Back from the doctor --- I told him no more Remicade. After 11 infusions and no help it is ridiculous to keep doing it especially since I am on 6mp AND prednisone. He agreed and said it was up to me. No kidding! I don't know how much more my body can take.
I have gained 15 pounds in 3 months ( since taking pred). Now I am about 70 lbs overweight. Yea!
I feel horribly- mouth sores, severe fatigue, severe anemia, rapid heartbeat, out of breath, and still going to bathroom 8-10 times a day. Granted the bleeding has diminished since the pred. but nevertheless, still diarrhea and urgency...
Ok- so here is my plan: I am tapering off the pred. completely off. I am staying on 6mp going up to 100 mg within next two weeks.
AND I am getting on the treadmill if it kills me and I only walk for half a mile.
Seeing the doc. late Jan. and then it is off to the surgerons for sure if I am still the same
Thanks for letting me vent- this is the only place where I am totally understood....
Pancolitis, DX October 06
Lexapro, colazal 3x3, Sythroid, Protonix, Flagyl
10 infusions of Remicade- doesn't work
back up to 30 mg of pred
Added 6MP- November 25th
Surgery almost certain