Yeah, at least if I go the surgery route I will know I have tried almost everything, from all sorts of diets, to TCM, to all sorts of supplements and probiotics, to two types of worms and worm eggs (TSO and hookworm- the former helped but not enough for the sheer cost), and now to Remi. I may not have ticked off every possible box (Refaxamin might be worth a shot before going under the knife, maybe?), but it might take the second half of my lifetime to try every possible modality fully, and eventually we need to start enjoying life again. I think they may move up my next infusion a bit and/or try increasing the dose... we shall see.
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
15ish mg pred,
100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO,
boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie