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unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/21/2008 8:47 PM (GMT -6)   
Have a couple questions about immodium.  I tried it the other day just to function. Test ran it on a light day at work. It worked okay. Trired it again on sat while deer hunting. WOrked okay. tried it agin today while xmas shoppin. Worked okay.
My questions... is there danger here? my doc says I'm not toxic.  so it should be fine. I'm worried about it prolonging this flare? I took 1 this morning... 2 yesterday.  Whats my danger risk? 
And does this make you all VERY gassy?
What has been you all's experience with this drug?
Am still new to UC.... still in my intial flare and trying to figure out how to live with this disease. ( intial flare going on 15months)
( but getting better I think )
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 12/22/2008 1:41 AM (GMT -6)   
I would suggest not using Imodium every day. There is debate on how safe it is. The label even says not to use it if you have UC because there is a risk for mega colon. I woould save it for days that you REALLY need to function. Emergency situations. Since being diagnosed I haven't touched it. Pre-diagnosis I used it EVERY day. Usually four or five did me good. I loved it because it would clog me up and I wouldn't poop for days. Quite the positive experience given the alternative!

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day Completely off as of 10/21/08. Took 2 years!
Imuran 150mg once a day


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 12/22/2008 7:14 AM (GMT -6)   
I take it several times a week and it's a lifesaver. My only issue with it is that it sometimes kills my appetite and I have to force myself to eat. I don't think you have to worry about toxic megacolon unless you're flaring really bad and not pooping at all when you're on it. I take it when I need it and the next day my bowel function is right back to it's regular UC state (unfortunately..lol). It doesn't make me gassy or feel bloated. I sometimes worry that I'll become immune to it so I don't take it every day. I'm a SAHM and work from home so there are some days where I'm lucky enough to not have to leave my house so I don't take it on those days.
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/22/2008 7:40 AM (GMT -6)   
I tried immodium years ago and it left me feeling absolutely horrible! So I didn't touch it again. There was a time a couple years ago that I was having major D so I called my GI. He said to take 1 immodium a day for a couple of days. I didn't even attempt it because I remembered how it made me feel several years ago. I just wanted to say that my GI even said that occasional usage of immodium is safe for Uc'ers, but it shouldn't be used in high doses for long periods of time because it does raise the risk of toxic megacolon.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/22/2008 8:27 AM (GMT -6)   
I use it when I know I won't be able to or don't want to be using the restroom, like when I went to my company christmas party the other weekend. Usually I'll take two extra strength tablets and chase it with a shot of Pepto if I'm feeling really bad (which I typically am)... After that I don't go to the bathroom all night, though I do notice that the next morning it's all completely liquid and has a foul odor, like it's just been sitting in there rotting away and building up bacteria. So I kind of wonder if it's doing harm, but I don't know for sure. I just know it's nice to be able to enjoy certain activities without being in pain and locked in the bathroom all night.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 12/22/2008 10:18 AM (GMT -6)   
I have never had a problem with it. My GI said that as long as you aren't going over the daily amount and you are still having bowel movements it's fine. Do be careful though because if you are taking it a lot it could be masking symptoms. There's a huge debate about whether its good for UCers or not. I would go with whatever your GI tells you.
Sam
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 12/22/2008 12:04 PM (GMT -6)   

I believe the last poster said it - go by what your GI tells you - mostly because we all have different types of UC - different stages, places in the colon, etc.

I have taken Imodium for many years for IBS but only when needed and 1/2 tablet at a time.  My schedule usually is to have my usual one or two BM's early morning - take 1/2 Imodium and that takes care of anymore problems.  If staying home I try not to take it unless absolutely necessary.  My doc ok'd this and someone said - as long as you are not getting constipated you will not get toxic colon.  As for masking the symptoms - yes, I believe it could so we have to continue to treat our UC.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Close to remission -spoke too soon!
 
 
 
 
 
 
 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 12/22/2008 12:21 PM (GMT -6)   
Ive had luck with it in emergencies where I absolutely had to go somewhere w/o restroom access....however I find that it is a dam, and eventually the dam breaks...and when it does, it does it with force....basically I am in the bathroom that evening and the next day making up for lost time....
34 yr old male. UC for 14 years. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!) "I poop in the woods because I can"


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/22/2008 5:48 PM (GMT -6)   
I am grateful for it when I need it, but if I take one or two, then I feel crappy the next day because I bloat up but can't get anything to move on out! So I try to just get by with one/half in the morning when I'm having trouble with urgency. Then I am usually still able to unload by the end of the day or next morning. (TMI?)

So as long as I don't dam it up too long...it helps me get through periods of urgency.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/23/2008 9:24 AM (GMT -6)   
Sorry, I thought I had posted a response. It must not have come through for some reason. I use immodium when I need to and I always take 2 of the immodium advanced/multi symptom. It includes an anti-gas component. I always get out my regular bm's before popping them. I never get any cramping from it. I usually won't go at all the next day either (which is a welcome relief) and then will go normal the day after that. I wouldn't be afraid to try it. It helps SO much with the constant feeling that you have to go.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/23/2008 1:11 PM (GMT -6)   
May have to try the one with the anti-gas thing. Have just been using Generic immodium from rite aid and the gas has been bad. And as you all know, with UC its hard to trust a fart. LOL. So I end up still runnin for the bathroom and then Nothing but air. LOL It has worked for me though. I like the idea someone had of only takin for big important days. Am going to be home alot over the holidays, family coming in. So I will probably just go with out it and try takin it again next week. I wonder Does Gas X help stop this gas? Just really don't want to add another pill. lol
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 12/23/2008 4:29 PM (GMT -6)   

The only Imodium I foung with the antigas were chews and tasted so bad.  So, I buy the generic too and generic gas-x - works the same, I think.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Close to remission -spoke too soon!
 
 
 
 
 
 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/23/2008 4:43 PM (GMT -6)   
Imodium Multi-Symptom Relief is the anti-gas kind, they have non-chewable tablets. The regular Imodium are little green pills, and these ones are bigger white ones.

http://www.imodium.com/page.jhtml?id=imodium/include/2_3_1.inc

VIEW IMAGE


Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 12/23/2008 6:50 PM (GMT -6)   
Thanks! After buying the chewables that were so bad tasting I guess I never looked for any other. Sure my drugstore or Walmart has them. I will get some!
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Close to remission -spoke too soon!
 
 
 
 
 
 
 

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