I am losing way too much weight!!!

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bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/31/2008 11:21 AM (GMT -6)   
I have lost 15 lbs in the last 30 days (only weigh 147 now from 162) and would catagorize my current flair as mild-moderate. I started taking Boost Plus twice a day per my GI about a week and a half ago in addition to my regular diet but today I lost yet another pound : (.
 
I would appreciate ways to increase my weight when flarring, or is it just impossible?
 
Thanks.


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

Post Edited (bbc) : 12/31/2008 10:08:12 AM (GMT-7)


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/31/2008 12:16 PM (GMT -6)   
I lost 41 pounds from feb 2007 til nov 2008. I went from 220 down to 179. From first of nov till now I have been wavering between 179 and 184. I seem to be holding my own now. But then again I'm on Pred and it seems to do that to me. Have been on it in the past for various other things and I always seem to lose weight on it. I think its the increased energy and insomnia. I would like to be around 185 to 190. Am hopin as I taper off the pred to be able to hold my weight there instead of going back to the 220.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


quincy
Elite Member


Date Joined May 2003
Total Posts : 30972
   Posted 12/31/2008 12:21 PM (GMT -6)   
bbc...are you male or female?

Drop your cardio to more of a mild exercise...increase the weights possibly so that you don't loose too much from that.

Have you had your thyroid checked to make sure it's not too high?

q
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 12/31/2008 12:30 PM (GMT -6)   
High metabolic rates speed weight loss during flares. I'm in the same boat. You most likely have a high base metabolic rate and the malabsorbtion of nutrients from the flare is keeping your body from getting what it needs to support itself. It cannibalizes (atrophy) itself for the nutrients it is lacking. I go through it almost every flare. Sometimes faster and sometimes slower, but I still lose weight. It comes back after the flare rather rapidly.

I have only been able to slow the weight loss. I drop my heavy workouts in favor of mild cardio- just enough to stimulate circulation. Eat comfort foods from your food diary often thru the day in small but frequent meals. Take a digestive enzyme after every solid thing you put in your mouth to enhance digestion and facilitation of nutrients. Remember, its not how much you eat, but what you absorb. Lactose-free milk and protein shakes have helped me tremendously if you can handle them. Essential amino acids in the form of liquid or powder also help. Lots of good clean water. Add a little salt substitute, lemon juice and honey to a glass of luke warm H2O for a poor man's pedialyte.

You and your doc should montitor the weight loss carefully, the more malnourished and dehydrated your body becomes it gets more difficult for it to heal itself and self-regulate. The weight will come back after the storm.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/31/2008 12:42 PM (GMT -6)   
Could you be dehydrated also? When I'm flaring a lot of the weight I lose ends up being just water weight as I get really dehydrated. If you try to up your fluid intake as well that may help a bit.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/31/2008 2:14 PM (GMT -6)   
Hi all..I'll answer each of your questions/comments:

I am a male 5'9" and normally weigh about 162...i'm down to 146 this a.m. and that's after two weeks of Boost Plus (they're 350 calories each and I'm taking 2 a day plus eating normally)

I have been taking digestive enzymes (Digest Gold) for quite sometime now but don't always take it with every bite of solid food but I will now.

I do drink alot but now that I am making smoothies with the Boost my fluid intake has also gone up from all the extra ice in them.

I either swim or go on the treadmill most everyday.

I do eat quite a bit as my appetite never suffered.

I have never been on pred and I refuse to take it but I understand from many that pred helps them to gain weight, so unclebuba I'm not sure why you are not experiencing the same.

UC warrior, how were you able to get into remission med free and was your IBD diagnosed through pathology?

Thanks again all, I look forward to your continued comments and happy new year. : )
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 12/31/2008 3:07 PM (GMT -6)   
In 1995 my doc scoped me after I passed the stool pathology tests. He said I had severe ulcerations running up the left side and hooking over to the transverse a bit. He sent me back to spring semester with 16 pentasa/day,40 mg pred, donnitrol, and some other crap I still to this day don't know what it was.

