Am so so thirsty....... Not sure what to drink!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

katkat
Regular Member


Date Joined Feb 2005
Total Posts : 239
   Posted 12/20/2008 12:39 PM (GMT -6)   
Does anyone else have this problem?  I am just so so thirsty, I feel like gulping down a glass of cold orange juice, that would be so delicious!  But alas, it is too acidic.
 
Does anyone have any suggestions or recipes to share?  I've just been drinking steam distilled water and maybe the odd 1/8 c. milk or if I feel really thirsty 1/8 c. flat ginger ale.  Or I'll have 1/4 apple juice watered down to 3/4 water.    
 
p.s. the smell of coffee is good, I occasionally stand around just to smell it!  I used to be a coffee hound before (oh yeah and I loved the beer now and then too). How sad is that!
44 yrs old, only 3rd experience with flare-up start oct29.08, Ont.Canada.
current: asacol 400 mg - 2 4x/day
                          
last flare in 2004 with c-diff, went into shock, hospitalized 2 wks, rec'd transfusion
prednisone, asacol, metronidazole
 
in 2000 rec'd antibiotics(sinuses),c-diff,ulcerative colitis 
 


Charlotte Gilman
Regular Member


Date Joined May 2008
Total Posts : 100
   Posted 12/20/2008 1:01 PM (GMT -6)   
I love orange juice watered down about half/half with water or seltzer and served over ice. It really cuts the acidity and is a much better thirst-quencher, because it's less sweet.

Are you doing prep for something or is there some other reason for why you're restricting your fluids so much? Distilled water is great for irons, but generally not good for humans.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/20/2008 1:02 PM (GMT -6)   

Try drinking Vitalyte, available at REI stores or online at www.vitalyte.com  It's a great beverage for dehydration and has more electrolytes than the commercial varieties.  It comes in several flavors all of which are subtle.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


katkat
Regular Member


Date Joined Feb 2005
Total Posts : 239
   Posted 12/20/2008 1:13 PM (GMT -6)   
Hi Charlotte, no, I'm not prepping for anything, I being overcautious on water perhaps. Too much? Should I switch back to regular water? I'm still trial and error on diet and drinks. Wow, I didn't know that distilled water is not good for humans. Thanks for letting me know that.

What do you think of these flavoured water, especially the ones that say they have vitamins in it? Any other suggestions would be must welcome.
44 yrs old, only 3rd experience with flare-up start oct29.08, Ont.Canada.
current: asacol 400 mg - 2 4x/day
                          
last flare in 2004 with c-diff, went into shock, hospitalized 2 wks, rec'd transfusion
prednisone, asacol, metronidazole
 
in 2000 rec'd antibiotics(sinuses),c-diff,ulcerative colitis 
 


Charlotte Gilman
Regular Member


Date Joined May 2008
Total Posts : 100
   Posted 12/20/2008 2:09 PM (GMT -6)   
To be fair, there's dispute on distilled water, with some in the "alternative" health community preferring it. But there is some good traditional-medicine evidence that its lack of trace minerals is bad for you, and it's no more likely to be microbe-free than tap water. Transporting it is also very bad for the environment, so unless you've got an unsafe local water supply, belly up to the tap!

I also like Vitalyte for electrolyte-replacement, and usually drink a couple glasses a day (I have a j-pouch, so have to be a little more scrupulous about staying hydrated).

I did go through a big flavored-water experiment phase, but lots of flavored waters contain either artificial sweeteners (which I try to avoid because I don't like the way they taste) or actual sugar (in which case they are closer to soda and Gatorade, which has way more sugar than you'd think). There are some "O" brand waters with just flavor and electrolytes, which aren't bad. I don't think the vitamins in the vitamin-enhanced ones make up for the sugar content, and some others contain "immune-enhancing" compounds that I was told to avoid because of their unknown effects on UC. And see the above re: environmental impact of transporting all this liquid around.

