before 5 pm, then i can normally hit a bedtime of around eleven.
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten


jujub
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Date Joined Mar 2003
Total Posts : 10407
   Posted 12/18/2008 1:35 PM (GMT -6)   
It's generally recommended to take Pred in the morning. Not only will it help prevent the insomnia, but that is when your adrenal glands normally release steroid hormones into your body, so it's a more normal pattern.

Be sure you take it with food to prevent stomach irritation and bleeding. And you may need to take something for heartburn, because Pred can contribute to reflux. I always took Ranitidine 75 mg. in the morning and evening when I was on Pred.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Peety
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Date Joined Mar 2008
Total Posts : 2855
   Posted 12/18/2008 1:41 PM (GMT -6)   
Yeah, our insurance won't pay for celebrex either. Ask if she can get some samples for you! I don't know how much it cost full price, but it might be worth it. My doc gives me hydrocodone, I guess it's strong but fortunately it doesn't make me loopy.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 12/18/2008 2:01 PM (GMT -6)   
I have been on and off pred for 14 long years. As much as I hate it, and as much ill-effects it has on my body, I have to say that it does sometimes actually work. Just 2 days now and I am noticing a bit of a difference - still in a flare, still having urgency blood and mucus, but not as urgent and not as many times a day. I hope just one "cycle" or burst of pred will do the trick - we will see when I start tapering....usually once I hit 25mg or less, flare is back.... As bad as pred is, it can be a good thing too I suppose....as dangerous as it is.
34 yr old male. UC for 14 years. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!) "I poop in the woods because I can"


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/18/2008 2:55 PM (GMT -6)   
Judy, I'm already on Prilosec. I take the Prilosec on an empty stomach and then a half hour later I have breakfast. Prednisone won't interfer with the Prilosec then or visa versa?

Peety, does hydrocodone have codeine in it?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 12/18/2008 3:18 PM (GMT -6)   
It's best to take the prednisone before 9 am - supposedly it fits best with your circadian rhythms then. However, when I was on a dose greater than 20mg, I would take 20mg in the am and then the rest (but not more than 20mg) with lunch to keep a more even dose in my system.

Even though I'm already on something for my GERD, I found that the pred made the heartburn much, much worse. I ended up taking my Aciphex in the AM as usual and then taking a rantidine (usually 150) in the afternoon when the heartburn hit.

Best of luck Red!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Mild Flare
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and a probiotic
Remicade: 1st infusion 06/17/08:  Next infusion: 12/02/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 12/18/2008 4:07 PM (GMT -6)   
Hope it works for you Sherry....at least the doc put you on low dosage and then a taper.

Keep us posted.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 12/18/2008 4:27 PM (GMT -6)   
I hope the pred gives you some relief.  10 mg. is a really low dose so hopefully you won't suffer many side effects.  The moon face (which is my least favorite side effect) usually hits me after 3-4 weeks at higher doses so hopefully you'll escape that lovely side effect.  Whenever I take pred, I have to split my dose up and take it 3 or 4 times a day instead of taking the entire dose at once.  If I took the entire dose at once, I noticed that I'd feel really sick a few hours before I was due to take the dose.  When I split it up, it stayed more consistent in my system and it worked better for me. 

Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


Lila C
New Member


Date Joined Dec 2008
Total Posts : 1
   Posted 12/18/2008 5:09 PM (GMT -6)   
I was on prednisone after more than two years without a UC flare-up.  I now have oral thrush and a swollen face.  Has anyone had to deal with this stuff?  I would love some stories...advice?  I need to feel less disgusting.   I have had UC for five years, but not these horrible side effects.  My face is much worse than usual and the mounth infection is a new low...

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/18/2008 6:37 PM (GMT -6)   
Lila, welcome to Hw :) I can't offer any insight on prednisone since this is first time I am taking it. I have, however, used steroid enemas for almost a year and ended up with moon face. It went away rather quickly after I stopped the steroid enemas. Hang in there! How long do you need to be on pred?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Happychic
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 12/18/2008 6:50 PM (GMT -6)   
When I was on the pred my doc also prescribed Ambien for insomnia. He said to use it if I needed it and it was wonderful! I have always had trouble staying asleep so it really helped me.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/18/2008 8:14 PM (GMT -6)   
LOL Happychic - do you know what happens when I take Ambien?? I sit on my husbands chest in the middle of the night babbling at the wall! I already take a sleep aid every night but I don't know if it's strong enough to counteract a steroid. But we shall see tomorrow since that will be my first dose.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 12/18/2008 8:17 PM (GMT -6)   
Red, I count my blessings - I haven't had to take the pred, but just wanted you to know I am thinking of you!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/18/2008 9:09 PM (GMT -6)   
Red_34 said...
Judy, I'm already on Prilosec. I take the Prilosec on an empty stomach and then a half hour later I have breakfast. Prednisone won't interfer with the Prilosec then or visa versa?

