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stewdoug25
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 12/31/2008 9:42 AM (GMT -6)   
Lately I've been having back pain and pain in my knee joints as well. Is this normal based on the medication I am on? I am only 25, and find it hard to believe this is normal for someone my age.
25, Diagnosed with ulcerative proctitis 7/2006
Current Treatment: Asacol (3pills 2X/day), Rowasa, Prednisone (currently on 5mg, tapering from 40mg since September 2008), Imuran 50mg, Ultimate Flora probiotics, digestive enzymes
Status: Worst flare so far, since August
First colonoscopy coming up on Monday....nervous!


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/31/2008 9:59 AM (GMT -6)   

This is most likely caused by your pred withdrawl.  Be sure to inform your GI at the next appt.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/31/2008 12:13 PM (GMT -6)   
It could easily be the extra intestinal manifestations that go along with having an IBD (either crohn's or UC), it does suck to have those issues (let alone this disease) at a young age, but try exercising, yoga, pilates, aquasizing anything to keep your joints moving because it's know that even light exercise can help tons and you want to do what you can to avoid it getting worse, especially if it's not med related but instead one of the intestinal manifestations from having IBD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 12/31/2008 12:23 PM (GMT -6)   
Could also be the Imuran. A friend of mine can NO longer use it because she ended up in so much pain she couldn't even walk.

q
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


DancrAlwaz
Regular Member


Date Joined Dec 2008
Total Posts : 38
   Posted 12/31/2008 12:27 PM (GMT -6)   
I've been having severe back pain for about a month now. I have an emergency appointment with my GI on Friday to discuss it, I'll try and remember to come back here and let you know what he says.

I'm on 40 mg of Pred, I think that has something to do with it.
Rachael - 24 years old, diagnosed with CD in Dec. of 2004.

Currently on 40 mg of Prednisone, 2.4mg Lialda, and 100mg Azathioprine.

I thank God every day for an amazing support network of family, my boyfriend who has been there since the beginning, and my friends who never waver.


stewdoug25
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 12/31/2008 12:37 PM (GMT -6)   
quincy - how long was your friend on Imuran before the starting having such bad pain? I've only been on it for two weeks now....kind of crazy that it could effect me so quickly....but maybe not!


dancr - definately keep my posted if you can remember, since it seems we've got a similar med situation going on.
25, Diagnosed with ulcerative proctitis 7/2006
Current Treatment: Asacol (3pills 2X/day), Rowasa, Prednisone (currently on 5mg, tapering from 40mg since September 2008), Imuran 50mg, Ultimate Flora probiotics, digestive enzymes
Status: Worst flare so far, since August
First colonoscopy coming up on Monday....nervous!


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 12/31/2008 12:42 PM (GMT -6)   
Could be the pred taper or a form of joint disease associated with intestinal disease called enteropathic arthropathy. Fortunately IBD arthritis is not permanently damaging, can move from joint to joint, and usually accompanies flares. Often when the flare subsides, so does the arthritis.

Sometimes my knees, already battered from high school and college sports, take a beating during flares. I usually take minimal doses of tylenol to help with the discomfort. It goes away after the flare.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


stewdoug25
New Member


Date Joined Oct 2008
Total Posts : 19
   Posted 12/31/2008 2:06 PM (GMT -6)   
I also danced most of my younger life, so maybe that, combined with this horrible flare may be causing my joint pains.
25, Diagnosed with ulcerative proctitis 7/2006
Current Treatment: Asacol (3pills 2X/day), Rowasa, Prednisone (currently on 5mg, tapering from 40mg since September 2008), Imuran 50mg, Ultimate Flora probiotics, digestive enzymes
Status: Worst flare so far, since August
First colonoscopy coming up on Monday....nervous!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 12/31/2008 8:20 PM (GMT -6)   
She got progressively worse over a period of weeks...had to totally discontinue it. A few years before that, she got nerve damage on the bottoms of her feet....so, that's two meds that she cannot take for CD.

She, however, takes Remicade irregularly...but methotrexate regularly as well as Asacol.

Definitely get yourself checked out because it could be autoimmune related or degenerative. Best to know just in case there's something else going on.

I can relate to leg/knee/body pains...had them all my life, but never to the point that something really showed on an x-ray to warrant the pain I was in.

At least it hasn't progressed to the point of no return for me as of yet.

You could consider a digestive enzyme called Bromelain or another called Zymactive. It's supposed to help with inflammation in joints. I did use them for a while and noticed certain pains ceased, others didn't.

I'm not consistent with them.

I do, however, get some relief from Robaxin.

Let us know the outcome.

quincy
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


UC_Dad
Regular Member


Date Joined Nov 2008
Total Posts : 33
   Posted 1/1/2009 2:43 PM (GMT -6)   
I too seem to be sore most of the time from all my joints, shoulders, knees, elbows and hips. My lower to middle back has no strength. I to have been wondering if its from my meds as many warnings indicate joint pain. My GI is informed and is hoping that my symptoms of pain reduce by my next appt on the 10th. His first thought for my back pain was that I was strained during my BM's, but I know better than that. Well see. Good luck with your pain and hopefully it subsides.

Dx'd June 08 severe UC
30 yrs old
Meds
Asacol 400mg x 9
Prednisone 40mg tapering off now
6-mp 100mg
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/1/2009 9:38 PM (GMT -6)   
Wondering if our pains aren't gout related? I used to get gout real bad. Since I've been on the pred I have been gout free. Worried if I will get a gout attack as I am tapering. Normal meds for gout can't be taken with UC. Ibuprofen, colchezine. All are bad for our guts. And We have some stricts diets that could be causing the uric acid build up. Only natural remedies I found for gout ( and all inflamation ) was sunflower seeds and cherries or cherry juice. And these work. WHen I would have a bad gout attack, thats all I would eat and drink for a day, maybe two. and it would knock it right out of my joint. Thats one of the reasons I I started the spinach/sunflower seed diet. It made sense to me with my past experience with gout. Haven't tried adding cherries or cherry juice to this diet. It might help the inflamation in my colon also. Might be worth trying and adding to my new "diet"
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08

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