The bottom line is that unless something gives you symptoms, or you have liver disease and need to avoid alcohol, there's no demonstrated UC-related reason to reduce your consumption of any particular fluid. To the contrary, there's some association between UC and kidney stones (which are inversely associated with high fluid intake), and a definite association between IBD and osteoporosis (so if you can drink milk, it might not be a bad idea, though there are definitely other ways to get calcium and vitamin D).

I have one alcoholic drink a day and it has never had any impact on my symptoms (or on my liver-function tests, even when I was on Imuran). It bums me out to read about people restricting their lives more than is strictly necessary; there's so much this disease takes away as it is.

katkat
Regular Member


Date Joined Feb 2005
Total Posts : 239
   Posted 12/20/2008 2:44 PM (GMT -6)   
Charlotte & Suebear: Thank you so much for this information, it leaves me to now seek alternatives, how will I know if things work if I don't try it. I'm just being a big scaredy-cat! And for an alcoholic drink, what really?! that is good news. Mind you I've never tried to have a drink yet since my flare started. Yes, there is so much that this horrible *#&% disease does take away! I agree 110% with you on that!

I did try gatorade and it took me about a week to figure that one out, especially the red coloured ones. So no more.

As I mentioned earlier, it's trial and error for me, I am looking into vitamin D also, haven't tried it yet. I do have vitamin D pill supplement right now, but don't you also need vitamin K2 to help break down the vitamin D component in the pill. There is so much info out that I tend to get frustrated and have to leave it alone for a while. But I do drink a bit of milk now and then, as well as eat at least one or two activia yogourts (in most supermarkets).
44 yrs old, only 3rd experience with flare-up start oct29.08, Ont.Canada.
current: asacol 400 mg - 2 4x/day
                          
last flare in 2004 with c-diff, went into shock, hospitalized 2 wks, rec'd transfusion
prednisone, asacol, metronidazole
 
in 2000 rec'd antibiotics(sinuses),c-diff,ulcerative colitis 
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/20/2008 2:53 PM (GMT -6)   
depending on your body and diet..... Mine is a gluten free situation. And I used to LOVE my bud lite. LOL. Now I've found that heineken is basically gluten free... and so is captain morgan and ginger ale. MY doc actually told me the only reason to avoid alcohol was that it made some adults have the D. But since i was a steady drinker before, my body ahd probably adjusted to that problem. And he also said alcohol was a numbing agent. It might actually make my gut feel a little better ( in moderation) I have tried and I think, for me he is right. I can be running to bathroom all day, let me have one or two heinkens in the eve, or a capt and ginger ale... and my urgency stops. ANd is now worse the next day. I am careful not to indulge, but it makes social situation more enjoyable. And I love my beer, so....... Rest of the time I just drink water from the tap ( we have a natural spring that is our water source ) An occassional unsweetned ice tea. BUt mainly water. And I have noticed if I over do on the liquids one day, my D is so much worse the next, so I am careful.
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/20/2008 2:55 PM (GMT -6)   
oops.. just reread that I meant to say my D is NO worse the next day not NOW. Guess I should have proof read that before I posted. Sorry everyone.
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten


Charlotte Gilman
Regular Member


Date Joined May 2008
Total Posts : 100
   Posted 12/20/2008 2:57 PM (GMT -6)   
I don't know about vitamin K, but the most recent recommendation I've seen is that almost everyone north of Miami should be getting their vitamin D levels checked. It's common to absorb it badly if you have active bowel disease, and even some people without IBD need prescription supplements. I went to see an endocrinologist to talk about preventing osteoporosis when I was on prednisone, and she measured my D levels--they were really low, and I had to take 50,000 IUs a week for a while (in one Rx pill per week) in order to get them back up, followed by 2000 IU a day since then (which are available OTC here). (And that's in addition to the D in my calcium supplements!) There is just not enough sun up here--sigh! The blood test for D is cheap and easy.

I'd give the beer a try too, if it adds to your enjoyment of life.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/20/2008 3:24 PM (GMT -6)   
     Kat....have you been tested for diabetes?  Excessive thirst is a symptom.  Don't want to alarm you, but just have it checked.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 12/20/2008 4:23 PM (GMT -6)   
Hi Kat,

I'm predisposed for getting diabetes, and I also have issues with excessive thirst. Now that I'm not eating/drinking sugar, I'm not getting so thirsty anymore.

