Rectal Meds......

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Ontario_Girl
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 12/30/2008 11:52 PM (GMT -6)   
Hello all....

I have my first appointment with my new GI specialist in two weeks, since being diagnosed with Proctitis 4 years ago...

Stuck to the Asacol tablets, but in the middle of bad flare that has lastest the longest so far...(since August this year). Am thinking that I need to push for more rectal meds to attack this thing from both ends..!

I know nothing about rectal meds, other than that the Pentasa suppositories that I have a few off don't seem to do much

....Im in Canada.....does anyone reccommed any rectal meds other than that? sorry to be vague...but I know nothing! :-)
Female
Diagnosed with UC in 2003 (aged 24)
Asacol 6-8 oral tabs daily
Pentasa Suppositories
Flora-Smart Extra Strength Probiotics
Green Tea
Attempting low gluten....but struggling! Also love too much sugar..


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/30/2008 11:54 PM (GMT -6)   
Cortifoam works well for many and is much easier to use than retention enemas...hang in there this flair will pass!
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


Ontario_Girl
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 12/31/2008 12:06 AM (GMT -6)   
Thanks bbc! (cool username by the way!)

Cortifoam...I will make a note of that! I know some people flare for ages, but it's been 5 months now and I'm fed up already!

Happy New Year, by the way!
Female
Diagnosed with UC in 2003 (aged 24)
Asacol 6-8 oral tabs daily
Pentasa Suppositories
Flora-Smart Extra Strength Probiotics
Green Tea
Attempting low gluten....but struggling! Also love too much sugar..


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 12/31/2008 12:18 AM (GMT -6)   

You are in Canada, right?

I had great success with Entocort rentention enemas. Unfortunately you cannot get them in the US, but I used them while I was living in Germany. They are available there and I always had relief within two applications. You get a bottle of purified water, toss a tablet in it and shake until the tablet is dissolved. Great great stuff! I wish the Entocort enemas were available in the US. These are steroid enemas, mind you! I used them for years with no ill effects or side effects at all.


Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life from 8/2008 until mid 12/2008 - bye bye flare! Was about friggin' time ...
 
Meds
6 x Asacol a day
0 mg Prednisone (stopped Dec 14, 2008)
75mg 6-MP (started Dec 1, 2008)
Align
Flintstones Complete Vitamins


Ontario_Girl
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 12/31/2008 12:31 AM (GMT -6)   
Hi Scarlet504,

Yep, in Canada...Is Entocort the stuff you have to 'retain' inside you for at least 30 minutes? I've heard people on this forum say it's quite difficult! But I'm willing to try anything....

Actually, I was wondering if I could buy an enema type thing in a pharmacy somewhere....feel like I could do with a cleansing! Sorry if thats too much info! ;-)
Female
Diagnosed with UC in 2003 (aged 24)
Asacol 6-8 oral tabs daily
Pentasa Suppositories
Flora-Smart Extra Strength Probiotics
Green Tea
Attempting low gluten....but struggling! Also love too much sugar..


Ontario_Girl
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 12/31/2008 12:33 AM (GMT -6)   
Oh, also Scarlet....I notice you had your flare stary in August of this year too...like me! I've heard some people say they get flares at certain times of the year...August/September time is quite common apparently! Just an observation.. night night!
Female
Diagnosed with UC in 2003 (aged 24)
Asacol 6-8 oral tabs daily
Pentasa Suppositories
Flora-Smart Extra Strength Probiotics
Green Tea
Attempting low gluten....but struggling! Also love too much sugar..


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 12/31/2008 1:04 AM (GMT -6)   
Salofalk retention enemas is what you should ask for initially. They're not that hard to retain for many, but some have difficulty.

I would suggest you stick with the 5ASA meds initially, and maybe use a steroid one later for a booster if you need it.

q
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/31/2008 1:19 AM (GMT -6)   
Go for the cortifoam, I've always had the best response to it and being a foam there is no leaking or worrying about retention.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 12/31/2008 7:36 AM (GMT -6)   
     I have UP too and take the Cort enemas.  Right now I am in remission but the other day I had four bowel movements....not diarrhea or bloody, but "felt" something amiss.  After ten years you get to know your butt personally with this disease.  Anyway, I started back on the Cort enemas but also take Colazal.  GI doctor prefers Colazal instead of Asacol for patients with UP.  Seems like they treat the colitis which is "further down".
     Interesting that certain meds are not available in the US.  No wonder Farrah Faucett went to Germany for treatment of her rectal cancer.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 12/31/2008 8:35 AM (GMT -6)   
I used the cortenemas too, (hydrocortisone enema). They are real think so easier to retain. No experience with the others except the rowasa. Thinner harder to retain them. Used just about every other homemade type also.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/31/2008 10:08 AM (GMT -6)   
Thanks and Happy New Year to you too!
Ontario_Girl said...
Thanks bbc! (cool username by the way!)

Cortifoam...I will make a note of that! I know some people flare for ages, but it's been 5 months now and I'm fed up already!

Happy New Year, by the way!


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4192
   Posted 12/31/2008 3:02 PM (GMT -6)   
Mesalamine retention enemas is what I would try first. They have helped me many times. I think they're called Salofalk in Canada. They are called Rowasa in the US. It's the same medicine as the Asacol, but in butt-med form. =) Good luck and let us know what you and your GI decide to try.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops

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