Pro-Biotics???

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unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/29/2008 12:16 PM (GMT -6)   
When I was diagnosed back in aug 2008, my GI said taking pro-biotics was not a bad idea. So I went to GNC and bought what they had.  "Pro-Biotics Acidophilus 14 Billion good bacteria"  Since having found this site and reading the posts I now have questions.  I've never tried not taking these pills so I don't reaaly know if they are helping in my case or not.  But from my doc recomending them and all your positive posts I will keep taking them. 
My question now to you all is Am I taking the right one? Or a strong enough one?  I wil also ask this question of my doc when I see him in a couple weeks, but if you all have any insight for me I might make the change before then as he didn't specify which one to take. I take currently take one at lunch and one at bed.
I also have heard that some of these need to be kept refrigerated?  This would not be an option for me unless they could be taken together and at night.  THere is no refridge available during the day for me.  And I already take way to many morning pills.
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 12/29/2008 12:50 PM (GMT -6)   

Hi,

For me the probiotics do help.  I did not always take them and I have seen improvement since I starting taking them a few months ago.  Mine do have to be kept in the refrigerator.  I have never seen any that did not.  It is my understanding that they lose some effectiveness if they are left out at room temperature.  I take between 25-50 billion several times a week.  For a while I was taking them daily but now I take them about every other day.  My bottle instructions also suggest taking them without food - again to increase the effectiveness.  I take them before bed at night.  I am also on Lialda - which I take with food at lunch...  Hope this helps!


Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 12/29/2008 12:54 PM (GMT -6)   

Probiotics sold as nonrefrigerated, pill-form supplements may not contain enough active bacteria to be effective. Heat, oxygen and/or moisture may render many of these bacteria inactive. Anecdotal evidence cited on a Web site or package is not sufficient proof of effectiveness. Ideally, you want to find a product that has undergone testing by independent labs to prove viability and that has alot of positive consumer reviews.

An insulated lunch sack with a cold pack in it is sufficient to keep probiotics cool throughout the day if a fridge is unavailable.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 12/29/2008 1:01 PM (GMT -6)   
You can take your probiotics all at once, and time of day doesn't matter. I take 2 Primadophilus Reuteri daily in the morning (along with my other 10 assorted pills and capsules.) The P.R. contains lactobacillus acidophilus, l. reuteri and l. rhamnosus. I chose it partially because it also promotes vaginal health, which souldn't be an issue in your case.

I don't think there's any good data on which strains are best to take, or even whether we all need the same strains. There's been some testing done on VSL#3 which showed it to be effective, however of course it is dreadfully expensive. I found that the probiotics help with making my stools more solid. They also help protect us from c. diff overinfection, especially if we have to take antibiotics for anything. I'd say just keep taking what you're taking until you see your doc. See if he has any recommendations; if not, just experiment to see what seems to work for you.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 12/29/2008 3:29 PM (GMT -6)   
I take all mine before I go to bed. Less gas during the day.

There are Primal Defense Reuteri pearls..teeny tiny..lol!...I would take 2 daily rather than just one, however.

q
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 12/29/2008 7:02 PM (GMT -6)   
There are many non-refridge probiotic options out there. A good search engine will point you in the right direction. Jarrow and Nature's way seem to be the best brands I have come across to date. Take them at any time. However, don't take them with hot foods or beverages, antibiotics, or antibacterial herbs like garlic.

KNowledge is key when taking probiotics if you want to get the best bang for your buck and use them to their greatest efficiency.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 12/29/2008 10:35 PM (GMT -6)   
you don't need to take them anywhere unrefridgerated. Once a day is just fine.

If you are taking a probiotic that has only 1 strain - acidophilus I would recommend taking more beneficial strains. There were quite a few posts about these strains you can look them up.
Off of 5-ASA (6 years) and 1-day minor flareup since probiotics started.

Probiotics 18 strains (vsl#3 + N.F. Ultimate multi probiotic + Trophic Acidophilus Plus + Nature's Way P. Reuteri + Florastore S. Boulardii) - 500 billion per day. No sugar, Oatmeal in the morning.
L-glutamine, elm powder, vit b & folic acid, 5 g vitamin C, vit D, vit E, Calcium+Magnesium


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/30/2008 10:48 AM (GMT -6)   
Definately need to talk to someone about another strain then. Like I said not sure they are helping and I really didn't know to do any research on this subject back in aug when it was suggested I go on them. Am just now realizing from this site there are options here. Since GI appointment is a couple weeks a way, I guess I'll pick my pharmicists brain between now and then. See what he recommends and what they carry. The only health food store around here is GNC and they only carried the one I'm taking. And it seem none of you are taking this one and are taking alot more than 14 billion a day.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/30/2008 10:51 AM (GMT -6)   
Probiotics may help or they may not help. I had been taking probiotics for years, long before I was diagnosed with UC. To my knowledge they did not benefit my UC but I will never know for sure. It can't hurt to take them, I still do take them even though I no longer have a colon. But to think they might put you in remission or keep you from flaring again is putting too much emphasis on their efficacy.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/30/2008 10:56 AM (GMT -6)   
help or even a reduction in symptoms is acceptable to me right now. I seem to be improving with the meds and diet changes ( no gluten and spinach/sunflower seeds ) (am attributing improvements more to the diet changes ) Looking for ways to assist and speed up improvement process without triggering a relapse. Thats why I'm trying to get feedback and advice both from here and medical professionals.
I really do appreciate all the help I've recieved here and look forward to "giving back" when I'm more knowledgeable. Mainly right now all I can offer in return is support.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 12/30/2008 3:16 PM (GMT -6)   
Also consider the fact that you just lowered the pred...you might have "some" symptoms of relapse.