I took them and started feeling a little better but I felt that I was not healing all the way and the sides of everything was getting to me. I asked him why I still have D, my face looked like a pale chipmunk with purple bags under my eyes, and I was still going to the bathroom alot. He said it was normal. NORMAL??? I stopped taking everything after our little conversation. I would rather die than live like that. I got roughed up abit for about three weeks but my body self-regulated and I went into some form of remission. Not the kind of remission I enjoy now, but it was a start. I look back at it now and realize how stupid that was, I was going to die or get well. I had no intentions of dying so I got well. A few close calls tho...

Since then I have put myself back into almost full remission 100% of the time after 14 years of flares and only taking short runs of pentasa 3 times to keep the bleeding down on the super bad flares. It has been 14 years of trial and error and still work in progress as it seems I learn more everyday about UC. Going med free can be done and I am proof, although I don't recommend it unless you are fully committed and have a good Dr. monitoring you.

Click my name and send me an Email if you would like to know how I do it.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/31/2008 3:10 PM (GMT -6)   
Thanks for sharring your story.

Can you breifly share with all of us what you found to be the most significant thing(s) you've done for yourself?

Thanks
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 12/31/2008 3:38 PM (GMT -6)   
The biggest things that I've noticed over the years: food diary, stress reduction, working out, increasing health and biomass during remission, and active prevention. Active prevention being you accept this disease and realize you WILL have flares. Its how you deal with them. Addressing the pre-flare is easier than treating the flare itself. Its like going to the beach and seeing a big wave coming your way. You are definately going to get hit but it is how you get hit that determines the outcome. Listen to your body intensely, learn to recognize your pre-flare, and look at every stool. I have become very very good at this.

The supplements I have had the greatest use of (in order of importance): digestive enzymes, fiber, probiotics, vitamins, essential amino acids, protein supplements, fatty acid supps, antifungal and antibacterial herbs. Timing of these supps are of great importance.

I've learned that many inflammation suppressing drugs do not allow the body to fully repair itself and I feel that it why it is hard for many to achieve full remission. In bodybuilding, some inflammation is neccessary for the body to recognize where to rebuild. Lactic acid and other chemicals build up as the muscles tear during exercise and signal the body to release adequate chemicals for repair and growth. I feel that UC is similar and taking anti-inflammatories keeps the body confused and unable to recognize threat properly, thus it is unable to fully heal. It is more uncomfortable and risky then taking meds but I live a healthy lifestyle that closely mimics my pre-UC days.

This is just my opinion and those who read it must realize I am only telling my story, not creating advice for anyone or looking down on those who must take meds for their condition.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 12/31/2008 3:57 PM (GMT -6)   
bbc - I'm sorry to hear you're losing so much weight. I have a book called "What to Eat With IBD" written by a registered dietician who also has IBD herself. Here are her suggestions to gain weight with an IBD: peanut butter and other smooth nut butters; guacamole; hummus; heavy cream added to soups, cereal or tea (not if you have cardiovascular disease or are at significant risk for it); flax seed oil added to protein shakes; butter on potatoes, on bread and in hot cereal.

The author says you need about 40-50 calories/kg of body weight when you have inflammation, fevers or diarrhea (1 pound = 2.2 kilograms).

I haven't personally tried these because I only lost about 8-9 pounds even when I was super sick and couldn't even eat and then I gained it all back quickly once I got on meds. I hope you're able to gain some weight soon.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 12/31/2008 4:09 PM (GMT -6)   
I honestly believe I lose weight on pred due to increased energy. That and insomnia. Have been through two divorces in my life. and lost weight through them also. Because I didn't sleep and ran myself ragged. Now with pred, i don't sleep and have energy in middle of night so I clean, or due laundry, or whatever. Basically not get enough rest. I believe this is why pred effects me this way. I still have not gained any weight on Pred, but when I look in mirror I see a bigger face and a bloated belly... NOT my norm. I hate this drug. but I step on the scales still at my reduced weight... must be water and bloating?? I don't know.
I'm 6' tall with a big boned, heavy framed body. My GI says if I drop below 176 I am to skinny for my height and build and then he will start to worry. Till then he is accepting of it, and understands it. Personally I feel he's not that worried over it, so I don't. If he has to he will... but I think he has seen this all before so..... He is the accepted expert in my area for UC, so I'm sure he's "been there, done that" WHen he worries I will. Till then... Hell I look ripped and good. LOL. TIll this last week or so when the bloated started. LOL. Guess This disease is sadistic. LOL of course we all knew that... so..
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16710
   Posted 12/31/2008 4:29 PM (GMT -6)   
I have lost a lot of weight recently too. I was 118 and I am down to 105. I hope I don't lose anymore. I have been eating like crazy to try to keep the weight on. I am petite but probably underweight. People are always jealous because I am small but I would much rather have a lot more curves and be healthy.
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/31/2008 5:08 PM (GMT -6)   
Thanks for the suggestions and your thoughts everyone....the weird thing is I'm flarring but not that bad.

