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notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 12/22/2008 5:14 PM (GMT -6)   
Do most people with UC & Chrons deal with Anemia? My GI said I have to start taking irons pills everyday. I am worried.

builttoride
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 12/22/2008 5:16 PM (GMT -6)   
I was, and still am if I don't take iron pills. I don't think it is really anything to worry about as long as your are treating it, just keep popping those pills and be amazed by your poo when it turns green or black!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 12/22/2008 5:20 PM (GMT -6)   
haha. You make me feel better. I hope my fatigue improves.

builttoride
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 12/22/2008 5:26 PM (GMT -6)   
I have to say that the effect on my fatigue wasn't all that great... you have to remember that if you are anything like me, your body is working overtime to fight colitis (even if it is fighting for no reason) and so this saps a lot of your energy.

for example, when I was told to go into hospital to go on a steroid drip a couple of months ago because my colitis wasn't improving with medication, I was horrified to find out that I had a slight temperature (which they said I had probably had for months) and a resting pulse of 120!!!

I used to have a resting pulse of 42 before I got sick, as I was a very sporty, fit early 20's yr old. so was a bit of a shock to hear my resting pulse rate was almost 3 times as high as it used to be a few years ago.

so just remember, that by your immune system fighting with your colon, you are expending a lot of energy due to potentially higher pulse rate, inflamation, temperature, and not to mention you might not be absorbing nearly as many neutrients as you used to... it all adds up and wears you out. I have been tired now for almost 3 years and I am so sick of it, that I'm contemplating surgery now.

Hopefully the iron supplements will help you, they certainly shouldn't do any harm!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 12/22/2008 5:35 PM (GMT -6)   
I have a high heart rate too. I am exhausted today and I have female issues that are going to drain me even more. Just in time for the holidays! Lucky me. devil
 
I hope you see some improvement soon. I know how frustrating and draining this is.
 
Even my dog is suffering from GI issues. I hope he doesn't end up with the craps too...

builttoride
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 12/22/2008 6:01 PM (GMT -6)   
Oh oh, the dreaded house of POOOOO!

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 12/22/2008 6:11 PM (GMT -6)   
I know when I'm feeling cold all the time then I probably need iron.
Slow-FE is time-release iron and easier on your gut, but it seems some doctors don't know about it so don't suggest it (no Rx needed).

That's how I found my Naturopath, a homepathic vet gave my cat accupuncture and probiotics for a "hot gut" that was causing her to pull her hair out and it worked so well I asked for a referral. I know my other cat gets a little colitis once in a while, too. Go figure.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 12/22/2008 7:54 PM (GMT -6)   
I just came up anemic again on my most recent blood work. Not sure why, since I've seen no bleeding and hemoccult tests were negative. Anyway, my GI started me on Tandem as an iron supplement. It isn't bothering my system as much as most iron supplements do; I'll see in January if it's helping with the anemia.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 12/23/2008 3:00 PM (GMT -6)   
Anemia is very common with IBDers and women are even more likely to have it because of blood loss through menstruation. If it's bad enough, ask your doc about I.V. iron infusions. You avoid the digestive upset some get with oral iron and it can really help the fatigue.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/23/2008 3:11 PM (GMT -6)   
The type of anemia that UCers most commonly get is "chronic illness anemia" which doesn't necessitate blood loss, I believe. I think it's related to fight the body has undertaken with the UC. I had to take iron when I was diagnosed and honestly didn't notice one way or another whether it helped or not.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Yujin
Regular Member


Date Joined Feb 2008
Total Posts : 55
   Posted 12/24/2008 12:57 AM (GMT -6)   
Im also anemic because of my UC. Im taking Iron supplement, When i started taking it, my bowel movement got worst. I go to the bathroom more often, and i experience stomach cramps and heart burn.. IS THIS NORMAL?
Diagnosed with UC on 2007. Undergone Fistulotomy on 2005. Taking Generic Asacol 400mg 3X a day... "HEALTH IS WEALTH"


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 12/24/2008 1:04 AM (GMT -6)   
I'm anemic too. It's one of the worst things I hate about having Colitis. Normally, I have tons of energy, but I loose so much blood when I have a flareup that I'm huffing and puffing in my dance, aerobics, ... classes. It makes me feel old.

It usually takes about a year to recover from the loss of blood, and then who knows I might get another flareup by then.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06

-------------------

Lexapro (for stress)
Probiotics (orally and up the but)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 12/24/2008 7:59 AM (GMT -6)   

I just started taking the iron but mine have been worse too. I purchased a different type of Iron online called "ultimate iron". People say it isn't as harsh on the stomach and it is better absorbed. I hope it helps.

Joy - I am exactly the same way. Short of breath and I feel incapable. I am not in remission so I don't know how much improvement I will see...

Yujin said...
Im also anemic because of my UC. Im taking Iron supplement, When i started taking it, my bowel movement got worst. I go to the bathroom more often, and i experience stomach cramps and heart burn.. IS THIS NORMAL?


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 12/24/2008 10:55 AM (GMT -6)   
Hi sicklygirl,

Thanks for the advise. I'll see if I can find some ultimate iron.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06

-------------------

Lexapro (for stress)
Probiotics (orally and up the but)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/24/2008 6:12 PM (GMT -6)   
     I'm not anemic.  My RBC is normal, however, my WBC is WAY too low.  This, I believe, is causing my fatigue.  Iron always constipated me.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 12/24/2008 7:20 PM (GMT -6)   
If your anemia is stubborn and the supps don't help, ask your GI about Venofer, it's an iron injection. Sometimes oral supplements don't get absorbed by our ulcerated colons. I had a series of five Venofer injections over five weeks this time last year and it worked wonders. I am in remission now so the iron in my multivitamin has been sufficient.

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!
12 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; 11/08/08; 12/20/98; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro

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