You should consider protiotics that also have rhamnosus and reuteri. Look into Flora brand. It needn't be too complicated..try another one and see if it improves.

Taking probiotics, supplements, etc is an up and down thing. We still will flare when we take them, but what it's doing "inside" is supporting as healthy and as balanced a colon and digestive tract as possible.

It's not all or nothing when dealing with UC...but it does take a while to get it all worked out and find out how it all works for us.

q
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/30/2008 5:22 PM (GMT -6)   
actually found what appears to be a multi- strain Probiotic at local rite aid.... THe pharm assistant is check into it for me. I should hope to have more info tomorrow. for about 5 dollars a month in takes me from 14 billion up to 200 billion plus adding other enzyemes... FOr the money it might be worth switchin.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 12/31/2008 1:45 AM (GMT -6)   
unclebubba said...
Definately need to talk to someone about another strain then. Like I said not sure they are helping and I really didn't know to do any research on this subject back in aug when it was suggested I go on them. Am just now realizing from this site there are options here. Since GI appointment is a couple weeks a way, I guess I'll pick my pharmicists brain between now and then. See what he recommends and what they carry. The only health food store around here is GNC and they only carried the one I'm taking. And it seem none of you are taking this one and are taking alot more than 14 billion a day.


So far these are the strains that Ive read about in connection with UC acidophilus, thermophilus, boulardii, plantarum, reuteri, rhamnosus, casei, bulgaricus and salivarius
Off of 5-ASA (6 years) and 1-day minor flareup since probiotics started.

Probiotics 18 strains (vsl#3 + N.F. Ultimate multi probiotic + Trophic Acidophilus Plus + Nature's Way P. Reuteri + Florastore S. Boulardii) - 500 billion per day. No sugar, Oatmeal in the morning.
L-glutamine, elm powder, vit b & folic acid, 5 g vitamin C, vit D, vit E, Calcium+Magnesium


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 12/31/2008 9:02 AM (GMT -6)   
     My nutritionist suggested Powerdolphilus by Country Life.  I order in over the net.  You can sometimes catch a sale.  I believe I paid either $8 or $12, for a bottle of 200.  I take two capsules a day and keep them refrigerated.  Each capsule contains lactobacilius rhamnosus..4.2 billion, lactobacilius acidophilus...3.6 billion, bifidobacterium lactis..3 billion and bifidobacterium longum..1.2 billion.  wow, what a mouthful!  In the hospital they gave me Flora Q but they are quite expensive. 
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 12/31/2008 12:47 PM (GMT -6)   
In my experience Bifidus and reuteri seem to have the most impact.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/31/2008 12:52 PM (GMT -6)   
Pharm tech who was supposed to get me info, turns out she got sick and called off today. LOL. Now I'll have to wait till friday to find out my info. Would just "buy it and try it" but seems I'm getting quite the little "failed drug" cabinet. LOL. What do we do with all this stuff that didn't work for us? Canasa supp's, Probiotics, and many many more. I keep putting them in a small tote in a bathroom closet out of the sunlight. Lot of money wrapped up in tha tote. Maybe I should use a fire safe. LOL. Have learned its easier and cheaper to ask questions either here or of a "medical Proff" before opening my wallet. LOL
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/2/2009 3:20 PM (GMT -6)   
Ingredient list on my current Pro-biotics.... any thoughts? is this a well rounded one? Or are these not pro-biotics. Maybe they are just fillers or other drugs? maybe some of you know?
name: Pro-Biotics Acidophilus
Ingred: Proprietary Probiotic Blend- 14 billion cfu's 1000 mg
Maltodextrin, Inulin, Lactobacillus acidophilus, Lactobacillus plantarum, Lactobaciluss rhamnosus, Lactobacillus casei, Lactobacillus paracasei, Lactbacillus salivarius, Bifidobacterum bifidum and Bifidobacterium longum.

Seem to me there are alot of different ones there, but I am still new to reading labels... so.. LOL
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 1/2/2009 3:40 PM (GMT -6)   
Hi..the maltodextrin could cause you some problems possibly regarding comfort? I have that in my probiotics...I take them at night before bedtime, whenever that is

The strains are perfect.

The inulin and maltodextrin is what the bacteria feed on helping to create the activity of the strains.

You could consider to take them before bedtime instead of during the day.

q


*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 1/2/2009 1:44:13 PM (GMT-7)

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