Left-sided colitis

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AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 12/19/2008 4:08 PM (GMT -6)   
I have severe left sided colitis that has put me in hospital several times this year but no longer have any inflamtion lower down sig area or rectum, in my latest colonoscpy the GI said my' tail- end' as he put it was completely clear,but 35cm down my left side were 'very nasty,'his words again,bad enough for him to offer me surgery again I d'ont use rectal meds any more,because I d'ont belive they make any difference,and I often thought they were making things worse, I'm still taking Azathrioprine,150mg a day,but not sure how effective it is for me.I have never had any urgency or diahrea, the worse for me is bleeding and a neauseating ripping feeling down my left side,and cramps bad smelling wind and bloating,anyone else similar to me,out there,I'm sure if I was rushing to the bathroom 20 times a day I'd be going for surgery but I just d'ont think I want go through it,while I can still function, abit also I have inflamatory polyps loads of them anyone else know if I should consider doing it cause of them,also is their an age limit on having a pouch Thanks

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/19/2008 8:39 PM (GMT -6)   

There's no age limit; I know a woman who had jpouch surgery when she was 69 years old.  Don't opt for surgery until you are ready.  Your recovery will be easier if it's something you bought into.  My UC was pretty much limited to the rectum but I couldn't get it under control and opted for surgery to get off prednisone.  I don't know about your polyps; that's probably a question for your GI/surgeon?  It might be that you are on a faster track to cancer (with the polyps) then the general UC population?  Don't take my word for it, ask the medical professionals.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/20/2008 8:05 AM (GMT -6)   
Have you ever tried Remicade yet? If not and you're not ready for surgery this is another option to try. Are you not able to take any 5-ASA's? I have left sided and I fair pretty well on Colazal which is ideal for left siders.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
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AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 12/20/2008 9:13 AM (GMT -6)   
The 5-ASA's did nothing for me I'm not sure what Colazal is Is it a form of 5-ASA,I have been offered Remicade but I have declined as yet for several reasons,I could still have it though,I supose what I was really asking was when is it ,you go for surgery,I know thats a decision only I can make,but it's so difficult,knowing wether to leave it untill I have no other options, like the last time I was in hospital, I had that Toxic -mega colon they wanted to do an emergency op,but I eventually responded to IV steriods and IV cyclosporin,it was such an awfull experience I don't want to repeat it,I would sooner opt for elective surgery and get my life back ie feel healthy again.
I still d'ont feel well now and am tired all the time,I just dont feel bad enough to be brave.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/20/2008 9:30 AM (GMT -6)   

Annelise,

Making the decision is the hardest decision to make.  Those of us who had elective surgery cogitated over the decision and vascillated back and forth.  You are not alone in ruminating over this.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 12/20/2008 9:01 PM (GMT -6)   
Colazal is a form of oral mesalamine (5-ASA) that 1st came on the market ca. 2002. It has been found to dissolve farther into the colon than Asacol or Pentasa-- so it is considered to be especially useful in treating left-sided UC. If your descending colon is the major problem area, it might help there; it does for me. Many gastros prescribe it in combination with oral immunosuppressants or Remicade; there are members writing here who have achieved remission via that combo therapy. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)
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