Does anyone have stomach pain with UP?

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ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/1/2009 10:34 AM (GMT -6)   
Happy New Year to all...hope it's a butt-kicking year!
 
I was diagnosed with UP in May via Colonoscopy. For the most part, the "usual" symptoms have been there since May, but in the last 2-3 weeks or so I have been feeling more pain in the stomach area. It is almost more of a nuisance pain. I wouldn't describe it as an out and out pain that has me doubled over in agony just more of a gnawing pain.
 
Anyone else have anything like this?

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 1/1/2009 10:44 AM (GMT -6)   

Could be from medication.  That is what gave me stomach pain mostly - mesalamines or 5ASA - can't take them.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Close to remission -spoke too soon!
 
 
 
 
 
 
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/1/2009 11:09 AM (GMT -6)   

The only meds I am on for the UP is Cortifoam. No other meds for the time being. Not sure if that was listed as one of the side effects of Cortifoam...I may have to look that up.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 1/1/2009 11:54 AM (GMT -6)   
     I have had UP for ten years.  No stomach pain though.  Some discomfort at times but no pain.  I would contact your GI doctor to describe what you feel.  I agree with Elaine, it could be medication.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/1/2009 11:56 AM (GMT -6)   
To clarify, when you say "stomach" area, do you mean the actual stomach area, which is just above the waist, or the abdomen? (I don't mean to insult you, but a lot of people use stomach for both.)

Nausea is not uncommon with a UC flare, but a gnawing pain in your stomach needs to be discussed with your doctor. That is the way most people describe the pain of beginning ulcers. I doubt it's from the Cortifoam, so check with your GI.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/1/2009 12:16 PM (GMT -6)   
I guess I'd have to say it's more the stomach area

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/1/2009 12:39 PM (GMT -6)   
could be ibs or your colitis has traveled further upstream (hope that's not the case)

Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/1/2009 2:11 PM (GMT -6)   
You should call the doc's office on Monday and see if you can get in sooner than the 12th. There's always the possiblity there's a cancellation or he can squeeze you in.


If you do get worse discomfort, you could consider to go to the hospital emergency.

Have you taken any pain meds for it? If so, which ones?


The Zantac isn't helping you at all? You could try to up it to 150 twice daily and see if that helps.

The other possibility is liver/pancreas or gallbladder. are the pains right in the centre between the ribs, to the right, to the left? Do you get worse after eating fatty foods?

Is the pain worse when you press in a certain area?

Yes, I can get terrible upper gastro discomfort....with this past flare, I definitely had lots of that pain...I did up the Zantac and I always use an antispasmodic which helps tremendously.

Would you happen to have a microwave grain bag at home? That could help to relax the muscles in the area and sooth some of the discomfort.

I sure hope you're able to get an appointment with the doc sooner, but if you're not able to, maybe you could get him to call you and let him know what's going on.

Please keep us updated.

quincy
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 1/1/2009 3:30 PM (GMT -6)   
    
     With my last flare I had very strange pain.  It felt like it was in my vagina and I had to go to my gyn doctor.  Got that all checked out but she said because of the inflammation in the rectum it felt like the inflammation had traveled into the vaginal area but all that was clear.  The pain was so bad it actually was going down into my legs.  Never had that before..that was a real bummer.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/1/2009 4:49 PM (GMT -6)   
I will be phoning to see if I can get in sooner...they've generally been pretty good with cancellations.
I thought about emergency but don't want to sit and wait taking up space at the hospital with something that doesn't appear to be an emergency
 
I should likely clarify in that it is not necessarily pain as I refer to in my topic heading. It is more discomfort than anything. I don't have any other issues like nausea, vomiting, weight loss. If I poke or prod my abdominal area it doesn't seem to hurt at all, only if I push really hard but that would hurt even if I had no other discomfort. If anything, I'd say the discomfort is more between the ribs but does seem to be pretty generalized.
 
Fatty foods...hmm that's what I've been eating all holidays!
 
I should stick to the Zantac a little more as I have missed taking it a few times.
 
I've been thinking as mentioned in previous posts that perhaps my UP is travelling "up" and turning into Colitis. I thought about IBS as well but always thinking that the 2 wouldn't necessarily appear together. 
 
