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mumbles
Regular Member


Date Joined Dec 2008
Total Posts : 199
   Posted 12/23/2008 4:58 AM (GMT -6)   
I went to two GI doctors and they both want me to go on 6MP. I don't think my colitis is bad enough that I need a drug that was used for cancer. I have about 3-5 loose stools a day. No blood. Some urgency. What would you do?
Asacol-2400 mg
Aloe vera gel-4 ounces twice daily
4 VSL#3
Canasa


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/23/2008 8:57 AM (GMT -6)   
?? The docs want you to start on 6mp with these mild of symptoms??? No that doesn't make sense unless you are steroid dependant. Have you ever tried Rowasa yet? Cortenemas? Cortifoam? If not, try to exhaust these options first before resorting to 6mp.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 12/23/2008 11:18 AM (GMT -6)   
I only went on 6mp when pretty much all other options were exhausted and I was in bad shape. I am not sure that I would go straight to 6mp with such mild symptoms.

Jackie, 43

Pancolitis, DX October 06

Lexapro, colazal 3x3, Sythroid, Protonix, Flagyl

10 infusions of Remicade- doesn't work
Severely anemic-

back up to 30 mg of pred
Added 6MP- November 25th
 
Surgery almost certain


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 12/23/2008 11:47 AM (GMT -6)   

I agree with the others, 6-MP is a harsh drug with potential serious side effects (I got very ill from it and it caused liver damage).  My symptoms were affecting my daily living plus i am steroid dependant so my doctor went the 6-MP route. 

Due to the liver problems i was taken off of it and put on Imuran, so far so good...if this doesnt work then its on to Remicade.

 

Good Luck.


First Diagnosed with Microscopic Colitis 10/07
Diagnosed with UC instead 3/2008
10mg Prednisone
75mg 6-MP
Calcium + Vit D
Probiotics
Entocort 9mg daily
800mg Asacol 3X daily
Bentyl
Lomotil
Dicyclomine
Prevacid
 


Limeycricketlover
Regular Member


Date Joined Oct 2008
Total Posts : 67
   Posted 12/23/2008 12:18 PM (GMT -6)   
Interesting question - are you still having the urgency and feeling that you have to have another poo straight after going to the bathroom - is it disrupting your social / work life? Am about to go onto the 6mp myself, after 4 months on pred and no remission.
UC - diagnosed Sep 2008 - awaiting colonoscopy to determine extent
Omeprazole 2 x 20mg
Prednisolone 15mg
Calcium (Adcal-D3) 1500mg
Mesalazine 8 x 500mg
Mesalazine foam enema
Multivitamins x 2
Omega 3


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/23/2008 1:44 PM (GMT -6)   
All drugs can be dangerous if you have an adverse reaction to them; 6MP is no more dangerous or more safe. It's actually proven to be safer than originally thought but that doesn't mean you need to be on it. The doses that are prescribed to UC patients are lower than those prescribed to cancer patients. I took it, side effect free, for 1.5 years. It didn't do a thing to lessen my UC but it also didn't give me any temporary or long term side effects. I do believe it's a much safer drug than prednisone and GIs usually will prescribe it if a patient is prednisone dependent.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


mumbles
Regular Member


Date Joined Dec 2008
Total Posts : 199
   Posted 12/23/2008 3:35 PM (GMT -6)   
It hasn't affected my life that much. Also, since I am so young, 19, I worry about taking 6MP for the rest of my life. I'm gonna probably go to a specialist dietitian, and work out a plan from there.
Asacol-2400 mg
Aloe vera gel-4 ounces twice daily
4 VSL#3
Canasa


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/23/2008 10:07 PM (GMT -6)   

Typically you would not stay on 6mp for life.  It's a drug used to get a patient in remission then about 5 years later the patient is taken off of it.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/24/2008 6:44 AM (GMT -6)   
Sue, my GI told me it would be a lifetime medication. It may have something to do with the severity, duration and extent of Uc that determines the length of usage.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/24/2008 9:11 AM (GMT -6)   

