Yes...Congrats with the pregnancy!!!!! My son is turning 1 very soon and I must say that no matter the complications with the pregnancy or issues afterward every second of being a Mommy is worth it!!
I was on 40mg prednisone my entire pregnancy. You may want to discuss staying on the higher dose with your doctor so you can prevent a flare. I agree that the possibility of having a flare during labor is not ideal. You should try to do what you can to get the UC under control for the time being. I know there are horrible side effects of having the prednisone for a long period of time (as I have experienced almost all of them), but again, it's worth not having a flare while caring for the baby. I hated having to let my son cry so I could run to the bathroom. I nursed too, and we remained on 40mg until we thought I was in remission...but alas...the pregnancy hormones were my secret warrior and I didn't know it. : ) My son quit nursing at 4 months b/c he needed more than I could offer, and I had almost gotten entirely off the prednisone...but once my body shed itself of the hormones a flare kicked up within a matter of days and I've been sick ever since. I almost wish I could just take pregnancy hormone injections. : ) So, back to 40mg I went and I just recently tried to taper after we started Remicade, but I'm stuck at 20mg and still not better.
As for the pregnancy, I did a lot of research regarding the prednisone and effects it could have on the baby. It's my understanding that portions of the medication do not pass to the baby...however, some women are given prednisone prior to an early delivery to help the child's lungs develop. My son decided it was time to join us a month early, and my body felt it was too early, so I was given pitocin and I agree that it was not something anyone should experience without a medication intervention. : ) I ended up having a c-section b/c of different complications that were not attributed to the UC. My son was born early and in perfect health. He's an amazing child that has constant wonderment and intrigue...he's the best!
I also was on 1200mg Asacol bid, but you could also discuss doubling the dose with your doctor as I am now on 2400mg bid...though I am not sure how the double dose is during pregnancy. I've noticed that some people take it three times a day in smaller doses. You do have a few options during pregnancy, but I feel that you should consider remaining on a higher dose of prednisone just to get you through it without a flare.
I also know the frustration of having a flare while trying to care for an infant. I hate that I've had to rely on the TV in my son's room as a babysitter for when I have to run to the bathroom. However, he has been extremely patient with me, and he has learned the sound of the flushing toilet meaning that Mommy returns...so sad. When you do have your baby and are home learning and adjusting, you are more than welcome to PM me with any questions or comments. I am still up in the middle of the night with my son, and still in a flare so I've been living with no sleep for a very long time. : )
The adjustment of having a baby is a big change in and of itself. Do you have a significant other? Just an FYI I'm studying to be a licensed counselor with an emphasis in marriage and family therapy...I've also just recently studied the effects chronic illness has on the family with young children and I have a lot of information that may help you cope with and accept your situation. : ) I learned that my husband and I struggled at certain times because we were going through some major changes, and everything we experienced was normal...a challenge...but normal.
Just know that every feeling, thought and question you have is normal. Also, please know that you are not alone and that the path you are currently traveling is a well traveled one by many of us. I have just joined this site myself in addition to j-pouch.org, as we are opting for surgery...and I feel the support and guidance I have recieved has been invaluable. I am so glad you are here and asking questions.
I hope you have had the happiest of holidays!!!
: ) Robin
Dx-May 2007 Asacol-2400mg bid Prednisone-20mg Remicade-4 Tx
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet! I appreciate the small things in life...the little joys that occur every second of every day. Though we struggle and have crazy complications, nothing can over ride our love and happiness.