I drink Celestial Seasonings tension tamer caffeine free herbal tea. Not only does it contain many anti-inflammatory properties, it also has a naturally sweet favor. I don't feel the need to add sugar to it.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06

-------------------

Lexapro (for stress)
Probiotics (orally and up the but)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...


katkat
Regular Member


Date Joined Feb 2005
Total Posts : 239
   Posted 12/20/2008 5:52 PM (GMT -6)   
Wow, never thought of checking for diabetes! I am of that age I suppose.
It does sort of run in my family, my sister has type 2 taking pills only, not my mother or father, but my late grandparents, uncles had it. I will check it out. Thanks Guys. Don't worry, no alarm for me, compared to this ugly disease!
44 yrs old, only 3rd experience with flare-up start oct29.08, Ont.Canada. was 140lbs now 118
current: asacol 400 mg - 2 4x/day
                          
last flare in 2004 with c-diff, went into shock, hospitalized 2 wks, rec'd transfusion
prednisone, asacol, metronidazole
 
in 2000 rec'd antibiotics(sinuses),c-diff,ulcerative colitis 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/20/2008 7:07 PM (GMT -6)   
I like Propel, grape flavor is my favorite, it's easier to drink than plain water and has some vitamins besides.
But I agree, great thirst can be sign of diabetes, or other imbalances.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 12/20/2008 8:25 PM (GMT -6)   
While talking about orange juice: Minute Maid makes a "low acid" orange juice and I swear that I can drink it without problems in flares unlike the regular kind with acid. I never have problems with coffee really; when flaring I drink less brewed coffee, but prefer the instant coffee. I only drink one cup of full blown coffee a day, the rest is decaf and boy, I drink a lot and again, no problems with the coffee.
 
Just my 2 cents.
Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life since 8/2008, finally showing improvement!! riding a rollercoaster of improvement and worsening
 
Meds
10 x Asacol a day
40 30 25 20 15 10 5 mg Prednisone
75mg 6-MP
Align
Flintstones Complete Vitamins
Cortenema
Rowasa


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 12/20/2008 11:34 PM (GMT -6)   
I second the propel motion. I LOVE the kiwi-strawberry one. That's pretty much all I drank when I was flaring. What I drank never bothered much though (unless it had milk in it...oh boy). I hope you find something that suits you! :)
Sam
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/21/2008 12:06 AM (GMT -6)   
Have found that coffee upsets MY stomach. Not decaff, but reg. does. And this was just after I found a local surce for Dunkin donuts coffeee I could make at home. LOL. I had even bought a spoecial Perc coffe pot for it. I normally make coffee maker coffee, but on weekens I liked to put dunikin cofee in the perc pot on the grill or fire. WAY BETTER. Have found a decaff dunkn coffee blend. and going to try it next week on the fire ( can't risk it tommorow with xmas shoppin ) Hope its as good.
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/21/2008 12:57 AM (GMT -6)   
How about plain old water...helps flush toxins out of your system, it extreamly necessary for your intestines and our bodies need at least 8 full glasses/day.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/21/2008 1:24 AM (GMT -6)   
personally, I keep a half gallon jug of water in fridge jus for me... and it get finished everyday, I just watch how much liquid I take in. If I hit that jug to hard and have to refill it.... D is worse. If I don't empyty it... then I fel weeker. But that just me personally.... am sure we all have different needs. Seems that the biggest thing I have learned from this site, is that all out guts are different. LOL.
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 5:13 PM (GMT -6)
There are a total of 3,004,849 posts in 329,175 threads.
View Active Threads


Who's Online
This forum has 161749 registered members. Please welcome our newest member, bullit398.
236 Guest(s), 9 Registered Member(s) are currently online.  Details
SoMuchFun, Shueswim, imagardener2, Kent M., Hoagie, ceebs13, InTheShop, aec08, jwebb