You're taking twice the amount of Colazal that's normally prescribed. That can't be good, at the very least it's a huge expense for you or your insurance company. Have you used any other meds besides steroids? Usually if you've tried all of the 5-ASA drugs (Asacol, Colazal, Pentasa) they try an immunosuppressant next - 6-MP or Imuran. Beyond that there is Remicade, Humira (still in final stage trials) and the various new study drugs.
You probably are due for a colonoscopy, but it would be better to wait until things are a bit under control, if possible. Remember, the scope is used to see what and where the problems are, not to treat them. It can also protect you from colon cancer by finding pre-cancerous lesions.
I agree that you need to get a second opinion from a qualified GI, and you may well want to consider changing doctors. Seems like yours isn't treating you aggressively enough. And it's unusual for someone to need a diet as restricted as you say yours is, so proper treatment might allow you more dietary options.
Good luck, and welcome to HealingWell.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.