ucwarrior, you're on to something with the antiinflammatory meds not letting the body heal right as I am in the midst of reading susanne sommer's new book called Break Through where she interviews many highly respected md's and natropaths and just today I read about this. What is your best recommendation for an anti fungal supplement?

thnx


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30972
   Posted 12/31/2008 8:12 PM (GMT -6)   
bbc....did you know that digestive enzymes help with weight control and weight loss?

Please consider to lower your dosage, maybe consider to use Metamucil Smooth to bulk and soften the stool and it will cause a more even/relaxed process of the disgestive tract since there is 2:1 soluble/insoluble fibre ratio.

With cardio and swimming....plus digestive enzymes..you mightjust be in your normal range of weight? are you small/med/large boned? What body type are you?

Regarding you drinking a lot...do you mean water? That in itself will help weight loss...so, maybe you don't need to consume quite as much?

What do you eat during the day...just out of curiosity/

q
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/31/2008 10:21 PM (GMT -6)   
Hey Q Happy New Year.

I'm usually a very steady 160-165 year in and year out except I drop weight when I flair...I guess my colon is not properly digesting food and it's also not being absorbed well...thanks UC : (


I take one digestive enzyme per meal and do drink lots of water and swim on most days or do 2 miles on the treadmill, but I've been doing most that for years, except I've recently added in the swimming but on those days I skip the treadmill. I eat quite healthy/excersize and have been doing so for the last 20+years. I do believe that sugar is my biggest problem and I will first start taking a good anti fungal supplement like curmin, then I will slowly but surely wheen myself of most sugar and or carbs (I was a sugar junkie as a kid and young adult and still love carbs...bread, pasta, rice etc etc) I have recently eliminated anything with high/fructose per my GI suggestion. Unfortunately I now have to drink some Boost plus every day in additon to my normal well balanced diet to add some lbs but once God willing I get better the boost drinks will stop as will most sugars.

Hope you continue to get better too and thanks.


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

Post Edited (bbc) : 12/31/2008 8:24:49 PM (GMT-7)


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/1/2009 1:34 AM (GMT -6)   
Antifungals: Virgin coconut oil, oregano, garlic, black walnut, grapefruit seed extract, Pau D' Arco.

Don't take these within 2 hrs of your probiotic as they may have some antibacterial properties as well. Also, don't feed the fungus with refined starches and poor dietary choices. When you declare war on candida or any other yeasty take saccharomyces boulardii, it is a friendly yeast that occupies the space dying candida creates on the gut wall. Beware of die off, as the yeasts die they release toxins that make you feel like crap for a week or two.

I'm glad the anti-inflammatory response is getting the attention it deserves. The idea is simple and based on very general physiology. I wish it had been noticed sooner.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


quincy
Elite Member


Date Joined May 2003
Total Posts : 30972
   Posted 1/1/2009 2:09 AM (GMT -6)   
bbc...happy new year to you too!  I'm doing fine, thanks for the well wishes.
 
Maybe something you've not considered...you need carbs for your body to burn rather than your own body "substance".

If you're not getting enough and exercising as much as you are....you may get cause yourself more distress than necessary.

I don't follow the fungal/UC connection...I believe they would be two issues....and cutting out carbs completely seems nonsense.

