My daughter just had her 4th infusion of Remi last Monday. It was a double dose( 10 mgs per kg), after the initial standard induction at 0-2-6 weeks. She has been inconsistent, and is not doing very well. The first does was magical, and the rest, less so. Back to bloody mucus, bad cramping and 6-10 stools per.
I don't know yet if this means it stopped working, or still needs more time for her body to get the full therapeutic affect. Guess some respond immediately and it appears that we are not those lucky ones. Not giving up yet though....
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednizone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazol ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortafoam enemas 4xweek
Trying probiotics, fish oil, and Mangosteen for kicks.
Had 3rd infusion of Remicade, and still on all of the other drugs, except Flagyl and Pred. Better, not healed. In a drug trial for children. In an 'iffy' state-- on a flare's edge.