 

quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/1/2009 4:56 PM (GMT -6)   
If it were to travel upwards, your symptoms would change a bit...diarrhea or really loose stool would be one and actually give you a bit more relief compared to a more firm stool and inflammation limited to the lower part of the rectum.

Do ask...beg...for an antispasmodic.

I understand exactly where you're coming from regarding that discomfort.

IBS and UC (UP) do appear together for those of us who have both....it adds to the confusion and distress. It took me a while to figure it out.

fatty foods....yep, ugh...take longer to leave the stomach. You could try a digestive enzyme to help digest/break down the fat...or just lay off some of the fatty stuff for a few days and see if that improves.

Let us know regarding the phone call to the doc.

I agree regarding the emergency...

quincy
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/1/2009 4:57 PM (GMT -6)   
forgot to ask...what other supplements are you taking?

q
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/1/2009 5:06 PM (GMT -6)   

No other supplements as of yet.

You've been diagnosed with both UP and IBS?

What exactly does the antispasmodic do?


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/2/2009 2:44 AM (GMT -6)   
My original diagnosis was ulcerative proctosigmoiditis...still UC limited to rectum and sigmoid.

All my flares are limited low in the rectum....which I do attribute to my compliance through using rectal meds for treatment early and tapering to maintenance. I'm also on Asacol to deal with inflammation in the sigmoid and to help prevent further inflammation from happening. There's also a strong belief that 5ASA meds help prevent cancer...so, I'm willing to go forever with them as long as I can use them.

My last c-scope in 2007 was unremarkable (a good thing)...all 30 biopsies were clear of precancer, and the last 2 inches in the rectum were slightly inflamed..expected at that time since I had recently fallen down the stairs and had my shoulder spontaneously popped out and back in. It was a painful time, and then having the prep always seems to encourage some lower rectal inflammation. The doc and I were very pleased!

I have had IBS my whole life...up and down but more constipation and mucus,and a LOT of stomach discomfort. I was tested for ulcers, nadda. But, I also had lots going on internally including endometriosis.

Bouts of diarrhea were short-lived, however...sometimes bouts of urgency to go with diarrhea, but it never continued until 1996's 3 weeks of pure hell and a quick weight loss from 125 to 109. I wasnt' diagnosed until just after the bleeding started and my "then" doc sent me to my GI in January 1989. The only good thing she did for me.

The one I use is Bentylol (dicyclomine). I started out with 10mg and have since progressed to 20mg.
I wouldn't suggest anything above 10mg.
 
http://www.medicinenet.com/dicyclomine/article.htm

This ^ site ^ pretty much explains it...the only side effect I get is slight blurred vision. With age changes in my 40s and vision changes, it was noticable at that time. It's easy to feel more relaxed from it if I'm lazing around or use it before bedtime..but if I'm out and about, the effects aren't as noticable. Probably because I'm usually more "hyped"...lol!  smhair

Hope you are feeling a bit better this weekend.

quincy
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 1/2/2009 1:47:01 AM (GMT-7)


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/2/2009 10:21 AM (GMT -6)   
My C-Scope was pretty straightforward, he took a couple of tissue samples on the way out just to confirm his initial diagnosis of UP...I don't think we were 10-15 seconds into the procedure when he said..."well, here's your problem". I never did see the report as he doesn't do that, he sends it off to GP. (and I never thought to ask on my follow-up visit at my lovely Friday 5:30pm appointment)  GP's office policy is that they will not contact you unless something is different than what was discussed. Last visit in to my GP he showed me the sheet but I did not get a copy of the report. It is a relative of your's who sees AM isn't it? Was he willing to share their reports with them? AM seems to be pretty secretive with them.
 
I'm not really feeling all that bad, doing more worrying than anything.  sad Wifey thinks I may be suffering from depression, so that adds to the mix....

quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/2/2009 3:41 PM (GMT -6)   
I believe you can ask for a copy of the report...my doctor had no problem since I started asking for it.
Some doctors, however, have a "parental" attitude....you don't have to know the details, just know that you're OK or not. He is more old school I think regarding that. Times are a changing, however...but I've never gone to him.

My sister saw him for gallstones around 1981ish...she had 3 ERCP tests and has pancreatitis because of producing stones without a gallbladder and possibly from the test itself. She really liked him...but he did solve the problem.

