Husband in hospital, hoping remicade works

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

newcrohnwife
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 12/19/2008 4:42 PM (GMT -6)   
My husband was admitted to the hospital last week because his uc was completely and totally out of control.  He had been having bloody stool and going 12-15 times a day for about 2 weeks.  He was loosing weight like crazy and couldn't keep food down.   He had his first remicade treatment about a week before he was admitted to the hospital.  He saw relief in symptoms for about 3 days and then eveything came back. 
 
The doctor gave him his second dose early while in the hospital (at the one week mark instead of the two week mark) and also upped the dosage hoping we would see lasting results.  He had that remicade treatment on Sunday.  For the first 3-4 days he saw decreased bleeding, urgency and pain.  However, the blood has reappeared and so has the pain (though it is much more sporadic).  I know that everyone is different and responds to the medicine differently, but has anyone seen a sort of affect like this where it goes back and forth between improvement and no improvement only to finally end up in remission?  I want to keep a positive attitude but at the same time I want to have an idea of whether or not we'll be looking towards surgery (which the doctor said would be his recommendation if remicade can't send him into remission. 
 
Thanks!

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 12/20/2008 11:03 AM (GMT -6)   
When I was first diagnosed, I was put on Asacol which sent me to the hospital. I was in the hospital for 25 days. My first week there I was given my first treament of Remicade. To make a long story short, I had my second dose of Remicade in the hospital, then let out. I was not really in remission, but not really flaring. Basically, I was a functioning person, and was able to eat a lot more than before I was in the hospital. Keep trying. I became allergic to the Remicade. but it did help my remission. There is also another step before considering surgery which is the drug called Humira. I'm on that and have been on that since May 2007. Boy! it helps!

Hope he gets out before Christmas!
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 12/20/2008 1:19 PM (GMT -6)   
My daughter just had her 4th infusion of Remi last Monday. It was a double dose( 10 mgs per kg), after the initial standard induction at 0-2-6 weeks. She has been inconsistent, and is not doing very well. The first does was magical, and the rest, less so. Back to bloody mucus, bad cramping and 6-10 stools per.
I don't know yet if this means it stopped working, or still needs more time for her body to get the full therapeutic affect. Guess some respond immediately and it appears that we are not those lucky ones. Not giving up yet though....
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednizone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazol ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortafoam enemas 4xweek
Trying probiotics, fish oil, and Mangosteen for kicks.
update:
Had 3rd infusion of Remicade, and still on all of the other drugs, except Flagyl and Pred. Better, not healed. In a drug trial for children. In an 'iffy' state-- on a flare's edge.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/20/2008 6:29 PM (GMT -6)   
I don't know anything about Remicade but just wanted to let you know I was thinking about you and hoping he gets better soon and that you can enjoy the holidays. So sorry you are going through all this.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 7:44 PM (GMT -6)
There are a total of 2,974,632 posts in 326,194 threads.
View Active Threads


Who's Online
This forum has 161293 registered members. Please welcome our newest member, Lymegone.
358 Guest(s), 4 Registered Member(s) are currently online.  Details
Alcie, BBN!!, nepol, Tall Allen