There's a limit to what we should consume....the all or nothing doesn't give you what you might need to maintain your weight. 

So you get a bit of gas...limit the refined sugar goodies intake and do consider the complex carbs for your body burning fuel.

quincy


*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/1/2009 2:04 PM (GMT -6)   
Thanks guys'. Today was not a good day...3 BM's first thing this a.m. and my rectum/fissure are both on fire. I did notice that after drinking the boost shakes my stomach was feeling tight and bloated, I then checked the label and the first ingredient after water is corn syrup solids. I honestly believe my body is telling me to avoid high doses of sugar so I'm gonna start avoiding it even more and God only knows what's gonna happen to my weight (lost another pound this a.m.). I hoping if the sugars get cut way back I can start to heal quicker and then gain weight without needing sugar based foods to do so. I am going to have to stay on the carbs for a while until I start feeling better as I have to eat something other than protien all day. My GI gave me an article about fructose and it can really play havoc on those that are intolerant...the next 2 weeks should prove to be quite interesting and I honestly don't want to and will not go through life like this any more. I will try stronger meds if I have to ie remmicade etc but if they don't work then the colon goes...plain and simple. God I feel bad, and to think I had a clear scope and clear pathology in mid Oct with NO signs of IBD...what a weird disease....
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 1/1/2009 2:34 PM (GMT -6)   
I'm sorry you're losing so much weight, bbc. I lost 12 lbs. during my first flare (and my normal weight was 15 lbs underweight for my height to begin with). I gained back my weight once the meds started kicking in and by drinking 1/2 serving of Boost. If you feel like Boost is making your symptoms worse, maybe you could just drink 1/2 a bottle that way you'd still get some extra calories. I agree that the Boost is way too sugary.

I'm confused about digestive enzymes--are they good for weight gaining or weight losing?
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 10 mg Prozac, VSL #3
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/1/2009 3:14 PM (GMT -6)   
Digestive enzymes can help those like us whose colons are not alllowing the nutrients to be proberly digested and or absorbed...hence the weight loss. How the remmicade working for you...I may be on it sooner than I think.


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30972
   Posted 1/1/2009 3:25 PM (GMT -6)   
Some digestive enzymes can be taken without food to enhance the weight loss as well.

I took Zymactive for a while, and I did notice weight loss (which I had to lose a few pounds anyway), but I did change my eating habits somewhat. I did have more bms, which I expected.

As well, remember that we don't necessarily need the food to break down too quickly because certain foods break down slower/quicker..etc. and are used for fuel in the body, etc. If we burn them too quickly, don't have enough complex carbs for fuel in our bodies, we'll just start using the stores in the body that we can't afford to lose.

Not everything is good for everyone....extremes may be good for a short time, but not for a long time..

q


*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/1/2009 4:14 PM (GMT -6)   

Some good suggestions here. I only have a couple of things to add from my own experiences.

First, any supplements that will help heal the gut and thus help restore normal digestion and assimilation will treat the root of the problem. I've found l-glutamine, high doses of omega-3 fish oils and George's aloe vera helpful for gut healing and to reduce inflammation.

As far as what you can do to treat the symptom - weight loss - I'd suggest you drop all cardio until your weight has stabilized and substitute a good, heavy weight training program as q suggested. If you must do cardio, 20 minutes of low to moderate intensity, three times a week is all you need in the state you're in. When you run and swim - you don't say for how long or at what intensity - you're working against weight gain and burning energy your body isn't equipped to give, due to your faulty digestion.

I had much success with a weight training program designed specifically for "hard gainers" or ectomorphs, people who have trouble putting on muscle mass. If you're interested in looking into it, you can find more info here: http://www.musclebuildingcoach.com/, but basically you workout only three times a week, working each body part only once, but with compound moves, heavy weight and low reps.