Sherry,

Back in 1999 when I was put on 6MP my GI stated that he only allows his patients to stay on it for a max of 5 years.  It's supposed to replace the prednisone.  After 5 years he puts his patients back on 5ASAs.  Protocol may have changed since the late 1990s hence your doctor's advice.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 12/25/2008 1:29 AM (GMT -6)   
i went on 6-MP 4 days ago. i already don't like it...i've had headaches daily and my body aches and i'm so tired...not sure if this is due to the new drug, but it's the only change i've made- timing seems too correlated to be a coincidence. but i've been having a pretty bad flare for 5 months now! pred worked for a bit then stopped...this is the longest flare i've had in years so i'm hoping the side effects of the 6-MP go away and start helping me get back on track soon!

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 12/25/2008 7:24 AM (GMT -6)   
Mtgman, yes it's the 6mp that is causing those symptoms. I had the exact same thing but luckily the side effects died down after about a month. But it helped even more when I started taking it at night, the fatigue got much better.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 12/25/2008 11:50 AM (GMT -6)   
Hi mumbles,

It's nice to hear that you're doing so well. I've been in remission since about a couple days ago, and your symptoms sound a bit like mine: No blood, slight urgency. My stools aren't loose, but they are still small. I'm not taking any drugs, except for the Lexapro, which doesn't hurt the body the way drugs for Colitis do.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06

-------------------

Lexapro (for stress)
Probiotics (orally and up the but)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 12/25/2008 4:06 PM (GMT -6)   
thanks Red!

Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 12/25/2008 9:18 PM (GMT -6)   
mtgman,

hang in there! I am on 6-MP since three weeks and I know these headaches and the tiredness. It's get better with the time. I get nauseous also once or twice a day for an hour or so, although I take the pill at 6 PM every evening, I am nauseous the next day, often around 1 PM. But it does get better after a while. I also have a nasty and itchy rash not only in my face, but it seems to spread all over my body. I will see a doctor about this next week. Make sure that you keep all lab appointments and get your blood work done to make sure that 6MP isn't harming your blood cell count, your liver and the pancreas!

Merry Christmas and give it some time, I know it is hard to deal with these dull headaches. YOU CAN DO IT!
Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life since 8/2008, finally showing improvement!! riding a rollercoaster of improvement and worsening
 
Meds
10 x Asacol a day
40 30 25 20 15 10 5 mg Prednisone
75mg 6-MP
Align
Flintstones Complete Vitamins
Cortenema
Rowasa


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 12/26/2008 12:35 AM (GMT -6)   
thanks Scarlett- i appreciate the info and the support!!!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 12/27/2008 2:10 AM (GMT -6)   
     Hi.  I was put on 6MP about five yrs ago.  It really hasn't kept me from getting yearly flares.  This past year was the worse flare ever in the ten years I have had UP.  It lasted seven months.  When I was admitted to the hospital my pancreatic enzyme levels were sky high and my GI doctor took me off the 6MP.  Five days later the levels returned to normal.  At my first doctor's appointment following hospitalization the doctor put me BACK on the 6MP but monitored my blood carefully.  The enzyme levels are normal but my white count has gone down to 2.6.  It has NEVER been this low and I am very concerned.  Doc said he just doesn't want it getting any lower...ya think?  Last yr when it was 3.5, he told me he didn't want it lower than THAT!  Well, I cut the 6MP down to 50 mgm one day and 25 the next to see if that white count doesn't improve.  Another thing...I was getting very fatigued.  Don't like that one bit.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 12/27/2008 4:33 PM (GMT -6)   

I have said this before, but so far, 6mp has been the magic pill for my son.  It took over 6 months to put him into full blown, wonderful, remission. I thank God every day.  He gets regular blood work done, and sometimes, he has a bit of nausea that passes quickly, but basically, we have our son back 100%.  He eats anything he wants, and is happy.   Did I say happy??!?Talk with your doctor, do your research, and then decide.  Don't do anything you are not comfortable with. I am just saying it works well here, and as far as future problems, I don't worry about that.  Being a parent of an 18 year old, brings enough worries.  Happy 2009!!


UC Mom
Son diagnosed 10, 2006 at age 15
6MP 100 mg. per day
Vitamin Supplements
Culturelle

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