Her husband has esophagitis, and has to get his esophagus stretched regularly. AM has been super accommodating and has helped to "resolve" that problem. It'll be ongoing, and with the relief, my BIL will be going more regularly than choosing to suffer.

Curious who your GP is.

All you can do is request a copy for your records. Not for another doctor...I think we have a right to that if I'm not mistaken. Some doctors are more easily accommodating. I guess you could always start writing the results and then he'll say...never mind..I'll just give you a copy..lol!

Regarding feeling depressed...do you have depression anyway? Part of the process is to get the treatment happening and feel like we're somewhat in control...be it through taking meds, finally learning to live with it and knowing we have the support of our loved ones and our friends.
Allow yourself a while during the day to be depressed...then shake it off and focus on something else. Are you working at this time?

It all takes time, and basically it sucks to have to deal with one's butt and digestive issues. One thing...I'm impressed AM put you on rectal meds. That's a good thing that he sn't taking the easiest route of putting you on pred.

Do the homework and research on UC. I felt incredibly empowered once I started reading (no internet 20 years ago)....it answered my questions and allowed me to not fall into the category of guilt and possible cures that others tried to force upon me.

Hang tough....less than 2 weeks to go!

quincy
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/2/2009 4:38 PM (GMT -6)   
I sure appreciate the time you take to answer "stuff". I've been spending a "ton" of time on here since I joined and do appreciate everyone's advice but I seem to target my questions towards you because of our Manitoba connection.

My GP is likely one of the lowest ranked docs if you ever looked at the Rate MD site. He has been fine for me and doesn't hesitate to refer to specialists as required. Not sure how much more we can expect these days. His initials are CL. Not sure how he will respond to giving a copy of the report, but I guess if he'll let me read it, it will be more than I've got out of AM so far.

My wife and I are in disagreement on this, though I'm open to sitting down and talking about stuff with someone to see if indeed I may have depression.
I've been rather short with both her and the kids and as she puts it, "feeling sorry for myself" for a long time. Our's hasn't been the happiest place lately. I just think that my worrying about all my stomach/butt issues is causing much of this. Once I get in to see AM and confirm whether my symptoms have gotten worse/stayed the same/or investigate any other things that may be giving me grief and get a definitive diagnosis that things will be better. Once I got my UP diagnosis things were good for awhile and now that things have continued on and symptoms have seemed to have gotten worse I've been back to being "touchy". I truly wish I wasn't acting like this and because I continue to, perhaps I do have some form of depression. I guess from my end of things I'm feeling a bit upset that my wife doesn't really want to discuss any of this stuff as she thinks I have UP and that's the end of it/deal with it. (She really is the greatest wife a man could ask for but she doesn't seem to have a lot of sympathy or time to discuss my affliction and it bugs me)

I have been doing a lot of reading and learning a lot about UP/UC and am somewhat comfortable in knowing that UP is chronic and I will be dealing with it or UC for an eternity, I'm just bad at constantly thinking it is something worse.

Just got off the phone with AM's office and they've put me on a list for any cancellations that may come up this week, so hopefully that will work out for me.

Thanks again.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/3/2009 11:58 AM (GMT -6)   
You're welcome!

Interesting about your GP...I don't know anyone who has him. It's good he'll refer you..that's important.

Regarding thoughts, worrying..etc. You do have some control...and that's where the research comes in. It's easy to go down the road of least resistance, but it's easy to lose oneself in those thoughts...been there a lot.

Your wife probably is mildly saying...life goes on. you have to put things in perspective and until you actually start to feel better, your learning to function while feeling crappy takes time.

This could be the worst you'll be or not. Flares are up and down, and making the adjustments in the first year or so really requires the experience and options so that we don't feel so stuck or limited.

Not all people are going to get how you feel.....or what you're going through...but don't put an ideal up for how your wife is supposed to react because you'll be disappointed and take that feeling with your journey down the road of fear and feeling sorry.

I'm not saying you don't have the right to feel any of those things...I'm saying you don't know what you're dealing with quite yet. Your fears aren't necessarily hers....or they may be, and she's put them in a place to deal with if she has to.

You mention children...her focus is more than likely her whole family...

Have you asked her what she actually feels?

So, how are you actually feeling today?

I think what you could do is write things in a journal...so that once you write about it, you close the book on it. Ask your wife if she's willing to do some responses in it if you feel it's difficult to discuss.

