Wow Boxermom...you are one LUCKY lady to be here and I will tell you why. I had a very good childhood friend who had Crohn's for over 20 years. She took herself off the prednisone too quickly about 12 yrs ago while flaring and developed Addison's Disease. I don't know how much medication she was taking but she did manage to keep down a full time job working in a bank...I have no idea how she managed that. A week before Christmas of 2005 I received a Christmas card from her and she said the Crohn's was not giving her a problem but she did have a terrible back ache. A week later I received a phone call from her daughter telling me she had passed away. Here, she had a kidney infection which was giving her the backache. By the time she went into the hospital she had sepsis and they couldn't save her.
I have UC and was twice hospitalized. I've been on 6MP for five years now but still get yearly flares and my white count is down to 2.6, so I am very concerned about my immune system. My GI doctor said he doesn't want it going down any lower....ya think? Last year he told me he didn't want it below 3.5! I cut the 6MP down to 50mgm. I have no experience with Lialda and my doctor never even mentioned it to me. He has pushed Remicade in the past by I was exposed to the TB virus years ago and simply refuse to take it.
Please take care.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!! Hope I don't jinx myself. Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks. Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.