College Housing + UC Rant

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bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/30/2008 11:28 AM (GMT -6)   
So I took last semester off since I thought I was going to have surgery, but now I'm going back in a couple weeks. I'm registered with my campus's Disability Services so they can help me get a single room with private bathroom. Well, I check my room assignment and they put me with a roommate! Aren't they required to provide what I ask for since I have a medical need? Like you couldn't put a handicapped person in a non-handicapped room, right?
 
I called the Housing people and they said the person who handles this isn't available, so I'll have to wait until next week for it to be fixed. Who knows whether or not they'll even have single rooms available then? ARGH, I am so frustrated!


Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 10 mg Prozac, VSL #3
 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 12/30/2008 11:53 AM (GMT -6)   
The housing and financial aid departments used to get on my nerves. I used to get so sick of being told you need to talk to this person. And then that person, and that one. Its like they had some twisted form of musical chairs that usually spanned weeks at a time. It makes you wonder why they have so many people doing the same job but nothing seems to get done until you play their little games.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/30/2008 11:54 AM (GMT -6)   
Since you are coming in mid year it might be that there are no single rooms available and therefore you are put in a shared room. I think it's easier to secure this type of room in fall when everyone is new and rooms are plentiful. I hope you are able to secure a private room.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/30/2008 11:55 AM (GMT -6)   
Went back to school part time myself... Have been enjoying it and have been doing well in my classes, then this lovely disease hit. Am currently not going back this coming semester because my GI has been making remicade noises and didn't figure I needed to juggle a full time career, this disease, and remicade as well as classes. But I understand where you are coming from. Last semster when this flare was at its worst I checked into a close parking spot. Was told I qualified. But since I pull a small trailer for my daily job there was no place close to the building for me to park. Consequently I had to park almost a mile away from the building and any bathroom. Now you can understand this... I leave the house at 7:30, drive an hour to campus then walk a mile at 8:30 in the morning when all this "potty" trips are happening. I started carryin a backpack just to carry extra pants and underwear for when I finally made it to the building. Was quite embarrassing and decided I didn't want to have to put up with it again until I was in remission. My campus told me they would give me a handicap sticker but that would mean no trailer and no work then. Oh well.... ANd worst part of it wa the Have a proffessor lot that is a less than 40 yards to the building and It is neve even a third full and I couldn't park there.
So yeah I feel your pain.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 12/30/2008 12:11 PM (GMT -6)   
Actually I think now would be the best time to pick up a single room. Many kids drop out at semester. Where I went, in August there are no single rooms and they even have kids sleeping in the floor lounges! Then as things settle (kids dropout) there is plenty of room for everyone. I'd definitely stay on top of this; they should provide you with your demands. That is their only purpose--to serve students with disabilities.
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Multivitamin, fish oil, fiber supplement, Nature's Way Primadophilus Optima, Digestive Advantage Crohn's & Colitis


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 12/30/2008 9:24 PM (GMT -6)   
I shouldn't even matter what time of the year it is. Many kids transfer in and out during semesters. If you feel like they didn't make you a reasonable accommodation then chew their ***** out. If they don't attempt to make a reasonable accommodation they can get into a LOT of trouble. Even if they can't get you a single then at least a room near a toilet. That's what I'm doing for my upcoming semester. I was just talking to my mom and she said come Jan 1st the disability laws are being widened and it will cover more diseases and illnesses than ever so you've got the right to be mad. We were talking about your situation and even she is mad! lol I would call disability services and housing and get this straightened out. This is way more stress than you should have to deal with! Let us know how it goes!
Sam
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/30/2008 9:47 PM (GMT -6)   
I agree that this REALLY sucks but just so you know, I had roommates all through college and used the communal bathrooms and never had an issue. But, I know UC'rs tend to use rectal meds so that would be a lot more complicated. I never had to use those. If you get the single will you have your own bathroom too? At my school they didn't have those - even the singles had to use the communal bathroom. Although I did meet one guy who had a bathroom in his room so I guess 1 existed somewhere.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 12/30/2008 9:51 PM (GMT -6)   
Disability services is closed this week so I ended up calling the Assistant Director of housing. He said that when he made the housing assignment, he hadn't realized that I was on the disability list, so he just put me in a room. He said he'll change it by Friday, so we'll see how that goes.

I guess I shouldn't be surprised about this. At my school, the entire administration--whether it's housing, financial aid, parking, etc.--is completely incompetent.
 
The single room is actually a double room with a private bathroom, but since I have a medical reason I can pay a little extra and get that room for myself.
I don't want to explain to a roommate why I have to wake up at 7 to use the bathroom 5 times before my class at 9 or why I need to sleep so much or why I take so many pills. No one outside of my family knows about my UC, and I want to keep it that way.

Thanks for the replies!


Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 10 mg Prozac, VSL #3
 

Post Edited (ComedyDork) : 12/30/2008 8:01:42 PM (GMT-7)


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/30/2008 9:52 PM (GMT -6)   
I just don't think colleges are prepared for this kind of disease. The are prepared for the handicap stuff, but this one is takin them by suprise. From parking to single rooms. Hell, luckily I had an understanding prof last semester ( he had diverticulitis ) so I had no prob last semester IN CLASS, my probs all surface from getting to class. They just aren't prepared for this. Hopefully in time they will become so. We all know this is not your standard disease. It just #@%^$& sucks. LOL.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 12/30/2008 11:36 PM (GMT -6)   
I'm glad that they realized that you were on that lists. I hope it works out that you get that single room
Sam
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 12/31/2008 7:14 AM (GMT -6)   
I have disabilty services in campus too, they have helped me out a lot :)
Male, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol® 2400 MG 2X daily, Rowasa® (when needed), 1MG Folic Acid, 25 MG Prednisone (tapering from 40MG), Remicade® 10mg/kg every 6 weeks, New Chapter® Only One, New Chapter® All-Flora Probiotics, New Chapter® Bone Strength Take Care, FutureProbiotics® Vegetarian Enzyme Complex 50+
Status: Recent almost two month flare, but now in remission I believe... :) No urgency, no blood, good consistency :)


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 1/4/2009 12:18 PM (GMT -6)   
I ended up getting a single room with a private bathroom! It's on the other side of campus from my classes, but it's better than nothing.
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 10 mg Prozac, VSL #3
 

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