We all deal with fear in our own ways, sometimes creating a more difficult situation. It took me a long time in therapy to figure that out...lol!

Again...hang tough.

Take time to recognise the great things too.

quincy
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/3/2009 12:38 PM (GMT -6)   
Thanks for the encouraging intelligent words.

It's kind of funny, the more I feel comfortable chatting about this aspect and start typing out stuff like this, the more I begin to believe that I am just exacerbating my UP and whatever else is troubling me with the possible stress, depression, or even anxiety that I seem to be displaying. My wife has also been stressed out with jobs and other issues lately and so we are not the perfect match right now. (or maybe we are:)) She wants me to be strong for her and I want her to be strong for me, and the sad part is neither of us seems to be helping each other.

I think I just have to remain distracted/busy and I seem to be able to carry on much better. The minute I spend too much time thinking about every little "different" feeling I get, I seem to lapse into the state I'm in. All the other little "pains", twinges, etc I speak about are not the type to have me doubled over in agony or bedridden so likely best to just keep rolling until I see AM and my GP again.

I've got many great things happening in my life, like my wife and three beautiful boys,etc., etc. so I should give those things ample attention too!

Thanks ever so much again Quincy!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/4/2009 2:40 PM (GMT -6)   
Hi...well, job issues are so incredibly stressful...and you do have control over how much support she gets. If you withhold support, it won't help your situation...maybe in turn she'll be more supportive to you.

I don't know how old your boys are....but for your wife being the only female, it can help to show by example. We all need support in a different way. We don't have kids (interestingly, I wanted 3 boys..lol)...but I do know that kids will take any stress their parents are outwardly relaying and somehow make it their fault... and change their behaviour to create an outcome that seems to make sense to them. They will make sure they get parents' attention no matter how positive or negative it might be. It doesn't seem to take much to have children happy...does it?  shocked turn rolleyes
 

The research and typing of how you're feeling will be stressful...how often would we actually want to bring forth how we really feel and see it in front of our eyes there for everyone else to see. We risk saying anything about it or finding out about it...ignorance is bliss for a while. Eventually it wears us out though worrying anyway. But that's how we gain support....the truth sucks, but it's a learning process of grieving, realising, acceptance and healing....

The bottom line is....we worry less the more we perceive we have control.
Because it's all new to you, you'll soon learn what it all means. I was at my doctor's a LOT the first two years...I trusted his care, his famous statement to me was "be patient!".  I was truly anxious with other issues happening in my life. What was weird is that the control of UC was the positive thing I had...which helped a lot. I knew what to do at least. The other stuff was a long and difficult road, but with incredible results.

Hang tough...yeah, I know I say that a lot...but do trust that you will be able to help your situation by changing your perception. It won't mean your situation isn't important, it means you'll be juggling a bit more in your life.

Keep warm!! brrrr!
quincy


*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/4/2009 3:06 PM (GMT -6)   
Good afternoon,

Hoping the job issues straighten out for my wife in the New Year. She made a decision on a job that she regreted basically minutes after she accepted the position and It's been trying around here ever since.

The boys are 14, 12, and 8, so even the youngest one can pick up on the fact that things haven't been great around our house lately. I really appreciate the support of you and all the others on this board...never thought a little Ulcerative Proctitis would cause so much grief in my life!

I was up around 3:30am this morning just tossing, turning and thinking, so decided to get up. Came to the board and read some stories of other's UP and UC issues for an hour or so and it seemed to straighten out some things for me. I actually went back to bed for about 3.5 hours or so...I needed that!

Today seems to be a better day so I'll take that as a step in the right direction.

Yes, it is darn cold here isn't it?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/4/2009 4:11 PM (GMT -6)   
Hi...amazing what a bit of info sharing can cause. I can relate when I was diagnosed with Primary Sclerosing Cholangitis. Well, it was suspect in 1997..and while reading the information my friend from RRC provided for me, I cried for 3 weeks just after establishing myself in my new career.

One article gave me hope, however...it was the conclusion that the testing of using an ERCP could trigger an early stage PSC into being active and also for possibly causing pancreatitis. With that information I had control to say no to the test...it's been over 10 years, and with the MRI test for the liver/abdomen to see if PSC is happening, it confirmed early stages...still.

So, there are good things and bad things from research, but without the research, I would have probably gone ahead with the test and who knows what I would have been like at this time...

