Remicade Question for Loneylane (Carol)

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cra43
Regular Member


Date Joined May 2008
Total Posts : 172
   Posted 12/20/2008 11:02 AM (GMT -6)   
Hi  Carol,  Well my son had his second infusion with Remi yesterday...and again, it went without any problems.
He really doesn't see any change in bowel frequency, still has 5 to 6 movements in the morning, a couple during the day.  He gets up around 6:30 a.m.  to start this routine so he'll be done by the time he leaves for his job.
He isn't feeling any pain or seeing blood, just kinda loose. 
(I don't look,  I ask and he tells me blush .)
He hasn't noticed any difference since he quit the Asacol either.  Everything seems to be just like always.
 When did you start to notice a change?  You must have been on Remi about 4 years now??   Do you have what one would call, pretty normal bowel habits now?   I hate to get personal here, but you seem to be the only one that has similar traits as my son.  Trust me, I'm not some mother that hangs all over him with questions, but I notice this behavior cause he lives here.  I try to be nonchalant about it as not to bug him. When he's not here I do wipe everything down with the antibacterial wipes, and keep things as clean as I can.   He is a grown man, and should be out of here and have a life.  I just want to know, that eventually, the Remi will put him in a remission where he'll have more confidence.     So once again, thanks for any kinda reassurance. 
 

cra43
Regular Member


Date Joined May 2008
Total Posts : 172
   Posted 12/21/2008 3:51 PM (GMT -6)   
Carol,,, Sure hope you're not on vacation blush    or maybe you just haven't been on the web lately.
Just wondered how long it takes to feel or see results from Remi.  Anyone???

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/21/2008 4:47 PM (GMT -6)   
Hi, I've been on Remicade since June. It can take up to 5 infusions to see full results from Remi, so don't lose hope yet!
 
It took me 4 infusions and rectal meds to stop the bleeding and loose stools. I'm still not in remission like I was before this flare, but my GI thinks that it's because of IBS and not UC.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 12/21/2008 5:01 PM (GMT -6)   
I've been on Rem. since 2005, the results vary and are not that fast acting (the first ones), but give it a chance, it will kick in ;)
Male, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol® 2400 MG 2X daily, Rowasa® (when needed), 1MG Folic Acid, 35 MG Prednisone (tapering from 40MG), Remicade® 10mg/kg every 6 weeks, New Chapter® Only One, New Chapter® All-Flora Probiotics, New Chapter® Bone Strength Take Care, FutureProbiotics® Vegetarian Enzyme Complex 50+
Status: Recent flare, but getting better :) No urgency, no blood, good consistency :)


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 12/21/2008 7:02 PM (GMT -6)   
I started noticing a decrease in BMs after the 1st infusion but I was also on pred 60mg. By the 3rd infusion things were pretty good. 1 BM a day, formed but soft, no blood or urgency. Things were going great until end of August. Started flaring again. Back on pred and have had 2 infusions since then. Feeling better but I think it's due to the pred. I don't think Remi is working for me anymore.

31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks
Omega 3 supp, calcium supp, VSL 3
Prednisone 6mg (tapering 2mg every week)


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 12/21/2008 9:39 PM (GMT -6)   
Hi.  I think I started Remi around the same time as Lonelylane.  It can take 3-5 infusions to see a difference.  For me it took 3 till I  noticed the bathroom trips slowing down and around 5 till I started feeling somewhat normal.  Has your son tried any of the the rectal enemas?  I used Rowasa for months at the beginning of my Remicade and that is what helped me get into remission.  Now - I pretty much have normal bowel habits - or my new normal for UC.  Once in the am and again an hour or so later.  Then done for the day unless I eat too many fruits & vegies.
KTM


cra43
Regular Member


Date Joined May 2008
Total Posts : 172
   Posted 12/22/2008 12:07 PM (GMT -6)   
Hey, Thanks all you guys for your input. Now I know that we just have to be patient. My son was taking 6 Asacol and 3 6-MP a day and Prednisone when he saw a flare start. Now he is off the prednisone and Asacol but still takes the 6-MP. I told him to try the enemas but he just can't seem to do it. He has a "thing" about putting something "IN" his rectum :-) The doctor said that is pretty common with 40 year old guys. He has tried, but tenses up and he said,,,"No way, I just can't do this" He can't even put a suppository in.
I guess it is a mental thing. :-( To look at him, he looks the picture of health. Tall, good looking and great sense of humor. You have to have a sense of humor to deal with this disease he says. But, he still hates to go out much when he has to be looking for bathrooms.
I'm sure you all know what I mean.
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