Happy New Year!
Last week I switched GI's to Dr. Chiefetz at Beth Israel in Boston. I explained to him that since weening off the prednisone in August...I am still bleeding. I was taking 12 asacol pills, canasa 2x a day and hydrocort enema since. He was SHOCKED and concerned that with all those meds I still was sick. He also was AGAINST me being on the steriod enemas. He said it was like taking 10mgs of prednisone and he quickly instructed me to ween off of them.
As u can see from my siggy...I have procitis. I have been basically flaring since January. Maybe had a month of remission after being hospitalized and then on a high dose of pred.
Because I am currently trying to get pregnant (another failed IVF cycle/miscarriage in September) and my frozen cycle in November failed....I am still hesitant to go on 6MP. I did schedule an appt with a high risk OB to learn about 6MP and pregnancy. In the meantime, my new dr. told me stop taking asacol and has switched me to sulfasalzine. He ultimately wants me to take 4 pills 2x a day. I am slowly working my way up there. I am 2pills 2x a day. I have suddenly become rather naseous/sick and have a loss of appeptite.
for folks on this med....
is this a common side effect? did you lose weight from this drug?
has it helped you after you might of had no luck with the other 5-ASA meds?
when do you take your folic acid since you have to space it apart?
how long did it take to start working?
For others that might be reading this...I am still shocked about the enema situation. This GI was totally AGAINST long term steriod use. My other GI had no problem with it. ????
THANK YOU FOR YOUR ADVICE AND HELP!
ulcerative proctitis - march 05 diagnosed
current status - trying to see what works - still bleeding!!!!!
hospitalized - 3/08 for 6 days of IV steriods
colazal - 9 pills asacol - 12 pills, canasa 2x per day, nightly hydrocortisone enemas
VSL#3 Primal Defense Ultra Probiotic (2x per day)
fish oil, flaxseed oil, calcium w/ vitamin d 2x a day, prenatal vitamin plus extra vitamin c and b12 complex