Anyone with Ankylosing Spondylitis

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Gargamel
Regular Member


Date Joined Apr 2006
Total Posts : 172
   Posted 12/19/2008 9:11 AM (GMT -6)   
Does anyone here think they suffer from Ankylosing Spondylitis?

I have an aching, stiff feeling in my lower spine which radiates to my buttocks and thighs, I think its a sign of Ankylosing Spondylitis and probably related to the fact that my colitis has been active for so long.

What's the best way to treat such a condition?

G

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/19/2008 9:13 AM (GMT -6)   
You really need to get a proper diagnosis. This isn't something that is self-treated. A course of treatment will follow with the diagnosis.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 12/19/2008 11:28 AM (GMT -6)   
You need to be evaluated by a Rheumatolgist. They can help.
 


Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 601
   Posted 12/19/2008 8:46 PM (GMT -6)   
I have Ankylosing Spondylitis. Diagnosed when I was about 20 years old. Two of my brothers have it and three male cousins. It is more in my joints than spine. Usually is in women. My brother is practically bent in half.

I was diagnosed with Ulcerative Colitis when I was 32. I have had two major flares in the last six years and am experiencing a minor flare right now.

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 12/19/2008 10:38 PM (GMT -6)   
AS is fairly easily diagnosed. I have seen more people than you can shake a stick at with those symptoms, that didn't have AS too. Something that is good for it though is swimming. Simple blood test can pick it up, and depending on how far it is I could tell you in about 2 seconds by looking at your xray.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/20/2008 7:53 AM (GMT -6)   
Dr-A - the blood test isn't 100% accurate. I have talked to many of the people on the arthritis forum and many who have been diagnosed with AS didn't have the bloodwork to confirm. In fact their early symptoms were very mild and nothing showed up on xrays. Eventually as time went on, their AS became more advanced and then it was confirmed by xray but still was never present in the blood.

But I agree that in order to get a correct diagnosis, you need to see a rheumatologist. But being stiff and sore doesn't necessarily mean that its a sign of AS. It can be many things. I also have those symptoms but mine are mostly from my sciatic nerve and sacroiilitis.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
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Gargamel
Regular Member


Date Joined Apr 2006
Total Posts : 172
   Posted 12/20/2008 9:16 AM (GMT -6)   
Is it possible for conditions like Sacroiliitis and Ankylosing Spondylitis to disappear after a Colectomy or are they there for life whether the Colitis is in remission or not?

G

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/20/2008 1:59 PM (GMT -6)   
AS is there for life once you get it. I'm not sure if the progression slows down with remission or colectomies or not but you can ask in the arthritis forum for more info on it and the treatments. Or you can even google it to find more information. As for the sacroiilitis, this is not a common complaint of Uc but it can be an early indicator of AS. I find that when I flare, my sacro flares up too.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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