Peety, does hydrocodone have codeine in it?

I don't know! Sounds like it though, doesn't it?

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 12/18/2008 9:46 PM (GMT -6)   
My mom is steroid dependant for the rest of her life. She has bouts of insomnia eventhough she takes her prednisone in the AM. I have also noticed that on my prescriptions when I am given prednisone, that it's a must on my bottle to take them in the am.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


Old Hat
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Date Joined Feb 2007
Total Posts : 5182
   Posted 12/18/2008 9:50 PM (GMT -6)   
Good luck, Sherry! Just wondering-- do you get any relief from topical anti-arthritis meds on fingers? / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Missmissy
Regular Member


Date Joined Oct 2006
Total Posts : 237
   Posted 12/19/2008 6:16 AM (GMT -6)   
Good Morning Red~Sorry that the pred finally caught you! Just a word of caution about the Celebrex...I took it for about 2 weeks and started to go into a flare. I believe it was the Celebrex. It took 2 months on pred to get things back in order. I hate to rain (or snow) on your parade. Just be really cautious!
Asacol 1200 mg. 3 times daily, Rowasa enema AM & PM,
probiotics, lots of hope and prayers! 51 years old, diagnosed formally 10-06. If it doesn't kill ya, it'll only make you stronger!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/19/2008 6:46 AM (GMT -6)   
Missmissy - I already know the warnings of Celebrex. At first my GI nixed the idea so that is why I am doing an unconventional dosing regimine. And I am to stop it (if my insurance approves it that is!) if I get any sort of Uc symptom.

Old Hat, I have been using Australian Dream topical pain reliever. It does help tremendously but it's short lived. I also have a parrafin wax dip and once again, it's very short lived. I take Tylonel Arthritis and that helps. So I figured that if the things that I am trying is not working then it was time to up the game ya know?

Peety, the reason I asked if that contained any codeine is because I'm allergic to codeine. I also can't take Tramadol. Last time I took Vicodin is when I had my endometrial ablation and shortly after I had to be taken to the hospital for an adverse reaction to the medications but of course they gave me other narcotic meds in addition to the vicodin. So I don't know if it was the Vic that did it to me or the whole combo.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 12/19/2008 12:52 PM (GMT -6)   
Sherry...yes it does.
 
http://en.wikipedia.org/wiki/Hydrocodone
*Heather* Status..Asacol 6 (3 twice daily); enemas every 5th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate)....1 each  @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/19/2008 1:11 PM (GMT -6)   
Ohhhh well that explains that then eh Q? Thanks for the link!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 12/19/2008 9:55 PM (GMT -6)   
I will down 2mg of Ativan about 8-9PM....that seems to allow me to sleep well....without it, I am up all night watching tv.... I have had issues with sleep even without prednisone due to the insane stress my business blesses me with....
I have tried melatonin, Rozerem (picked that because their commercials are kind of a trip....Abe Lincoln, a space walker, and a beaver....hahahahah), tylenol PM, etc etc...nothing works for me as good as a few mg of Ativan....
34 yr old male. UC for 14 years. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!) "I poop in the woods because I can"


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/20/2008 7:45 AM (GMT -6)   
I love the Rozerem commericials! I haven't tried that one yet but I don't think my insurance would cover that anyway. Once when I was on Ambien, it eventually stopped working for me so the doc wrote me a script for Ambien CR and my insurance wouldn't cover it! I was sooo mad.

But anyway, I survived the first dose. I am bit a sensitive to steroids and last night I had the most awful leg cramps! Oh my lordy were they burning! I drank tons of water and that seemed to help. I also couldn't get my mind to focus on anything. LOL I was talking to my hubby and in a middle of a conversation I walked away. I didn't mean to but my mind went to other things and my body followed. My poor hubby had a look on his face like wah???
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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