On the diet end of things, I'd suggest you make sure you're getting plenty of protein for gaining healthy lean mass. Boost and Ensure are full of sugars and unhealthy fats. Try a high quality whey protein isolate or egg white protein or even a weight gainer formula as healthier options. Better yet, check into Absorb Plus as a predigested supplement that will help you regain weight. Because it's predigested, even a compromised gut can get the nutrients it desperately needs. Find out more here: http://www.holistichealthshoppe.com/index.php#6 In addition, some other foods that I find helpful are nut butters and avacado, tender chicken and turkey breast and eggs.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/1/2009 4:23 PM (GMT -6)   
Thanks for the great suggestions and the link to Absorb Plus. I have been adding rice protien to the boost shakes to get eben more protien but I believe the 22 gr's of sugar is what's hurting me. I'll check with my health food stre if the have something better as well but I cannot tolerate artificail sweetners at all. I do eat lots of chicken and turket breast as well as no yolk egg noodles and well cookies carrots etc. I've been eating very healthy for years and have always been able to keep a healthy weight until UC came along and ruined my life : (
princesa said...

Some good suggestions here. I only have a couple of things to add from my own experiences.

First, any supplements that will help heal the gut and thus help restore normal digestion and assimilation will treat the root of the problem. I've found l-glutamine, high doses of omega-3 fish oils and George's aloe vera helpful for gut healing and to reduce inflammation.

As far as what you can do to treat the symptom - weight loss - I'd suggest you drop all cardio until your weight has stabilized and substitute a good, heavy weight training program as q suggested. If you must do cardio, 20 minutes of low to moderate intensity, three times a week is all you need in the state you're in. When you run and swim - you don't say for how long or at what intensity - you're working against weight gain and burning energy your body isn't equipped to give, due to your faulty digestion.

I had much success with a weight training program designed specifically for "hard gainers" or ectomorphs, people who have trouble putting on muscle mass. If you're interested in looking into it, you can find more info here: http://www.musclebuildingcoach.com/, but basically you workout only three times a week, working each body part only once, but with compound moves, heavy weight and low reps.

On the diet end of things, I'd suggest you make sure you're getting plenty of protein for gaining healthy lean mass. Boost and Ensure are full of sugars and unhealthy fats. Try a high quality whey protein isolate or egg white protein or even a weight gainer formula as healthier options. Better yet, check into Absorb Plus as a predigested supplement that will help you regain weight. Because it's predigested, even a compromised gut can get the nutrients it desperately needs. Find out more here: http://www.holistichealthshoppe.com/index.php#6 In addition, some other foods that I find helpful are nut butters and avacado, tender chicken and turkey breast and eggs.



Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

Post Edited (bbc) : 1/1/2009 2:27:09 PM (GMT-7)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/1/2009 4:29 PM (GMT -6)   
I feel pretty good until after I have BM then my guts ache for hours and hours...there is also very little to no blood but the pain after a BM is simply awful...doesn't make one want to live much with this kind of pain : (((
quincy said...
Some digestive enzymes can be taken without food to enhance the weight loss as well.

I took Zymactive for a while, and I did notice weight loss (which I had to lose a few pounds anyway), but I did change my eating habits somewhat. I did have more bms, which I expected.

As well, remember that we don't necessarily need the food to break down too quickly because certain foods break down slower/quicker..etc. and are used for fuel in the body, etc. If we burn them too quickly, don't have enough complex carbs for fuel in our bodies, we'll just start using the stores in the body that we can't afford to lose.

Not everything is good for everyone....extremes may be good for a short time, but not for a long time..

q


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/1/2009 6:22 PM (GMT -6)   
Oh I feel your pain! It's rectal pain yes? I hate that more then anything :( At my worse I got down to 107lbs and I looked like a walking skeleton. I've always been underweight ever before Uc and then I got it and my weight came off faster. I tried the Ensure and it made me worse - sugars I think. So I went to GNC and got a weight gain powder. It doesn't have all that gunk like Ensure or Boost does and you just mix it with whatever you want - best if you use milk though or Lactaid. I managed to gain back 10lbs but then I couldn't get anymore weight on me. Then lo and behold, age crept up on me and my metabolism is finally slowing down and I'm gaining weight without trying - so be careful what you wish for! lol


 @--->--SHERRY--<---@
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