general question about Flares

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unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/19/2008 5:41 PM (GMT -6)   
I have a few general questions about flares. Since I am new to this. I know I'm askin alot of questions, but over time I may then have insight to give to others down the road.  This is my first incident. Symptoms started nov 2007. first diagnosis was spastic colon, when meds for that didn't work, they did a colonoscopy and found out it was UC. that was in aug of 2008. Now my question is how long do these flares normally last for you all?  From what I can read seems the first flare lasts the longest till they/you find what works. I was just wonderin about time frames. How long was Your first flare.... and How long are 2nd,3rd,4th etc flares?  How much time do you all get between flares?  I understand from what I've read it depends on our diet, our stress and everything.... but all things done right what are some time frames?
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 12/19/2008 7:15 PM (GMT -6)   
I don't feel there are "time frames" for flares. This is such in individualistic disease. What works for one may not work for the other. My first flare started last May, officially diagnosised in August, and am 95% healed. Some flare for a few weeks some for a few years. Hope this helps.

gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 12/19/2008 7:20 PM (GMT -6)   
My first "flare" started as c.diff and it took 3 months for it to finally get better.  I had 3 months of being healthy and then the c.diff returned.  My GI did a colonoscopy and diagnosed me with UC.  He put me on pred which worked within a few days and I was in remission for about a year.  After that first year, I bled every day for 2 years.  I finally tried 6MP which put me in a semi-remission (no bleeding) for a year.  I got c.diff again and have been bleeding every day for a year again!  During these years where I bleed every day, I have really good months where I feel great and only have a few BM's a day and then I'll have some bad weeks where I feel kind of flu like and have 6-8 BM's a day (the good weeks far out weigh the bad).  Since being diagnosed almost 5 years ago, I don't think I've ever gotten back to normal even when I'm not bleeding.  For the most part I live my life as normally as I can but traveling has been tough and I can't travel the way I used to.  My family has a summer home with only one bathroom so I haven't been there in over 2 years.  It's too stressful to try to share one bathroom with 6-10 people!

Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 12/19/2008 7:58 PM (GMT -6)   
My first flareup lasted about six months from September 2005 to March 2006.

My second flareup hit one year later and lasted about six months from September 2006 to March 2007.

I didn't have a flareup the following year.

My third flareup hit this year, again in September, 2008. I expect it will be in remission any day now. I didn't have any blood or mucus the last time I went.

Yes, there is a pattern here. All flareups began in September; two of them ended the following year in March. At first, I thought I might be allergic to something; so I got tested for both food and plant allergies. I don't have any. Now I think the reason might be due to the cold weather. I get stressed out and drink more high-fructose corn syrup teas when it's cold. My New Year resolution is to not drink any beverages with high-fructose corn syrup.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06

-------------------

Lexapro (for stress)
Probiotics (orally and up the but)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...


katkat
Regular Member


Date Joined Feb 2005
Total Posts : 239
   Posted 12/19/2008 8:05 PM (GMT -6)   
My first flare and c-diff, was about 4 months because it was helped with prednisone.
 
Second flare was about 6 months, again with prednisone but with flagyl. 
 
At the present moment, I am just on asacol and trying real hard to not go on prednisone.  The last time I had prednisone, I thought my heart was not going to stop beating so fast and hard, the insomnia was terrible and the mood swings too. Wow, that was really scary for me. 
 
I wish there were a natural cortisone supplement to take other than the pred.
44 yrs old, only 3rd experience with flare-up start oct29.08, Ont.Canada.
current: asacol 400 mg - 2 4x/day
                          
last flare in 2004 with c-diff, went into shock, hospitalized 2 wks, rec'd transfusion
prednisone, asacol, metronidazole
 
in 2000 rec'd antibiotics(sinuses),c-diff,ulcerative colitis 
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/19/2008 8:47 PM (GMT -6)   

There is no predicting flare length or how long to get in remission.  And it's certainly not true that the first flare is the worst.  My last flare was the worst and it lasted over 2 years.  That was after I had about 10 years of remission.  Most people who ended up with surgery did so because of their last flare, not their first.  There just isn't much known about the course of disease, unfortunately.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 12/19/2008 11:19 PM (GMT -6)   
Hi Sue,

Wow. That's really scary--to have been in remission for about 10 years only to have a huge flare and have to opt for j-pouch surgery. Was there anything that could have triggered that flare?
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06

-------------------

Lexapro (for stress)
Probiotics (orally and up the but)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 12/20/2008 5:32 AM (GMT -6)   
My first flare lasted 14 years. ..I didn't have very good doctors..
I'm in remission for the first time ever. I've been in remission since October.

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day Completely off as of 10/21/08. Took 2 years!
Imuran 150mg once a day


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/20/2008 10:17 AM (GMT -6)   
     First flare lasted about two months.  Every flare thereafter lasted two months also until this last flare which lasted seven months and was a real doozy.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/20/2008 10:34 AM (GMT -6)   

Joy,

No, there was nothing that I could ever determine that kicked off that flare or its severity.  In the 10 years of having UC I never experienced the sypmtoms of my last flare; vomiting, fevers, diarrhea, weight loss.  All my previous flares were based around constipation, mucus, and a bit of abdominal discomfort.  This last flare was a 180 turn.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/20/2008 11:10 AM (GMT -6)   
sounds like they are so varied there is no answer. Was just kinda curious is all. Have been in the first flare for over 14 months. Keep hopin it will end.
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten

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