Need help Please!

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grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 12/30/2008 7:18 PM (GMT -6)   
I am from the crohns board but they thought I might get some answers over here. My husband is positive for lynch syndrome( we also have a daughter who is positive but doing well), which gives him an 82% chance of getting colon cancer. He has had 5 pre-cancerous pylops and from the biopsies they have also said that he has colitis. After seeing 2 gastros an a colorectal surgeon in Rochester they feel my husband should have his colon removed. They will be doing the surgery laperscopic and will taking the colon out and bringing the small intestine down and attaching it to the rectum. He really wants to know what his bowel movements will be like after surgery. Will they be loose, frequency and is there an urgency after this kind of surgery. I know the  surgeon could probably answer these questions but we do not see him again for a little over a month and I was hoping to be able to help find out what things will be like for him. Any help you could give would be great.
thank you. donna

jujub
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Date Joined Mar 2003
Total Posts : 10407
   Posted 12/30/2008 11:10 PM (GMT -6)   
Grammy, you may want to visit the ostomy forum here at HealingWell. I saw this being discussed there recently. Most of us here still have our colons, although we have a few post-op members.
Judy
 
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RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 12/30/2008 11:25 PM (GMT -6)   
I have joined the j-pouch.org site, as I will be having that same surgery some time soon. I highly recommend you check them out and ask this same question, as practically everyone there has had that same procedure.

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.


Charlotte Gilman
Regular Member


Date Joined May 2008
Total Posts : 100
   Posted 12/31/2008 12:40 AM (GMT -6)   
If they are talking about doing a straight ileorectal anastomosis or IRA (just attaching the small intestine to a tiny band of rectal tissue, with no j-pouch), the word on j-pouch.org (from people who show up there after having IRAs and needing revisions, but also from the RN who posts there) is that it tends not to work out well in adults. Kids can sometimes adapt to it better. Adults seem to do much, much better with the j-pouch than with the IRA. If the surgeon is talking about doing an IRA, I would see a second surgeon who has expertise in j-pouches before going ahead with it.

Are you in Rochester, NY or Rochester, MN?

grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 12/31/2008 7:45 AM (GMT -6)   

charlotte,

Thank you for your reply, we are in Rochester, New York. We are seeing the chief of the colorectal dept(this Dr. has studyed in Rochester MN at the mayo clinic). He said they have will be leaving the entire rectum and that they have had great sucess with this method . My husband is not a candidate for the j-pouch. I will look on the ostomy board and j-pouch.org and see if anything aplies over there. Thank you so much for your time.

best of health toyou.

donna

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