The other liver GI specialist suggested I not do the internet because I'd be too upset....it's like Russian Roulette...I need infomation to ease my anxiety even if it causes me more. At least I can deal with it on a logical level.

It's good you're having a better day.

Regarding jobs...I hope your wife will be able to come to some resolve. Regret is a difficult thing to experience...but interestingly from what I've read lately, we receive what we're receptive to. Simplistic, yes, but hopefully, she'll be able to find some positive in the position. If this job allows her to get to another position, it may be worthwhile.

She's probably got lots of anxiety about various things...maybe if you ask her some open ended questions, she'll be able to express.

I'm notorious for taking stuff out on my husband...and it helps for him to say "I know you're feeling stressed, distressed or mad at yourself, but please don't take it out on me". It makes me realise my actions aren't fair ... although he accepts it more than I do, it helps to head off an argument.

Hey, only 8 more days till your appt!
q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/4/2009 8:19 PM (GMT -6)   
Wow...sure sounds like you've been through a lot in your life "illness wise" You are a very resilient lady. I feel pretty guilty whining about my UP. :-)

Actually, both my wife and I seem to be having a better day today. Lots of little stuff that needed to get done around the house that was gnawing away at her and we made a lot of progress today so she feels good about that.

I guess that's what happens with couples and makes them stronger is being able to accept the bad along with the good. Unfortunately, our spouses or live-ins are the only ones who usually get the "bad". It's sounds like the two of you are very tolerant of each other.

I just want to get my butt and gut under control and I feel like things will be better in so many areas for me. Perhaps just wishful thinking...

Had some friends over last night and one of the wives and I were swapping stories about sore stomachs...her doc figures something food wise is giving her grief. (can't remember what it is she is cutting out!) I'm beginning to think that may be the case with me too.

8 days can't come soon enough, even though it is just an office visit, I hope to come out of there with some answers as far as the next direction we'll go.

PS , I don't think the Zantac is doing anything for me... at least that dosage.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/5/2009 1:17 AM (GMT -6)   
Good to hear you had a better day. We're in house changes (which will take about a year)...and I know that organisation and getting stuff done helps at home. I'm a procrastinator, and making the time to do stuff together helps a lot.

Hey, we all have our own stuff to deal with..don't use anyone as a measuring stick for your own struggles/pain/suffering/whining. Just work on your own feeling better by knowing what's going on and realising that certain pains are this, other pains are that and some may mean something else.

I do freak a bit internally when I get certain continual pains in my upper abdomen or when I have severe nausea. I worry it's my liver...if the zantac or bentylol doesn't work and it's consistent, then it could be a flare or even something I've eaten. I do, however, check my eyes to see if their yellow yet..haha! The fear never ends totally ....but I know that I could see my doc if I needed to, so that eases some of my anxiety.
I'd lie if I said it wasn't a struggle. I wish my mind would shut off for a while.

My husband and I will be married for 30 years next month. Tolerant of each other...I like to think of it as growing up, understanding and respectful..lol! I use his parents as the model of what I don't want us to be like..sigh.



Do tell the doc that you tried Zantac and it's not helping. So, reflux is probably not the issue.

I think that you could consider toask regarding an upper barium x-ray at least....easy test.

The antispasmodics could help.

Yes, certain foods or drinks can increase stomach/upper gastro discomfort. I hope AM at least checks it out manually and then considers another test.

only 7 more days..

Are you still using the enemas nightly?


q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/5/2009 6:34 AM (GMT -6)   
Yeesh...I think I'm doing a bit more than freaking. Like I said in my previous post, we had a good day. Nights have not been so good.

Yesterday up at 3:00. (took some comfort in reading the forum, then back to sleep) Same today (the forum didn't relax me today). I'm trying so desperately to pinpoint all that ails me to my UP, not succeeding very well.

Besides my stomach discomfort, I've also been having back/chest discomfort. (once again not agonizing pain) I'll take an ibuprofen and get about 4 hours sleep or so out of it before the discomfort gets to me. This has been going on for a week or so. Not really liking this too much. I've taken the day off today as I had to run my son in to get a cast taken off his thumb, and I had a dental appointment (cancelled now) Will be phoning my GP and if no luck there, I am off to St B Emergency.

Will try to keep you posted.

Stay warm
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