Breastfeeding,Asocal,and enemas

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mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 12/20/2008 2:50 PM (GMT -6)   
Hi Everyone,
I have a two and a half month old who I have been Breastfeeding. I take Asocal 4 pills 3 x perday. I have been having a mild flare recently, so I started the steroid enemas as well. I was under the impression that taking the enema would be safe since it went into the other end. I thought that it could not pass through the breast milk. My babies doctor looked up Asocal and it had question mark by it but he gave me the okay for breastfeeding and I thought in my mind since Asocal is created with the hard shell so that it would pass through my intestines to the affected site that it did not absorb either, plus of course I had the doc's okay. But now I have been doing some research and am now wondering if it is okay for my baby. Some sites are saying both the enema and Asocal pass through breast milk and I am worried about my little guy. I have seen no side effects with the Asocal but I have notice that since starting the steroid enemas he has been fussier. I don't know if it is coincidence or not? I am definitely going to call my doctor first thing on Monday morning but I am wondering if anyone has had any experience with this?
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone Enema and Rowasa Enema rotating days for the next thirty days
Prenatal vitamins

Post Edited (mjw82704) : 12/20/2008 2:07:00 PM (GMT-7)


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 12/20/2008 3:10 PM (GMT -6)   
I take 12 pills a day of Asacol. I breastfed for 13 months and took the dose while pregnant. My daughter is fine, normal, very healthy. I was only on Entocort while pregnant and nursing (steroids). As far as I know everything is okay with my daughter. Long term effects? Don't know.
But it's either be healthy while on meds or flare. And flaring wouldn't be good for your nursing baby.

It could be a coincidence that he's become fussier as it is around this time that he will start to be more aware. I have no experience with this matter in particular. I agree, call your doctor. I don't think the enemas can travel around in the blood like other meds.

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day Completely off as of 10/21/08. Took 2 years!
Imuran 150mg once a day


Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 601
   Posted 12/20/2008 9:13 PM (GMT -6)   
How did you two make out being pregnant with UC?? I was just considering getting pregnant and now I am having another flare. Were you ok while pregnant? You can still take your meds? I would appreciate any input. I am 38 and will have to do it now if I am going to. The whole thing scares me a little because when I get sick I am very sick. Just wondering how pregnancy affects UC?

mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 12/20/2008 9:31 PM (GMT -6)   
I did very well while being pregnant! If I had known several years ago what I know now, I would have done it sooner. I took my Asocal (4X 3 per day) during the whole pregnancy which I was told was okay for my baby and so far from what I have seen with my healthy 2 and a half month old they were correct.I waited until I was not flaring but.....like I said I learned some things while I was pregnant like your immune system lowers during pregnancy because if it did not it would attack your baby. So a lower immune system is better for us UCers. I did not have a flare until the end of my pregnancy. It was very mild and occurred because my doc and I were experimenting with lowering my Asocal dose. My enemas were safe according to my doc so I used them during my flare. The flare went away. It has only been recently that I have been flaring a little bit and unfortunately these meds effect the baby differently with breastfeeding so that is why I am posting here. Good luck to you. You can get pregnant and be okay with UC. O yeah. My doc also told me that steroids for a flare were okay as well because it helps the baby's lungs develop. I am not sure if they meant through out the pregnancy or in little bursts. Find a doctor who will work with you. My husband and I did this before we conceived. Just have everything set-up. I switched a few GI specialists before I found the best one to work with.

Since I last posted my questions I called my pharmacist plus my babies doctor. I was told by the pharmacist very little, but the doctor told me that my baby is fine with my enemas during breast feeding and my little guy should be fine. I will call my specialist for more information on Monday but I still would like anyone's input on this if you have experience with it thank you.
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone Enema and Rowasa Enema rotating days for the next thirty days
Prenatal vitamins


*Jen*
Veteran Member


Date Joined Jul 2005
Total Posts : 514
   Posted 12/21/2008 1:12 AM (GMT -6)   
I have a 7 week old and am on 12 Asacol a day. I flared 4 weeks after giving birth and had to up the dose to 12. I also added in cortifoam this week to hopefully get my flare under control. I am breastfeeding exclusively(my son is intolerant to dairy and soy so he can't take any formula) and have not seen any ill effects to him from my meds. My GI specializes in UC and specifically pregnancy/UC(I'm in a study with her documenting my symptoms while pregnant and after) she said that the only effect for Asacol on the baby would be Diarrhea, which my son has not had. The steroids in the enema can cross over the breastmilk, but I think it is a very small amount and like Asia said you have to be healthy, otherwise you can't BF at all. I won't stay on the cortifoam for long, just need to get my flare under control and then I will switch to the Rowasa enemas for maintenance. I'm hopin that will be after next week as my flare is finally calming down.

As for the question about pregnancy. Everyone is different. With my first pregnancy, I was on NO meds(stupid back then and feeling so good I thought I didn't need them) I flared the worst flare I have ever had while 6 weeks pregnant and was sure I was going to lose the baby. I didn't. She is a happy and healthy 2 1/2 year old. I used hydrocortisone enemas for 2 weeks to get that flare under control and continued to use Rowasa enemas throughout my pregnancy. With this pregnancy I was on Asacol 6 pills a day for the entire pregnancy. I didn't flare, though the last trimester I had some blood/mucous, but my GI said it could have been from internal hemroids...I'm not sure as I didn't have pain or urgency so she could be right. Hormones play a huge part of my UC, so when I stop BFing this time around I am going to make sure I am using enemas every day for 2 weeks prior and stay on 12 Asacol to hopefully avoid a flare. If you have to take more severe drugs then the 5-ASA ones, I would talk to your doc before getting pregnant, but I know many woman do stay on stronger drugs and still have healthy babies. Good luck! Honestly it isn't easy flaring with a newborn(or anytime), but it is worth it because they are such amazing children! I have my two and I am done so I wouldn't want to be pregnant and BF with UC over and over again, but 2 was worth it for me.
Diagnosed: 
Officially Diagnosed with UC in June 2003.  Have had stomach issues since 1989.  Unknown if they are related or not.  Have mild/moderate UC.  Have had 4 flares, the last one caused by hormones from stopping breastfeeding.  Currently back in remission!  Only taking 6 Asacol a day.   Will take Rowasa enemas as needed. Colozal did not work for me.  Luckily my UC is relatively minor and responds well to meds, but man do those flares hurt!
 
 


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 12/21/2008 6:26 AM (GMT -6)   
My UC first started just before we became pregnant. I was on Asacol 1200mg bid my entire pregnancy along with 40mg Prednisone. I nursed for four months (then my son quit me b/c he needed more) with the same doeses, and he's fine...great, actually! He did have colic and GERD but we were assured by a children's hospital that his issues had nothing to do with mine. Once the pregnancy and nursing hormones were out of my system I became very ill, and have yet to get everything under control. We've been battling this go-round for 6 months. My pregnancy was high risk b/c of the medications, and we were closely monitored. The Prednisone added discomfort and he was born a month early, but overall we were both healthy. I am also assured by my GI that Remicade is safe for pregnancy, and my husband and I are looking forward to our next being without the Prednisone...but it looks like our situation will be different, as we are opting for surgery. So, my next pregnancy will be UC free! : )

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Mommy of a 1 year old and a wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.

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